Topic: 17 Years Gone Over Forever No Rewind Button
Annie C
Frequent Contributor (1K+ posts)
Member # 14
posted
After fighting my whole life and the last 17 years 15 with treatment.
I AM BACK AT SQUAR ONE.
NO TREATMENT HERXING LIKE I'VE NEVER HERXED BEFORE
I CAN BEARLY MOVE TO TXT I ANOINT MY HEADACHE WITH TYLENOL
KNEES HOW SWOLLEN RED WHOLLE BODY COVERED IN A MARBLED RASH
I KNOW THIS FEELING SADDLY WAY TO MUCH
I NEED LIQUIDS I WAITING FOR A SPARK TO GET UP AND THROW MY BROKEN GLASS THAT'S NEXT TO ME. MY BACKSCRATCHER FELL AND BROKE IT
IM LISTENING TO UP LIFTING CHRISTIAN MUSIC
I CAN'T BELIEVE IM BACK TO SQUAR ONE. TICK BITES TOOK OVER AFTER PARATHYROID ADENOMA TUMOR SURGERY
I'LL BE OPEN AN HONESTLY TO TELL YOU I HAVE NO MORE DESIRE NONE. LESS THAN NONE. TYLENOL DOES NOTHING FOR ME.
TOO MANY YEARS STOLEN FROM MY LIFE. I HAVE NO FUTURE.
I HAVE TO REMIND MYSELF TO BREATH. I DON'T EVEN WANT THAT MY KNEES MY BODY. MUST BE CO'S FROM BITE.
RESISTANCE WENT DOWN AFTER SURGERY IM TIRED. I SLEPT TIL 10am I HAVEN'T DONE THAT IN 6 YEARS.
MY FAMILY NOW WANTS ME TO COME OUT FOR A VISIT AFTER 8 YEARS. AND THERE IS NOWAY I CAN MAKE IT NOT NOW.
FYI ARKANSAS DOES NOT ACKNOWLEDGE LYME DISEASE. ALL I NEED TO DO IS MOVE 5 MILES NORTH. BUT I CAN'T. TO MUCH BS.
OK IM DONE TALKING AND HATING LYME
-------------------- May God Bless you every day. And Never say never and do not give up no matter what. We need you to help others. Posts: 1288 | From Tetons Wyoming | Registered: Oct 2000
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Annie C
Frequent Contributor (1K+ posts)
Member # 14
posted
Wow that was me???? I'm glad that Herx is almost over. Well actually that was 5 in a short period of time. And now I'm just Herxing mildly. Talk about Raw Open Truth. That's it right there.
A very scary place to be. I still have broken glass but I did get a new one with water with a splash of tea for taste.
I'm scared cuz I can feel another one coming on. I hope it's not as bad. This is so wrong for any of us to struggle while drowning. So much pain. So many years.
But I'm still here. Fighting
-------------------- May God Bless you every day. And Never say never and do not give up no matter what. We need you to help others. Posts: 1288 | From Tetons Wyoming | Registered: Oct 2000
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Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
Praying for you, Annie!
After watching the 11 part docu-series called "The Truth About Cancer", and hearing that beating cancer is more about strengthening the immune system, eating clean, organic whole foods, increasing oxygen levels, removing toxins and using some herbs/supps that kill cancer, I think this really applies to healing from anything, including Lyme.
I am going to look further into Beta glucan and fulvic acid, and maybe some other things.
Can you concentrate on boosting your immune system and really good nutrition right now?
Keep listening to that uplifting Christian music!
God has a plan for your life, and it gets better!
Hugs!!
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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Annie C
Frequent Contributor (1K+ posts)
Member # 14
posted
Thank you thank you De48 Oh how bitter sweet is the truth. I don't eat right cuz I have no one really to fix it. Due to dental 3.5 hour nightmare I can't even eat raw foods I must purée them. I take lots off Probiotics. Drink lots of filtered water. Very little if any red meat. I buy fresh farm local eggs.
Yes I will do everything I can. Just tell me what and I will. And where have I been under a rock? You mentioned about this 11 series of healing cx say what Huh ?
Please feel free to pm me anytime. Or to tell me it's time to eat. I'm using coconut oil. And taking Monolaurin. That I know can cause a herx too.
Thanks for the boost I needed. God knows I'm fighting and he knows what I need. I listen to his music to get me thru this. I feel like it's 1999 all over again. And this from another tick with co's as well. No Abx at all.
One day I wish we could all meet each other. And just give out hugs. Bless you Dekrator48 bless you.
-------------------- May God Bless you every day. And Never say never and do not give up no matter what. We need you to help others. Posts: 1288 | From Tetons Wyoming | Registered: Oct 2000
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Annie.. yes, try to remember to eat. It really doesn't sound like herxing to me. I just hope you can see your doctor soon and tell him what is going on with you.
Hugs, my friend!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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Annie C
Frequent Contributor (1K+ posts)
Member # 14
posted
Lymetoo which part doesn't sound like Herxing.
-------------------- May God Bless you every day. And Never say never and do not give up no matter what. We need you to help others. Posts: 1288 | From Tetons Wyoming | Registered: Oct 2000
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Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
Hi Annie,
I hope you are doing better today.
