Topic: does reading about lyme et al make you worse??
LisaK
Frequent Contributor (1K+ posts)
Member # 41384
posted
my husband and my one sister tell me to stop reading about lyme and cos and everything else becasue it makes my brain runaway with thoughts and thus makes my sx worse or even get new ones.
I know the mind is a very powerful thing, but how can you learn what's new and best if you don't read about any of it????
-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3558 | From Eastern USA | Registered: Jul 2013
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
If you are researching the beast called Lyme and are educating yourself from sites that give you hope and ideas for feeling better?
That is called being proactive.
If you are reading sad stories of death and destruction about this illness, that's a negative.
If you are part of the social media Lyme followers that are woe is me, rich people suck that have Lyme because they have money, negative, negative etc.
That type crowd is sucking energy out of you.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6478 | From Louisville, Ky | Registered: Jan 2002
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aklnwlf
Frequent Contributor (5K+ posts)
Member # 5960
posted
Hi LisaK! I can only relate to my own experience in my efforts to educate myself in regards to Lyme disease and coinfections.
I never experienced exacerbation or an increase of new symptoms in studying/reading any materials related to Lyme & Co.
Knowledge is power! Any attempt made for the benefit of your health and happiness is a proactive step in the right direction! Ignorance is not bliss in a chronic illness!
Do what you think is right for you!
-------------------- Do not take this as medical advice. This comment is based on opinion and personal experience only.
Alaska Lone Wolf Posts: 6138 | From Columbus, GA | Registered: Jul 2004
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LisaK
Frequent Contributor (1K+ posts)
Member # 41384
posted
map- very good point! I know what you mean and I am trying to not dwell on negatvies. I posted about my "friend" that I just unfriended becaseu all she does is give me negative negative negative. so I am turnig a new leaf , as they say it, to try and really be more positive and get out of her clutches that were taking me down all the time.
other than that I do see more so now how some people dwell on the bad. and I am learing how to adjust to that new way. my spouse is a negative thinker too, so I am trying to deal with that as best I can.
AKL- I get you there!
I don't think I agree with dh that just trying to learn /research makes me sicker, but I def. am v ultra sensative and pick up on other ppls energy on all this, even on line or other avenues. so I guess being aware now is what will help me most totry and stay clear of al that negative!
-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3558 | From Eastern USA | Registered: Jul 2013
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Ann-Ohio
Frequent Contributor (1K+ posts)
Member # 44364
posted
Rivendell, that is beautiful! I agree with every word. Akinwulf, I love your advice:
"Knowledge is power! Any attempt made for the benefit of your health and happiness is a proactive step in the right direction! Ignorance is not bliss in a chronic illness!
Do what you think is right for you!"
I say, do what you must, try to stay positive, and stay here with this incredible group!
-------------------- Ann-OH Posts: 1584 | From Ohio | Registered: Aug 2014
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posted
Be careful about obsessing.
Posts: 241 | From New Jersey | Registered: Jan 2015
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Bartenderbonnie
Frequent Contributor (1K+ posts)
Member # 49177
posted
I research this insidious disease 1 hour everyday. Why? Because the science is exploding! Everyday I learn something new.
There is a pattern to my usage of Lymenet. I post a lot when I'm feeling poorly, usually bedridden. I don't post when I'm feeling well and enjoying my life.
I would love to leave this mess behind, just not there yet. Do what you feel is best for you.
Posts: 2977 | From Florida | Registered: Nov 2016
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LisaK
Frequent Contributor (1K+ posts)
Member # 41384
posted
Missvictoria, yes!! I do have a tendency to obsess...... I am very sensative and I pick up all kinds of energy and sometimes I thnk I give the crazy energy to myself!
thanks everyone!!! what great things everyone is saying. I feel so much better , thank you all for helping me
-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3558 | From Eastern USA | Registered: Jul 2013
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LisaK
Frequent Contributor (1K+ posts)
Member # 41384
posted
Bonnie, I get that/ I think I do similar. I wish I could limit my research, but it seems like I never get any done and all I do is look! My brain is not good. so I can't retain. and then if I take notes I lose my notes! arg
-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3558 | From Eastern USA | Registered: Jul 2013
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Bartenderbonnie
Frequent Contributor (1K+ posts)
Member # 49177
posted
Agree Lisa, my notes are like my socks, always disappear.
And others don't understand how disregarded we are by main-stream medicine. We are left to our own devices. We go to doctors who havnt a clue about TBInfections. I educate doctors, nurses, X-ray techs, MRI techs, phlebotomists, dentists, optometrists, pharmacists, ect.
I print out research, take it to my appointments, and back up my thoughts with facts. I will never stop fighting for my health.
Lyme patients are left to administer their own IV meds, figure out dosing for multiple prescriptions and supplements ( and contradictions), change dressings, know medical terminology, all while sufferering from cognitive and debilitating conditions. What could possibly go wrong with this picture?
Lyme disease is the Wild Wild West of medicine.
Posts: 2977 | From Florida | Registered: Nov 2016
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LisaK
Frequent Contributor (1K+ posts)
Member # 41384
posted
yes bonnie!!
-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3558 | From Eastern USA | Registered: Jul 2013
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