Topic: Senators DEMAND answers from NIH about Lyme Disease Epidemic
Bartenderbonnie
Frequent Contributor (1K+ posts)
Member # 49177
posted
On December 20, 2019, Senators sent letter to NIH Director Dr Anthony Fauci and demanded answers to a list of questions about the Lyme epidemic in the U.S., to be answered by January 11, 2020.
Senators Susan Collins (R) Maine Richard Blumenthal (D) Connecticut Elizabeth Warren (D) Massachusetts Chris Val Hollen (D) Maryland Robert Menendez (D) New Jersey Edward Markey (D) Massachusettes
"With the rapidly increasing incidence of Lyme Disease disproportionately affecting our states and negatively affecting our constituents, we write to request information about the Lyme Disease research and coordination programs at the National Institute of Allergy and Infectious Disease.(NIAID)
"To help us better understand how NIAID is approaching the health threat of Lyme Disease, please provide answers to the following questions by January 11, 2020. This information is of critical importance."
"Thank you for your attention to this request. We look forward to better understanding the work the NIAID is doing to address the undue burden Lyme Disease places on American communities."
A few questions from Senator's letter;
"With regard to the priorities and goals laid out in the NIH's Strategic Plan for Tickborne Disease Research, does NIAIS support the creation of clinical research "Centers for Excellance" as exists for other diseases types?"
"What research is NIAID conducting or supporting to better understand the development, diagnosis and treatment of Lyme Disease? Has research already conducted changed the way clinicians approach the diagnosis and treatments of Lyme Disease? If so, in what ways?"
"We continue to hear from constituents experiencing persistent symptoms long after the recommended antibiotic treatment. What is NIAID's current understanding of patient experiences with post-treatment Lyme Disease syndrome or Chronic Lyme? What research is the agency conducting to better understand the progression of these symptoms and how to treat them?"
(Please read the letter the Senator's sent for the full list of questions. Link is posted above)
Please continue to write or contact your Senators and Representatives and demand better testing, insurance covered treatment, and ILADS (International Lyme and Associated Diseases) guidelines.
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