I think your Dr would be best able to give you recommendations since he knows your history and present state of health/labs etc, and I really don't.
Can you see your Dr soon?
Eat/puree/make smoothies out of as much organic whole foods that you can.
Good foods to use would be organic kale, spinach, arugula, avocado, carrots, granny smith apples, strawberries, blackberries, raspberries...things like that, in any combo as often as you can eat/drink them.
Keep up the organic virgin coconut oil. Sweet potatoes are great baked in the oven for about 1 1/2 hours and get very soft.
If you can get some organic bones, especially large ones from beef or chicken, you can make bone broth, which is very healing. Lots of info online about bone broth.
I like roasted organic chicken, which is easy to throw in the oven. You could chop or puree if needed.
The series about healing cancer naturally really emphasized the importance of nutrient dense foods for healing illness.
Our bodies can only work with what we put in them, so work on that as much possible and try to see your Dr to see what all is going on and what you might need.
Hugs dear Annie, and even though we probably won't meet in person in this life, we will definitely see each other in heaven where we will all be made whole!!
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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Annie C
Frequent Contributor (1K+ posts)
Member # 14
posted
Thanks T C and thank you De48 I copied and pasted it to notes on my phone. This way I'll always have the groc list with me.
I have one of those bullet puréed. It was given to me. With hopes I would use it. Well Ive no instruction book. Not sure how much I can put in it. It's only about 5-6 inches tall. The container part I mean. I just now thought to look it up online for recipes. Ok quit LOL. Just kidding. But I am LOL
I'm going to go get it out of cupboard and google the thing. Thanks for all the time it took to type that all that info up but I Hopefully you have this info so it was a copy paste for you too.
I'll let you know what I find. I think it at least 7 years old. It's the dark blue one. I think it's one of the original Bullets. Weeee God bless you.
Oh yes and Lymetoo notice the time of my post. I woke up at 10 and around ten thirty it started. It is like a slow to fast ocean wave and you're lying on the beach. It just comes onto me like that and very very Heavy.
Then it feels like half of the sandy beach has buried me. I can't move but I keep trying. The headaches begin at the same time. Then my skin burns and my all my larger joints feels as if someone was smashing them in a vice. My neck hurts so bad I can barely turn my head. So I use my eyes.
And I'm very very nauseated Ive always had meds for when I need them. I often run a low grade fever. My normal temp it 97.7* as most Lymies do.
So yesterday it started around 10:30 lasted until a out 5. I lost all time frame from 10:30 - 4:00 it's like all the pain a d all the aching and headaches with Ice pack I finally looked at a clock and I could not believe how much time had gone by.
And I was so mad and scared. And that's when I wrote the all caps Vent. Geez am I not allowed to Vent like others do. I was pissed off/scared. Being alone and you lose all that time. Most of the times I will curl up into a fetal position almost.
Most of the times Im in my recliner hands curled inward and my arms. And I hurt all over some place Worse than others. Some even stop. I lean to my right turning my head to the least painful position. And hang on, in my mind I'm thinking that.
Hydrocodone I have but I won't take it. It makes me sick to my stomach which I take promethazine and OTC cherry syrup to nausea. Which is why I turn on Christian music as I drift in a d out of conscienceless sleep and semi-coherent.
It's during those times I must Vent my anger. Cuz I can't get treatment right now. I have to drive 220 miles one way. My understanding is yes Abx cause herx Due to Die Off. Yet w/o Abx there can still be Die Off and the body reacts to it pretty much the same way.
Now today Ive had bad headache and had to wear ice pack. I've even put folded laundry into my bedroom. And my feet are very swollen. Can't wear sandals. I wear gloves that I've cut the tip of fingers a d thumb off to keep my hands warm.
Ok I'm sure there's something I'm forgetting. But I was glued to this recliner for close to five hours. Definably 4.5 hrs. So what happened yesterday was Lyme Raw and Untreated. It's just like a herx. Die off is die off.
Today I plan to do some detoxing. Maybe I have ALS. I can not recall the missing time not one minute. My memory and mental was really effected from high calcium. I'm taking Vitamin D plus others.
-------------------- May God Bless you every day. And Never say never and do not give up no matter what. We need you to help others. Posts: 1288 | From Tetons Wyoming | Registered: Oct 2000
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Annie C
Frequent Contributor (1K+ posts)
Member # 14
posted
quote:Originally posted by Annie C: Thanks T C and thank you De48 I copied and pasted it to notes on my phone. This way I'll always have the groc list with me.
I have one of those bullet puréed. It was given to me. With hopes I would use it. Well Ive no instruction book. Not sure how much I can put in it. It's only about 5-6 inches tall. The container part I mean. I just now thought to look it up online for recipes. Ok quit LOL. Just kidding. But I am LOL
I'm going to go get it out of cupboard and google the thing. Thanks for all the time it took to type that all that info up but I Hopefully you have this info so it was a copy paste for you too.
I'll let you know what I find. I think it at least 7 years old. It's the dark blue one. I think it's one of the original Bullets. Weeee God bless you.
