LymeNet Flash: Three Decades Later, What Do We Know About Lyme?

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»	LymeNet Flash » Questions and Discussion » General Support » Three Decades Later, What Do We Know About Lyme?

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Topic: Three Decades Later, What Do We Know About Lyme?

Tincup
Honored Contributor (10K+ posts)
Member # 5829

posted

Volunteer patient advocates and educators could use YOUR help.

We are and will continue to be under heavy attack by those named in the lawsuits brought by patients against the IDSA and insurers.

If you can share this link everywhere on social media and send a copy of the link to your local paper you WILL make a difference.

Please give others the information you wished you'd had before coming in contact with Lyme and tick borne diseases.

Link here... and THANK YOU!!!

https://sites.google.com/site/marylandlyme/patient-stories/2017-what-do-we-know-about-lyme-disease

Each one reach one!

--------------------
www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

Posts: 20353 | From The Moon | Registered: Jun 2004 | IP: Logged |

Tincup
Honored Contributor (10K+ posts)
Member # 5829

posted

I am in the process of adding this information to all of my website- front page- in the event you need the link later.

We really need to get serious. Now is the time to get everyones help!

It's time for everyone to support those who have gone out on a limb against the IDSA and insurers to help you.

--------------------
www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

Posts: 20353 | From The Moon | Registered: Jun 2004 | IP: Logged |

Robin123
Moderator
Member # 9197

posted

I saw some basic lack of info about Lyme disease in the comments in the aol home page article on Sunday -
People did not know that negative tests could be inaccurate. That seems to be a very basic point to need. "Oh no, I tested for Lyme and I'm negative." And in the meantime, they're mentioning a ton of symptoms! Vs the AIDS test with 95% accuracy.

They didn't know that only 20-30% get a bull's eye rash or that it's a definite positive.

They didn't know how long they needed to treat. "I did my 2-4 weeks of antibiotics" kind of statement.

They weren't well directed to Lyme-treating doctors.

Posts: 13116 | From San Francisco | Registered: May 2006 | IP: Logged |

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