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» LymeNet Flash » Questions and Discussion » General Support » Did you see this???

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Author Topic: Did you see this???
Ann-Ohio
Frequent Contributor (1K+ posts)
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https://in.reuters.com/article/us-health-chronicfatigue-dispute/exclusive-science-journal-to-withdraw-chronic-fatigue-review-amid-patient-activist-complaints-idINKCN1MR2PI?fbclid=I wAR3WOFXWYIoVl6sOHmdCrmCasHTCb2KS7lZJi2KUghCMqzl51LDdFZb1RWo

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Ann-OH

Posts: 1590 | From Ohio | Registered: Aug 2014  |  IP: Logged | Report this post to a Moderator
Bartenderbonnie
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Thanks Ann
This is great news for chronic fatigue sufferers.

Of coarse everyone knows exercise is a good thing. But if you can't get out of bed due to crushing debilitating pain and fatigue, then it can't be considered part of the equation. Duh !

Also, by taking it out of the mental health realm and putting it in the physical disorder realm means they finally graduated to the 21st century.

Finally.

Posts: 2977 | From Florida | Registered: Nov 2016  |  IP: Logged | Report this post to a Moderator
Lymetoo
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Will they never get the connection to Lyme and other tick-borne illnesses?

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--Lymetutu--
Opinions, not medical advice!

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duncan
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Just wanted to chime in that, yes, the Cochrane temporary withdrawal of support for GET/CBT for ME/CFS patients is huge.

Of course, CFS does not equate to chronic fatigue - the CFS label is basically a misnomer applied to mylagic Encephalomyeltis ie, ME. Lyme people will know of Lyme Encephalomyelitis.

It is way overdue that everyone knew ME/CFS has long ago been demonstrated not to belong in the mental health realm, that it was a physical disorder with many many documented biologic abnormalities.

Incidentally, with ME/CFS many types of exercise - in fact, exertion in general - can actually be bad for the ME/CFS patient.

You can imagine the issues this might present for those patients diagnosed with both Lyme and ME/CFS, having to negotiate that exercise tug of war.

Posts: 228 | From Unitied States | Registered: Jul 2015  |  IP: Logged | Report this post to a Moderator
   

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