Oh yes and Lymetoo notice the time of my post. I woke up at 10 and around ten thirty it started. It is like a slow to fast ocean wave and you're lying on the beach. It just comes onto me like that and very very Heavy.
Then it feels like half of the sandy beach has buried me. I can't move but I keep trying. The headaches begin at the same time. Then my skin burns and my all my larger joints feels as if someone was smashing them in a vice. My neck hurts so bad I can barely turn my head. So I use my eyes.
And I'm very very nauseated Ive always had meds for when I need them. I often run a low grade fever. My normal temp it 97.7* as most Lymies do.
So yesterday it started around 10:30 lasted until a out 5. I lost all time frame from 10:30 - 4:00 it's like all the pain a d all the aching and headaches with Ice pack I finally looked at a clock and I could not believe how much time had gone by.
And I was so mad and scared. And that's when I wrote the all caps Vent. Geez am I not allowed to Vent like others do. I was pissed off/scared. Being alone and you lose all that time. Most of the times I will curl up into a fetal position almost.
Most of the times Im in my recliner hands curled inward and my arms. And I hurt all over some place Worse than others. Some even stop. I lean to my right turning my head to the least painful position. And hang on, in my mind I'm thinking that.
Hydrocodone I have but I won't take it. It makes me sick to my stomach which I take promethazine and OTC cherry syrup to nausea. Which is why I turn on Christian music as I drift in a d out of conscienceless sleep and semi-coherent.
It's during those times I must Vent my anger. Cuz I can't get treatment right now. I have to drive 220 miles one way. My understanding is yes Abx cause herx Due to Die Off. Yet w/o Abx there can still be Die Off and the body reacts to it pretty much the same way.
Now today Ive had bad headache and had to wear ice pack. I've even put folded laundry into my bedroom. And my feet are very swollen. Can't wear sandals. I wear gloves that I've cut the tip of fingers a d thumb off to keep my hands warm.
Ok I'm sure there's something I'm forgetting. But I was glued to this recliner for close to five hours. Definably 4.5 hrs. So what happened yesterday was Lyme Raw and Untreated. It's just like a herx. Die off is die off.
Today I plan to do some detoxing. Maybe I have ALS. I can not recall the missing time not one minute. My memory and mental was really effected from high calcium. I'm taking Vitamin D plus others.
notice the times of posting the first one and yes the second one also. I kidding about ALS. God knows I dont want that any more than Lyme. Any one read about Avril or what ever her name is. She had a Neg tests until they used the right one with right. And she's so young. And scared.
-------------------- May God Bless you every day. And Never say never and do not give up no matter what. We need you to help others. Posts: 1288 | From Tetons Wyoming | Registered: Oct 2000
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posted
Annie.. There is no need to defend yourself or explain your pain.
I am not denying your pain and misery. I KNOW you've got it ROUGH. VERY ROUGH. I was just saying it didn't sound like a herx. Sorry I said anything that you might deem as a negative.
PS .. I can't take pain meds either, so I totally get the picture. Please stay in touch with your doctors in case there is something more they can do.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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Annie C
Frequent Contributor (1K+ posts)
Member # 14
posted
Yes I was planning On seeing my Dr this week. Sorry I felt I need to defend myself. Most Drs are that way. When you said it might be something else. I flipped 😳"Something Else" "I have no more parts for something Else" to go wrong.
There's so much brain and body damage done from high calcium. It's a complete travesty to everyone that can't get the surgery, IF it's needed more often yes. Then they have to find a Dr. That will know how to do the surgery.
So I guess that the thought off something else floored me after I flipped. I need to stay at a few Holiday Inns. And I have AARP now. Off topic. Maybe I could just start eating baby food. Until I learn how to use this Bullet mixer. I want to make my own nut butter. etc...
I'm having a much better day. Just a tad worn out. Very very long week. Easter was nice until I got home. Agonizing pain in my legs for 5+ hours. I mean agonizing pain. All I did was sit in different chairs. Then Mon I developed fever puking and emptying etc... I had the flu for 3+ days. Then Thurs hit hard due to flu. Fri. I don't remember Fri. Then yesterday bad day.
This morning I hate not knowing how I'm going to feel when I wake up. I'm sure there are a few that will agree with on that one. I can't even enjoy getting older. 😉
And Lymetoo knows Ive had my battles. Three in 2007. SERAQUEL Bad Drug 2 Class Action Law Suits. 2 of them. It destroyed my family mostly my Children. It's been 8 long years. And my daughter is now talking to me. She had to grow up fast. And now she understands.
I got a very very funny email from a person I met onLyme she's a Psych Dr. It said Why do the side effects from drugs cause Anal Leakage and Suicidal Thoughts!!! Why can't they make ones that makes us Invisible and Spontaneous Orgasms 😂😂💚💚💚 Green Hearts for Lymers.
And I txt all this from my IPhone whewwwweeeee tired. 💚
Oh TC a chill pill. How do I get one. Kidding. Maybe I can do the Thorazine Shuffle.
-------------------- May God Bless you every day. And Never say never and do not give up no matter what. We need you to help others. Posts: 1288 | From Tetons Wyoming | Registered: Oct 2000
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