posted
This is probably the best story I've come across in a very long time. It was recently released by an online writer/blogger Who I've been following for a year now. I absolutely loved so I thought i would share.
With a dear friend in mind He writes about what some (us) people have to go through to get a diagnosis and a doctor who 'gets it'
if the URL doesn't work just type - theferrett i hope you get officially sick
posted
HK- this is an awesome blog post. Thank you for sharing it with this Group! Two days ago, I myself had one of those 'The Phrase' moments. It wasn't the usual suspects, either (Lyme, Babesia, Autonomic Neuropathies, etc.)... Unfortunately, as we well know, although those Phrases should be more than enough to justify an actual real-deal disease process to any (mainstream) physician, they sadly are not. Nope- my very rare neurological/neuropathic disease has finally been attached to my health chart, if-you-will. I have officially been assigned the diagnosis (medical) code that is used by medical prfessionals and health insurers in the industry.
It's likely hard for some to wrap their heads around another being 'joyous' with such news. Me on the other hand? It's like I just celebrated all of my 38 birthdays on one day.
Oh happy day!
Thanks again for posting here (and thanks for your efforts, too, Abxnomore)!
Told you...
Posts: 315 | From Negative (-) to positive (+) | Registered: Nov 2011
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Unfortunately for lyme and tickborne patients getting the initial diagnosis is only the first battle.
Once you have had your 28 days or whatever is the current IDSA approved dose of antibiotics or your 10 days of Babesia treatment you are "cured" and no longer sick in the eyes of the IDSA and standard AMA docs.
Until the chronic nature of lyme and babsesia and other tickborne illnesses is recognized patients will continue to suffer.
So it is an ongoing battle with every doc you encounter except for the few brave LLMD's who get it.
Bea Seibert
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- My hope is that doctors get "officially educated" in the matters of lyme, tick-borne and chronic stealth infections
and "officially educated" in matters of politics & insurance that are just destroying people by keeping doctors in the dark
and that doctors become "officially educated" in nutrient deficiencies (too may GI doctors can't even properly diagnose celiac), etc. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
Oh yes I know! It's forever a burden for us but the more educated a person is about their illness the more they can learn, and the better off they'll be both mentally and physically.
Insurance co. not taking responsibility, but advantage instead Bc its an invisible illness will always be the main problem. I think politician's and the gov in general are literally demons in human skin. I doubt the system will ever change since they have all the power over doctors.
But still the dx was a godsend. When everyone doubts you, doesn't understand, and thinks your crazy, it actually makes you crazy. Never mind the ridiculous misdiagnosis such as your depressed And whatnot.
I remember once in the er during a lyme anxiety Attack, head of GI came into my room where there was a chalk board and spent 45 minutes explaining anxiety using math equations. I was barely breathing, conscious, or alive and had to listen to this. it was worse than sleeping next to Freddie krougar and I literally wanted to kill myself after leaving. And after every other 50 plus dr visits.
@itoldyou so glad you enjoyed it. I know how much we all relate ! i pretty much stalk this ferretts blogs, but when i came across this piece, I fell in love lol
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