-------------------- Sick since at least age 6, now 67. Decades of misdiagnosis. Numerous arthritic, neuro, psych, vision, cardiac symptoms. Been treating for 7 years, incl 8 mos on IV. Bart was missed so now treating that. Posts: 765 | From nw ct | Registered: Sep 2008
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TOUCHED BY LYME: Squeaking under the wire for White House petition
White House Lyme petition needs 25,000--not 100,000--signatures. Let's make this happen!
Over the past year, President Barack Obama's program called We the People, has allowed people to launch petitions on any subject they wanted to bring to the attention of the White House. Any petition that gathered at least 25,000 signatures within a month would garner an official response from the Obama Administration.
Well, about 10 million signatures on various petitions have been gathered in that time, and now the administration is raising the bar.
New petitions now must get 100,000 signatures within a month to capture presidential attention. That's a pretty high threshold to meet. But this only applies to new petitions. Ones that had already been started only have to meet the original 25,000 signatures.
Luckily for the Lyme community, somebody in Massachusetts started such a petition on January 11, just a days before the new rules went into effect. Here's what it says:
We petition the Obama administration to: Reform the Infectious Disease Society of America Treatment Guidelines for Lyme Disease Lyme disease is at epidemic levels, posing a significant threat to public health. Lyme can lead to chronic and debilitating effects if not properly treated. Lyme is leaving masses of people in progressive states of illness and financial ruin. The Infectious Diseases Society of America's treatment guidelines are to blame, they promote the idea that Lyme is a simple, rare illness that is easily cured with 30 days of antibiotics. This is not true. Insurance companies are denying payments for medications even when deemed medically necessary after 30 days. Doctors who treat Lyme patients are being investigated and prosecuted for not conforming to such guidelines. Please sign this petition to reform IDSA guidelines and allow doctors NOT Insurance companies, to decide what is medically necessary.
There's a little bit of hassle involved with signing it. You have to create a ``WhiteHouse.gov'' account and verify your email address. Then go back to the page to click the ``sign the petition'' button.
Because we only have to get 25,000 signatures, instead of four times that many, it's a golden opportunity that shouldn't be missed. Please sign it now, get your family and friends to sign it, post it on your Facebook page and forward the link on Twitter. Let's do this.
Click here for more details and to sign the petition:
posted
Signed and forwarded to all my contacts. Many people including a lot who I haven't contacted in years emailed that they signed. Asked how I was etc.
One emailed that her husband is very sick with Lyme. Doesn't know where or when he got it.
A few said they would forward as well.
Posts: 472 | From New Jersey | Registered: Dec 2007
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dbpei
Frequent Contributor (1K+ posts)
Member # 33574
posted
Great, Cockapoo. I am also hearing from people I hadn't heard from in a while. It's an effort, but really worth it, esp. if others send it along.
Posts: 2386 | From New England | Registered: Aug 2011
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Pocono Lyme
Frequent Contributor (1K+ posts)
Member # 5939
posted
Done.
-------------------- 2 Corinthians 12:9-11
9 But he said to me, �My grace is sufficient for you, for my power is made perfect in weakness.� Therefore I will boast all the more gladly about my weaknesses, so that Christ�s power may rest on me. Posts: 1445 | From Poconos, PA | Registered: Jul 2004
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The
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Doesn't know where or when he got it. 
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