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» LymeNet Flash » Questions and Discussion » General Support » What are your top 3 symptoms of Lyme ?

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Author Topic: What are your top 3 symptoms of Lyme ?
Bartenderbonnie
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My top 3 symptoms of Lyme are, in order of severity :

CHRONIC PAIN
CHRONIC FATIGUE
VERTIGO

Of coarse I have a smorgasbord of other debilitating symptoms that I suffer through every second of every minute of every hour of every day.

But from the minute I open my eyes till the minute I close my eyes to sleep, I have :

CHRONIC PAIN
CHRONIC FATIGUE
VERTIGO

Yup, never leaves my side. Like a bad penny. Horrible.

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randibear
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head pressure
twitching
bodywide PAIN and more PAIN

--------------------
do not look back when the only course is forward

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HW88
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Head pressure/dizzy weirdness.
gastroparesis (lots of nausea)
weakness/feeling like I'm going to faint.

Plus a bazillion more, but those are my top 3 probably.

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Robin123
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Unstable joints
Chem sensitivity
Lack of sleep control

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HW88
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oh ya... sleep control. Add that to the biggies!
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Bartenderbonnie
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Tininitis
Blurry eyes

I know I said Top 3, but I meant Top 5.

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Tincup
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Hey HW- I saw that!

You tried to sneak in "weirdness" as a Lyme symptom. I've never seen that on any Lyme symptom list and I've seen them all! HA!

[lol]

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Tincup
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Five now BB? Hmmmm....

The "symptom d'jour"

Pain, pain and more pain- it's everywhere! It's everywhere!

NO energy- none most days

Multiple ongoing and worsening neuro symptoms- lots & lots

Permanent & progressive cognitive damage- lots & lots

Gee, that was fun. Got any more games we can play?

[lol]

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dbpei
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1. Head pressure
2. Tinnitus and auditory distortions (my own voice and sounds get muffled or amplified)
3. Weird tingling, burning and sizzling sensations in my ears and head.

[Frown]

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HW88
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Tincup, you are on your toes this morning. However, Dbpei also used the word weird, so I guess it's a legit medical term when it comes to lyme! [lol] [lol] [lol] [lol]
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randibear
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i guess "crap" is out too. im tired of all this crap.....

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do not look back when the only course is forward

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HW88
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Hahahaha. Na, I'll take crap as a symptom explanation.
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Robin123
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I forgot to say weird, too. Obviously our collective 4th symptom.

Here's my best weird story - wearing a coat, I got into a car, seating myself in the front passenger seat, and I forgot that I had a round magnet on my coat collar to help reduce neck pain. Sounds reasonable, right? We reduce pain.

Well, the next thing I knew, my coat collar instantly flew to the top of the car roof because it was metal and that's what magnets like to do, is connect instantly with metals, last time I checked with them.

You all should have seen the look on the woman driver's face as she's looking at me with my coat stuck to the top of the car! No, maybe you shouldn't have seen it, because it was the closest look I ever received akin to "ET, go home!"

And I forgot I had the magnet on me, so I looked equally astonished at first!

[ 01-17-2017, 11:35 PM: Message edited by: Robin123 ]

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Jordana
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Muscle Twitching.
Heart issues.
hip and shoulder myasthenia, much worse on left side. I can sit in a chair for about ten minutes, then I have to lie down.
Pepperoni.
Sausage.

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Tincup
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HW- HA! I was writing a quick grocery list today and forgot the name of the bread I wanted to get. Remembered it was here on another post.

Found it and started to write it down next to where I'd written "bread" on my list.

Turns out I wrote on my list prior to knowing the real name, and for lack of a better name- "weird bread". Then I read your response.

So I guess "weird" it is. This whole mess! It's all weird. We are all weird!

[lol]

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www.MarylandLyme.org
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Bartenderbonnie
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Thank God for you 'alls sense of humor. [Smile]

It upsets me so much that the CDC and the medical community continues to dismiss OUR life threatening and debilitating infections. It makes me cry. . .

