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» LymeNet Flash » Questions and Discussion » General Support » DNA Genetic Testing Companies

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Author Topic: DNA Genetic Testing Companies
Bartenderbonnie
Frequent Contributor (1K+ posts)
Member # 49177

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23andMe, Ancestry.com, lots of genetic companies to choose from, advertise what a great gift to give, fun and games for all.

Proceed with caution.

Your DNA is your FAMILY's jewels.
It is not all about you. Value your family's privacy.

Did you/ will you ask all family members, mother, father, aunts, uncles, newphews, nieces, 1st cousins, 2nd cousins, 3rd cousins, ect for THEIR permission to have THEIR genetic code shared?

A lack of consent is a lack of privacy. Your genetic information implicates your biological relatives. There are no laws that restrict one on what they do with their own genetic information. Why should family members have acess to relative's DNA if they were not involved in consent.

DNA theft is not a crime;
https://www.bu.edu/law/journals-archive/bulr/documents/joh.pdf

There are many cases of 'genetic discrimination'.
Individuals and family members have been barred / fired from employment, have lost their health / life insurance. Children have been kicked out if school. College students denied admissions. Some have been denied housing admission. Just because one may have a genetic marker, this is no guarantee of disease.
http://www.councilforresponsiblegenetics.org/Projects/PastProject.aspx?projectId=1

https://www.vox.com/science-and-health/2018/10/12/17957268/science-ancestry-dna-privacy

Test results are released to third party such as pharmaceutical companies, insurance companies, employers, government agencies, police departments, marketing firms, ect.

23and Me just partner with GlaxoSmithKline ( 1st failed Lyme vaccine). They take your fragmented DNA, patent it, and make pharmaceuticals.
https://www.wired.com/story/23andme-glaxosmithkline-pharma-deal/

Here are more reasons to not reveal your / family's DNA;
https://internethealthreport.org/2019/23-reasons-not-to-reveal-your-dna/

Posts: 1797 | From Florida | Registered: Nov 2016  |  IP: Logged | Report this post to a Moderator
Robin123
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I recently heard a 2-hour presentation from the communications director of 23andme.

It's true that they are using the research to make drugs. People opt in, not out, to having their data used for research.

But they are not violating anyone's privacy. They give no personal information and they aggregate the data - ie group it anonymously.

Posts: 12765 | From San Francisco | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
   

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