posted
I have been reading alot about Adrenal Fatigue and adrenal issues and have alot of those symptoms but the thing with Lyme raises and eyebrow. The all over widespread pain, the typical misdiagnosis of Fibromyalgia, the dark circles under my eyes, etc etc.
I DO remember having a tick on me wayyyy back in 93 or 94, dunno if that ******* bit me or not though? I have also pulled them out of my hair. I live in Florida but grew up in the country with woods in the backyard, ticks are a common site. I used to pull them off of the dogs and cats constantly, yes by hand also.
Im 24 now and have been hurting since mid to late 98 for sure, I used to speed skate and ride bmx and then my energy levels started dropping. Once I started driving, I would come home and CRAWL out of the car with widespread muscular pain. I kept running out of energy that by age 16 I had to quit skating, my age 17 I was not doing anything athletic at all, no bmx, no nothing, which was wierd because I had ALWAYS been really active. I had been put on Paxil for obsessive compulsive disorder (still on it to this day, cant get off of it) right before I turned 17 in late 99.
I went to a orthapedic dr who basically said "you are too active", I thought, hmmm, all the people on the team who had been skating way longer than me didnt have these problems. He basically blew me off. I then broke my shoulder blade on my bike, the hospital said I needed a follow up x ray and since I had already been going to the orthapedic, to go ahead and get it from him. He REFUSED the x ray (despite 3 different people at the hospital confirming it as BROKEN), saying there is no way I broke it from a 6-8 foot fall, so thats when I stopped going to that douchebag.
Fast forward from 99 to 02. Im still run down constantly, trigger points in my shoulders, stiff neck, trigger points in my low back, mid back, hips, butt, shin, forearms, etc. I still have BC&BS insurance at this point and wake up one day and decide "this is it! Im getting treatment!" I call a local pain management place, they get me in asap.
I had x rays, MRIs and an eng? test (needle in my thigh and shin and inner leg area), the MRI came back with an arachnoid cyst and venous angioma of the brain but they said those werent my problem. Finally the regular physcian there says I have a small curve in my spine but not enough to cause the pain, he said "sometimes when we cant figure out what is wrong, we call this fibromyalgia". I treated there for awhile but finally realised them putting icebags on my back with a Tens Unit going SUCKED and being cold made me WAY WORSE and the physical therapy compounded the problem.
I just drifted around in pain for awhile after that, then decided I was going to start working out. I lifted for a few months, saw quick gains, then hit a WALL and couldnt gain much, to top it off, I was even more tired and run down and hurting than usual, so I stopped. I started working 8-5 jobs in late 02. I was nearly fired so often because I would be laying down on the job or missing too many days. Went through several jobs this way.
In Jan 05 I go to the community clinic as I no longer have any health insurance, my Mom cancelled it, I tried to get it on my own and they told me NEVER EVER would I be insured through them again. Community clinic dr seems nice enough at first, I told em I had read about chronic mayofascial pain and he said he knew of it but I dont think he ever gave me DX of it? He put me on Mobic, which did nothing. Ran some blood work, said I didnt have arthritis, didnt show a high esr, no signs of inflammation (I dunno if being on an anti-flamm medicine caused this?), he basically told me I was crazy. I told em to feel the KNOTS in the muscles that every massage therapist had felt, he just laughed?
My complete symptoms list are
No energy, sometimes I get a burst of energy and start doing stuff but pay for it for the next 1-2 days
Neck stiffness, I can pop my neck so LOUDLY it grosses my friends out I do it several times a day
Knee pain, my right knee goes through spells of BURNING all around it when sitting, sometimes walking brings it on
Chronic tight muscles, Im VERY unflexible, I constantly lay in bed or wake up feeling the NEED to stretch
My knees creak, my neck creaks even after being popped, sounds like sand in my head, knuckles, elbows and chest pop and creak
Dark circles under my eyes, friends have thought I do drugs before (im the most ANTI DRUG sob EVER), doesnt seem to change much with more sleep
Adrenal pain, sometimes when Im in a confrontational situation, I feel the adrenaline hit and I feels like somebody STABBED me in the low back, almost paralyzing feeling runs through my legs, extreme pain
Ringing in my ears, in a quiet room, it's louder than having noise going of some sort
I get a sinus infection at least once a year and they DO NOT heal on their own, requires antibiotics
EXTREMELY sensitive to cold, most friends get ****ed in the winter when I ride with them because I get so cold so easy and make them keep the windows up even when it's 60-65 outside
Hands and fingers turn purpleish when drinking something cold at times
I sleep sometimes 12-16 hours and still feel tired
Insomnia, even when my body is tired, my brain wont shut off, I catch a second wind at about 2 am, regardless of previous sleep
Extremely sensitive to bright light, I have to wear sunglasses to drive when the sun is out, been that way since I was 16
Chemical smells drive me CRAZY, amonia and bleach being the worst that I can think of
My body temp is usually 97.x or less
I used to have the BEST memory you could imagine, now I have problems with short term stuff randomly, once I remember info, it is retained, it's the initial retaining that is causing issues, getting worse it seems?
