Topic: Getting ready for Lyme disease Awareness Month
Ann-Ohio
Frequent Contributor (1K+ posts)
Member # 44364
posted
Now is the time to get ready for “May is Lyme disease Awareness Month”. Order materials now so they have time to arrive.
The Lyme Disease Association has some handouts that you can order - 200 for just the mailing charge of $10! (They also have some very good posters etc that you can print out.)
-------------------- Ann-OH Posts: 1584 | From Ohio | Registered: Aug 2014
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Thanks, Ann.
Great idea to get a bunch of brochures and pass them out to friends / family . . . quietly leave in library or grocery bulletin board areas . . . maybe even slip a few onto magazine tables at doctors' offices, eh?
Any kinds of social or faith group communities might also be very happy to include these with information tables where various types of notices are put.
Prepare for the dreaded "official" (but faulty) press releases.
Another way to get ready is to - sigh - brace ourselves for the onslaught of really bad & erroneous media "PR" releases by the IDSA & CDC that can catch us off-guard even on our own.
In addition, we have to prepare the response to those we know who may see the simplified interpretations by news media
to help correct the errors not just for their safety but to as much as defend our experiences which differ so greatly from what the IDSA & CDC - and media "doctors" shout through their megaphones.
It can be hard to keep track of the proper bits of information when they are mixed in with the lies & misconceptions whether put forth on purpose by IDSA / CDC or by media personnel who don't have time or know the need to research further than the IDSA / CDC press releases.
It's tricky because the facts and lies are often all mixed up in those "official" press releases.
This is where being proactive and distributing the right lyme literate links & expert detail could make a difference. -
[ 03-26-2019, 12:45 PM: Message edited by: Keebler ]
Posts: 48021 | From Tree House | Registered: Jul 2007
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Ann-Ohio
Frequent Contributor (1K+ posts)
Member # 44364
posted
Write your own press release and send it to all the major papers in your state. You can identify yourself as a Lyme disease patient/advocate.
Ask to put brochures in your local library, community center, churches, hospital, doctor's office, etc. etc.
-------------------- Ann-OH Posts: 1584 | From Ohio | Registered: Aug 2014
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