Thank you Lyme warrior πβ€οΈπππ
Posts: 2978 | From Florida | Registered: Nov 2016
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Glad she wants to help, just wish it could be in some other way.
Before anyone hip hip hoorays the Global Lyme Alliance....
Please take a look for yourself at the people involved on their Boards, and who are receiving YOUR donations (and often double-dipping with your tax dollars) in the form of grants, and/or are involved with research publications that seriously hurt rather than help us.
Some infamous names you may recognise (and should get to know)... (the * next to a name indicates they are IDSA Lyme Guideline authors and/or homes to the IDSDA guideline authors)....
Linden Hu- author of studies that were designed to support IDSA's reason to limit antibiotic treatment, the IDSA guidelines and "THE studies" that support insurers denials, and other nasty things.
Marconi- Vaccine Guru in Virginia- been publishing on Lyme related vaccines since 1992 (almost 30 years and what do we have?)- publishes with Tom Mather, *Dumler, Linden Hu (from above), etc.
Adrian Marques- Buddies and publishes with *Wormser, *Steere, *Klempner, *Krause, Barbour, Phil Baker, *Shapiro, *Dumler, *Naddleman, *Halperin, *IDSA, CDC and other such monsters
Utpal Pal- publishes with Adrain Marques (above) and her buddies.
~~~~~~~~~~~~~~~~
*Johns Hopkins
*Mass General
Lise Nigrovic- Boston Children's Hospital- On federal TBD working group- not our friend.
Ann-Ohio
Frequent Contributor (1K+ posts)
Member # 44364
posted
Here is the board I see on their website: I don't see the people you listed, TC. Am I missing something?
(Global Lyme Alliance) BOARD OF DIRECTORS Executive Committee
Robert Kobre, Chairman Charles Balducci, Vice Chair Diane Blanchard, Vice Chair Staci Grodin, Vice Chair Debbie Siciliano, Vice Chair Henry Dosch, Treasurer Brett Kristoff Lorrie Nadel Ed OβConnell Karen Peetz Paul Ross
Board Members
Ridgway Barker Chris Corrinet Nancy Del Genio Jennifer Frascella David Gerstner Julia Knox-Comeau Avril Lavigne Lew Leone Dr. Bruce Leuchter Janice Lipton Steve Martin Dana McAvity David Nolan Peter Norley Norma Russo Alexander Tisch Janet Vaccaro, Secretary
-------------------- Ann-OH Posts: 1603 | From Ohio | Registered: Aug 2014
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Ann OH...
It can be tricky finding who is the recipient of the funds they are gathering and finding who is producing the "studies" they fund.
Hoping this makes sense cause I am dragging today, but this is my quote from above.... (Notice please that it says Boards- meaning plural and not just the one you shared- and it says grants and publications from GLA money.)
"Please take a look for yourself at the people involved on their Boards, and who are receiving YOUR donations (and often double-dipping with your tax dollars) in the form of grants, and/or are involved with research publications that seriously hurt rather than help us."
At that link, which is just an example of what I am trying to point out, there are research articles listed that were produced from the grants GLA is distributing.
Below is a small sampling of the authors they chose to fund. May be more, but I quickly pulled 5 articles listing Wormser as an author for example from the GLA grant publications.
You'll also see Steere, Dattwyler, Auwaerter, Klempner, Marque and Aucott's name too. ALL of the names I listed in the post above I got directly from the GLA website.
Uhde M, Ajamian M, Li X, Wormser GP, Marques A, Alaedini A. (2016) Expression ...
Jacek E, Fallon BA, Chandra A, Crow MK, Wormser GP, Alaedini A. (2013) Increased IFN-Ξ± activity...
Tang KS, Klempner MS, Wormser GP, Marques AR, Alaedini A. (2015) Association of immune response...
Chandra A, Latov N, Wormser GP, Marques AR, Alaedini A. (2011)Epitope mapping...
Ajamian M, Cooperstock M, Wormser GP, Vernon SD, Alaedini A. (2015) Anti-neural antibody response...
Lahey LJ, Panas MW, Mao R, Delanoy M, Flanagan JJ, Binder SR, Rebman AW, Montoya JG, Soloski MJ, Steere AC, Dattwyler RJ, Arnaboldi PM, Aucott JN, Robinson WH. (2015)
posted
I keep wishing that one of the rich folks with Lyme will pay to get Under Our Skin 1 and 2 back on Netflix or Hulu. If not a rich celeb, why are ILADS or others not able to get this done?
Posts: 61 | From Lees Summit, MO | Registered: Jun 2017
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Bartenderbonnie
Frequent Contributor (1K+ posts)
Member # 49177
posted
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