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» LymeNet Flash » Questions and Discussion » General Support » Lyme Patients Working AGAINST Us

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Author Topic: Lyme Patients Working AGAINST Us
Tincup
Honored Contributor (10K+ posts)
Member # 5829

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Wasted Days & Wasted Nights... Trying to shame volunteers in the Lyme Community rather than get us help.

It appears, after being booted off the federal Tick Borne Disease Working Group (TBDWG) for misbehaving, then traveling thousands of miles with her "new friends" to the TBDWG's latest meeting, and spending countless dollars to get there...

Enid Haller went to Washington DC to spend the 3 minutes alloted for speeches (that could have been used on many other Lyme related topics) to try to discredit our long time volunteer Lyme groups, organizations and advocates rather than speaking for patients she claims to represent.

As you can see in her 3 minute video, it's all about her and her hate for others, not about you and what you need!

How sad that is, especially when she is up there lying her hat off trying to get attention.

She doesn't realize that no one there believes her.

My favorite part, is when she is lying about me, for emphasis she suddenly raises her otherwise limp right arm when saying my name (Tincup).

It makes me giggle. 😁

https://www.facebook.com/TheMaydayProject.org/videos/247704462884892/

Who in their right mind would go up there to try to discredit OUR side?

--------------------
www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

Posts: 20353 | From The Moon | Registered: Jun 2004  |  IP: Logged | Report this post to a Moderator
Tincup
Honored Contributor (10K+ posts)
Member # 5829

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Wasted Days- Part 2- Allison @ Mayday Project

Another person claiming to represent you at the most recent federal TBDWG.

Lies, lies and more lies!

She also wants the ONLY person who is a member and who is kicking butt for OUR benefit at the meetings to be thrown off the group. (President of the Lyme Disease Association.)

WHAT'S HER PROBLEM?

She doesn't seem to realize that this ugly behavior of hers and her ugly lies only make her look bad.

Only a fool would get up there and try to discredit people on OUR side.

In my opinion she isn't helping us one bit.

She wasted that precious three minutes allotted, along with Enid Haller and her three minutes, when they could have done something good to help us.

Sad and pitiful they are.

https://www.facebook.com/TheMaydayProject.org/videos/483902735879614/

--------------------
www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

Posts: 20353 | From The Moon | Registered: Jun 2004  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
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May I ignorantly ask who is on the panel? I have no clue.

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--Lymetutu--
Opinions, not medical advice!

Posts: 96222 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
aklnwlf
Frequent Contributor (5K+ posts)
Member # 5960

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It would figure TC! On the bright side though sounds like you rattled someone's cage!

[hi]

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Do not take this as medical advice. This comment is based on opinion and personal experience only.

Alaska Lone Wolf

Posts: 6147 | From Columbus, GA | Registered: Jul 2004  |  IP: Logged | Report this post to a Moderator
Tincup
Honored Contributor (10K+ posts)
Member # 5829

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Hey TuTu,

Just now saw your post. Sorry!

The TBDWG has multiple members, and subcommittee members. You can see the current list here.

https://www.hhs.gov/ash/advisory-committees/tickbornedisease/members/index.html

They also allow the public to make verbal comments and written comments too.

[Big Grin]

--------------------
www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

Posts: 20353 | From The Moon | Registered: Jun 2004  |  IP: Logged | Report this post to a Moderator
Tincup
Honored Contributor (10K+ posts)
Member # 5829

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Hey Lone Wolf!

Nice to see you too! [hi]

Yes, I can rattle some cages sometimes, but as you know it is because people are being ignorant towards others or are giving out false information, or lying, etc.

Check out my newest post here in General. There's a whole list of people who they said signed up to say I am bad to the bone. Wicked Tincup! HA!

Makes me laugh!

She also said (Enid Haller), under oath at the federal tick borne disease meeting, that I "run LymeNet".

Talk about lying! WOW!

This is the second time she has used up a valuable 3 minute slot, while we are trying to fight for Lyme patients, to run a personal smear campaign.

That should really anger people, especially when we are working our guts out to make things better. She also hit LDA several times too with nasty stuff.

Total lies. Big, fat lies. Anyhow...

Hope YOU are doing well!

[group hug]

--------------------
www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

Posts: 20353 | From The Moon | Registered: Jun 2004  |  IP: Logged | Report this post to a Moderator
   

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