Oh yeah, add that to my list - crying jags.

Thanks to all who posted.

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steve1906
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READ MY POST CALLED - (Lyme be Weird – The Twilight Zone of Neurological Lyme)

It's - Twilightzonelymiosis

Steve

--------------------
Everything I say is just my opinion!

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TNT
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quote:
Originally posted by steve1906:
READ MY POST CALLED - (Lyme be Weird – The Twilight Zone of Neurological Lyme)

It's - Twilightzonelymiosis

Steve

http://flash.lymenet.org/ubb/ultimatebb.php/topic/3/36857#000000

Great post and thread Steve!

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Robin123
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My 4th symptom - weirdosis or wierdosis, whichever looks weirder -

Adjective - we're weirdotic -

Adverb - living weirdotically

Or I guess we could say B weirdii

[Big Grin]

And B crapii, for Randibear...

[ 01-19-2017, 02:43 AM: Message edited by: Robin123 ]

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Robin123
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Bartenderbonnie - you can try this out for some fun some day if you want - get some Lyme brochures - I think www.lymediseaseassociation.org still has them -

Then when you go to see a ducktor, have a few under a coat you're holding - I had 10 different Lyme brochures I was holding -

Then when the ducktor says there's no Lyme in fillintheblank or not much, make sure they're holding all those brochures within a few seconds of saying so.

Then when the ducktor leaves the room, saying the appt is over, then go out and educate the staff, who can't walk out.

As in: you, your family, your pets, your friends, your acquaintances and everyone else could get this and you all need to know how to prevent getting it. And make it a real teaching experience.

Beats sulking around! Especially to see the look on the ducktor's face when they realize you've just done an intervention...

[ 01-19-2017, 02:31 AM: Message edited by: Robin123 ]

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HW88
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Tincup... I told you!!! [Wink] HA HA.

I really needed a good laugh. Hope you got your 'weird' bread!!!

robin, did you get your coat down from the car? hahaha.

Oh, if it weren't so hard, it really would be funny.

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Robin123
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HW88, I had to call out the national guard to get my coat off the car roof, because I was wearing one darn strong magnet...
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randibear
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wait wait, I thought of another one..

uh, yeah it was, ah, it was...

it was important..

let me see...

ummm...

what was the question...

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Robin123
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Randibear: your symptom is...oh, I forget now - later -

Here's a story I received in a recent email - an elderly couple decided they wanted some dessert. They discussed getting some strawberry shortcake. As the husband was going out to get it, his wife said don't let them forget to put whipping cream on it.

He comes back awhile later with food, and she takes one look at the eggs and potatoes and says: "They forgot the toast!"

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TNT
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I have another good one.

A support group for elderly folks meets once a month to chat, play games, and have a good time. During one of the meetings one gentleman was describing the experience he and his wife had at a new restaurant in town. The gentleman he was telling this to thought he would like to visit this new place too so he asked what the place was called.

The first gentleman thought for a while but couldn't remember the name. After trying to remember a while longer, he asks the fellow "what's the name of the pretty flower with a long stem that men give to their wives to show them how much they love them?"

The second gentleman replied, "You mean a rose?"

The first gentleman then turns to the chair on the other side of him and says, "Rose, what's the name of that nice new restaurant we ate at last week?"

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AndyR
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Dry/sore eyes
Head pressure
Fatigue

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Bartenderbonnie
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Loved the B weirdii and B crapii. Thanks Robin123.

Too funny. [lol]

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Robin123
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We should make up a B genospecies and then tell the doctor with a straight face that's what we have...

Like I have B Schemellii - it's a Yiddish form of it, to help us laugh about our plight - also known as BS -

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Brussels
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TNT, that was HILARIOUS!!!

How can we still laugh of ourselves?!

You guys are great!

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Bartenderbonnie
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This is an old post but I had to laugh.
How do WE do this day after day?
We are a hardy bunch.
I love all sufferers of TBI's. 💚❤️
And I love spell check.

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Tincup
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Made me laugh!! HA!

[Big Grin]

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www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

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