LymeNet Flash: CALDA Lyme Survey for IDSA Lyme Panel Presentation

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»	LymeNet Flash » Questions and Discussion » Activism » CALDA Lyme Survey for IDSA Lyme Panel Presentation

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Topic: CALDA Lyme Survey for IDSA Lyme Panel Presentation

Lou B
Administrator
Member # 64

posted

PLEASE RESPOND TO CALDA'S LYME SURVEY

Many with Lyme have taken the CALDA survey already, however...

. . . they still would like to have 300 more people respond. A summary of the data collected will be presented at the upcoming IDSA Lyme Guideline Review Panel Hearing at the end of July.

Please take a few minutes to complete this survey and share this note with others who have Lyme disease.

Thank you!

http://www.lymedisease.org/news/lymepolicywonk/134.html

More information below.

__________________________________________________________________________________

California Lyme Disease Association (CALDA) sponsored

Survey will send message from patients to IDSA* Lyme panel

Have you taken CALDA's new Lyme survey? If not, click here to participate. CALDA CEO Lorraine Johnson will present the results at the IDSA's Lyme guidelines hearing in Washington DC on July 30. (The hearing will be streamed live over the internet. Stay tuned to the CALDA web site for details.)

http://www.lymedisease.org/news/lymepolicywonk/134.html is the CALDA web site link.

The Infectious Diseases Society of America's (IDSA) new Lyme disease guidelines review panel will hold a one day hearing on July 30. This hearing is part of the antitrust settlement that the Connecticut Attorney General negotiated. Of the 18 speakers selected to testify, two are patient advocates, including me, Lorraine Johnson. The testimony will be aired live on the internet on July 30 so stay tuned. STAND UP AND BE COUNTED CALDA is conducting a survey of individual Lyme experiences to give you a chance to have input. Results of the survey will be included in my testimony to the IDSA panel.

Speak out and be heard. Help CALDA represent your views to the IDSA at the July 30 hearing.

--------------------
Lou B

Posts: 2200 | From Mount Hope, New Jersey, USA | Registered: Oct 2000 | IP: Logged |

bettyg
Unregistered

posted

hi lou !!

yep, we've been busy working on this and have it posted in several areas and several forums here since the time is coming up very SOON.

i've posted on mdjunction lyme website; others have too.

should be NO problem getting those 300 more ...

IP: Logged |

Tincup
Honored Contributor (10K+ posts)
Member # 5829

posted

GOOD NEWS!!!

Thanks Lou B....

http://flash.lymenet.org/scripts/ultimatebb.cgi/topic/1/83683?

[Big Grin]

--------------------
www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

Posts: 20353 | From The Moon | Registered: Jun 2004 | IP: Logged |

lyme2health
Member
Member # 19981

posted

Is it too late to participate?

When is the deadline so they can compile info before the hearing?

Posts: 62 | From U.S. | Registered: Apr 2009 | IP: Logged |

bettyg
Unregistered

posted

2 health; NO, COMPLETE NOW & SEND FOR LORRAINE .... thanks so much!!

IP: Logged |

Tincup
Honored Contributor (10K+ posts)
Member # 5829

posted

Sorry Lyme2...

It is 2 late.

She is on the way to DC now.

Maybe.. and this is just my wishful thinking...

She will keep it going afterward?

The results were amazing though, so far.

Over 3,000 patients filled out the survey in just a few weeks!

What a network of people we've got.... beautiful work!

Team work!

[Big Grin]

--------------------
www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

Posts: 20353 | From The Moon | Registered: Jun 2004 | IP: Logged |

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