Also he has a foundation: http://www.michaeljfox.org which could be interesting trying to contact, it would have be done in a very diplomatic and scientific way
Posts: 92 | From Virginia | Registered: Jan 2009
| IP: Logged |
posted
I heard that he did have "Lyme" and was "properly treated" some years ago. But now he is facing Parkinson's didease. I don't think he believes the two are connected.
There was someone on here a couple of years ago saying they emailed him about Lyme mimicking Parkinson's...but no response.
You would think when someone that young gets diagnosed with an illness normally associated with the elderly they would be questioning the diagnosis.
-------------------- Amy
Diagnosed April 29, 2007. Posts: 136 | From Joplin, MO | Registered: Apr 2007
| IP: Logged |
Leelee
Frequent Contributor (1K+ posts)
Member # 19112
posted
I sort of remember a thread about this subject recently. If I recall a few people suggested a connection and wondered if he was aware of it.
One really has to wonder about Parkinson's, especially in light of the fact that he once was diagnosed with Lyme.
-------------------- The ultimate measure of a man is not where he stands in moments of comfort and convenience, but where he stands at times of challenge and controversy. Martin Luther King,Jr Posts: 1573 | From Maryland | Registered: Feb 2009
| IP: Logged |
posted
Baffling...wonder if anyone can send him "under our skin" or take it to the book signing and give it to him? The baseball player on there was told he had parkinson's. Maybe we could specifically write about that story when sending him letters. In fact that guy should be trying to reach him I would think? Does anyone know how to get in touch with either of them?
-------------------- If you keep doing nothing...nothing changes!
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
| IP: Logged |
posted
Unfortunately the negative stigma associated with us "nuts" causes many to shun a diagnosis that us "nuts" have since they would then be one of us "nuts".
Posts: 743 | From New York | Registered: Apr 2009
| IP: Logged |
Leelee
Frequent Contributor (1K+ posts)
Member # 19112
posted
quote:Originally posted by John S: Unfortunately the negative stigma associated with us "nuts" causes many to shun a diagnosis that us "nuts" have since they would then be one of us "nuts".
That took me a long time to decipher. My Lyme brain is really taking over today.
-------------------- The ultimate measure of a man is not where he stands in moments of comfort and convenience, but where he stands at times of challenge and controversy. Martin Luther King,Jr Posts: 1573 | From Maryland | Registered: Feb 2009
| IP: Logged |
posted
I have been wondering and thinking about MJF since starting my Lyme journey. So I did a thread search and all this stuff came up!!
Wow I sure hope someone can get through to him. Usually it's a celebrity trying to reach people about a message; this is just the opposite.
Ok, going to read the rest of my searches!
Posts: 50 | From Midwest | Registered: Nov 2009
| IP: Logged |
lymewreck36
Frequent Contributor (1K+ posts)
Member # 4395
posted
Michael J. Fox needs to read "Cure Unkown." That book really says so much....incredible the work that went into a book that is sold for $10.00!!!!
Obviously, Ms. Weintraub has her priorities correctly....spread the word...
Posts: 1032 | From North Carolina | Registered: Aug 2003
| IP: Logged |
ConnieMc
Frequent Contributor (1K+ posts)
Member # 191
posted
Supposedly, he was bitten by a tick while filming Doc Hollywood in approx 1990. The filming was done in VA and FL, so could have gotten it either place I am sure.
As the story goes, he was actually diagnosed with Lyme and treated for it. Three weeks of ABX I am sure.
I would bet money that his neurological deficits are related to Lyme.
However, IMO, it is highly doubtful that even if he did eventually make the connnection and improve with treatment, no way they will ever change his diagnosis. He brings in loads of money for Parkinson's research.
The powers that be would never acknowledge that he does not have Parkinson's. He is worth far too much.
Does anyone know if Parkinson's has a conclusive lab test to identify if someone has it, or is it a diagnosis of exclusion? A clinical diagnosis?
Politics are at work here. Michael J Fox is the poster child for Parkinson's research. And the best thing that ever happened for Parkinson's fund raising. Sad, but true.
I love Michael J Fox, and with the info he has at his disposal, he is doing what he thinks is right. Not much chance his handler's would even let someone with the Lyme theory close enough to him to express their opinions.
Posts: 2275 | From NC | Registered: Oct 2000
| IP: Logged |
posted
So.... there are several Twitter accounts for Michael J Fox as well as several accounts on Facebook. Obviously, I have no way of knowing which, if any, of the accounts are actually him. (I thought perhaps one would stand out as appearing to be authentic)
Posts: 212 | From Pennsylvania, USA | Registered: Jul 2009
| IP: Logged |
kam
Honored Contributor (10K+ posts)
Member # 3410
posted
I listened to MJF talk to someone on TV. He said either her or his wife dx the disease as the doctor's were not able to identify what he had for months.
Then, a doctor comfirmed it. How. One confirms Parkinson I am not sure.
I do know it was one of the things they considered with me at one time. But, can't recall what the testing was on it...too much in a fog then.
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[shake]](graemlins/shake.gif)
![[dizzy]](graemlins/dizzy.gif)
![[Razz]](tongue.gif)
Printer-friendly view of this topic