Why Was Her Vision Jerky and Blurry if There Was Nothing Wrong With Her Eyes?
By Lisa Sanders, MD - The New York Times Magazine - May 1, 2018
Excerpts:
. . . This downward displacement of the brain, known as a Chiari malformation . . . .
. . . The symptoms, for those who get them, are caused by compression of the brain tissue and nerves into the small space of the spinal canal. The specific symptoms will depend on what is being crushed. . . .
. . . recommended an M.R.I. done while the patient was standing upright. The patient had noticed that her symptoms got worse while standing; perhaps that reflected a change in the severity of the malformation.
He’d certainly seen this in the past with some patients who also had E.D.S. He wasn’t sure why.
Standing M.R.I.s are not widely available, but Batzdorf knew of one in a facility nearby. These images of the malformation were different.
The bottom of the cerebellum extended nine millimeters into the spinal canal. And the compression of brain and nerve tissue was clearly visible in this scan. . . . .
[Full article at link above] -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- For many who have nystagmus, it's important to know that it can be a symptom of lyme, of any toxic overload, vestibular stress or damage . . . &/or of MAGNESIUM deficiency (which often goes along with lyme).
Liver support & Magnesium often help in such cases, as well as direct & assertive treatment of all tick borne infections - or other chronic stealth infections - that may be on board.
Some who have lyme have also been diagnosed with Chiari malformation. I don't think lyme causes that yet is sure can complicate it.
For those, often when the Chiari is addressed (surgery is not always required), they have a marked improvement in symptoms as - we know that "not everything is lyme" even if lyme does cause so many multi-faceted symptoms.
I wonder, though, how may have been turned away because on an M.R.I. lying down, it just did not show the full extent of the situation?
Some tests are better when done also standing up. A standing echo cardiogram (ECG) has been helpful to some with heart issues. -
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- The search for one in any certain geographic area might only be for this manufacturer. It's a little unclear. But too tired to look further.
Please, if anyone can find a more extensive location finder . . . . please post.
A good Chiari organization might have more detail.
An MRI option for patients who have difficulty completing scans on traditional scanners. . . . Positional imaging capabilities
Open Upright MRI scanners also offer the ability to capture images of your body in various positions, to diagnose the pain or discomfort you are experiencing.
Depending on the source of our pain, you may be scanned sitting, standing, bending or twisting.
These images may provide your doctor with valuable information on the source of your pain, allowing for a more accurate diagnosis and better care planning.
Staying on this main page, see Upper right of web page - see the blue "Search" tab
Pop in a zip code but ALSO CHECK the tab for OPEN, UPRIGHT MRI.
the other search bar further down the page connects to all kinds of MRI locations. I was sad to see that the ones they gave for my city did not have the open standing model. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
Yes, I've heard of this. Pretty important to have a standing MRI with those symptoms.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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sammy
Frequent Contributor (5K+ posts)
Member # 13952
posted
University hospitals should have the standing MRI, it's not a new tool. They always try to keep up with advanced diagnostics because they generally have the sickest patients that need the most help.
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