I constantly forget what I was about to say or do, wether it's on the internet or in the real world, I always walk in from the garage forgetting why I came in, I always lose the car at Wal-Mart, I come out completely lost
Dyslexia at times, I get numbers backwards, dial the wrong numbers, this has been happening for awhile now and is getting worse
Getting words wrong, I pointed at a radiator last night and called it an alternator which is asanine for a car freak like me, I didnt even realise it either until somebody told me
I seem to stutter randomly at times, voice gets slurred, words come out messed up
Arms fall asleep easily when sleeping, I wake up with a "dead arm"
Nose is constantly running, even with the cold weather being gone
Very prone to mouth ulcers
Very prone to nose bleeds
Blood sugar CRASHES if I dont eat by late in the day, I feel shakey and start CRAVING sugar or I feel like Im gonna pass out, you can show me a plate of chicken or a class of coke and Im shooting straight for the sugar filled drink. I can feel the sugar run through my body and I feel better in no time, after consuming about 2-3 sugary drinks.
Salt cravings at times
Sex drive is gone, well for a 24 year old it is, been that way since I was 17, dunno if it's the Paxil or a combo of Paxil and whatever other problem I have
Eye burning, happens out of the blue at times, I usually have to lay down and sleep to get it to go away or it wont stop
Eye twitching, my eyelid has these spells of twitching where it goes crazy for awhile, stops after a couple days, clears up for weeks or months, then starts again
Im sure there are plenty more I will think of
Sorry for the LONG post but Im still awake here dreading laying down to sleep, arrrrrrg
-------------------- Dx w/ Fibromyalgia in 02, not totally buying it
Arachnoid Cyst & Venous Angioma in the brain
Blue Cross & Blue Shield PERMANENT DECLINED Posts: 18 | From USA | Registered: Mar 2007
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CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136
posted
YES it is very possible it is Lyme or another coinfection like Babesiosis!!! I used to have "fibromyalgia" and that is NO FUN!!!!!!!! It is 100% gone now and NOT due to "gentle exercise" which was what the fibro doctor ordered*)!*)!! IV Rocephin took it away... and Mepron took away the rest-
I would go see an LLMD and get evaluated for TBDs and have a thorough Differential Diagnosis!!
I also had tinnitus and multiple chemical sensitivies and other htings you mentioned- all gone-
I would try and ask family for help in seeing an LLMD if you need to- or be upfront with the LLMD and ask for a reduced rate if you need to- I know they vary widely in price and some have adjustable rates for people who can't afford the going rate-
Sounds like it could be a TBD or more than one- I hope you find out!!! Remember that Babesiosis and Anaplasmosis can be seronegative just like Lyme can- so you need a thorough DD and a good LLMD to evaluate you- Best wishes, Sarah from CA
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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David95928
Frequent Contributor (1K+ posts)
Member # 3521
posted
Many of my symptoms were identical and your case really sounds classic to my non-physicin point of view. PM me if you would like more details.
-------------------- Dave Posts: 2034 | From CA | Registered: Jan 2003
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valymemom
Frequent Contributor (1K+ posts)
Member # 7076
posted
You've come to the right place. Folks will guide you in the right direction.
Posts: 1240 | From Centreville,VA | Registered: Mar 2005
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SForsgren
Frequent Contributor (1K+ posts)
Member # 7686
posted
YES! Read my story at my site below. Get tested!
-------------------- Be well, Scott Posts: 4617 | From San Jose, CA | Registered: Jul 2005
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posted
Hi -- you are describing classic Lyme symptoms. Support groups are listed here. You can contact yours and ask about the lyme-literate docs in your area for testing for Lyme and co-infections, and treatment.
Unfortunately, doctors in general have not been sufficiently educated to recognize this disease. Any doc who says this is fibromyalgia and "we don't know what it is" has not been educated to recognize Lyme disease.
Which is all very unfortunate for us since we need to be treated for a BACTERIAL INFECTION(and maybe other co-infections, which we test for) and all the other remedies they tell us to try are not treating what is actually wrong with us!
Also, it will be helpful for you to study about Lyme disease here so you can get to know what you're dealing with.
Sorry you have to join this club...
BTW, as soon as I found out what my fibromyalgia really was, I decided to educate all of the 300 ignorant medical practitioners I had been to in the last 25 years and am still in the process of calling and writing. I plan to hit the schools next.
Ultimately, the patients need to say, hey, this is what we have and we need you. the medical providers, to recognize it when we come to you for help so we can get the help we need for a real DISEASE.
And then we let the unsuspecting public know about the ticks and the diseases they carry and how to best protect people and animals. This is constant work right now, everywhere in the world. Just the stage we're at.
Posts: 13171 | From San Francisco | Registered: May 2006
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posted
Lyme Disease Symptoms List 1. Unexplained fevers, sweats, chills, or flushing 2. Unexplained weight change--loss or gain 3. Fatigue, tiredness, poor stamina 4. Unexplained hair loss 5. Swollen glands: list areas____ 6. Sore throat 7. Testicular pain/pelvic pain 8. Unexplained menstrual irregularity 9. Unexplained milk production: breast pain 10.Irritable bladder or bladder dysfunction 11.Sexual dysfunction or loss of libido 12.Upset stomach 13.Change in bowel function-constipation, diarrhea 14.Chest pain or rib soreness 15.Shortness of breath, cough 16.Heart palpitations, pulse skips, heart block 17.Any history of a heart murmur or valve prolapse? 18.Joint pain or swelling: list joints_____________ 19.Stiffness of the joints, neck, or back 20.Muscle pain or cramps 21.Twitching of the face or other muscles 22.Headache 23.Neck creeks and cracks, neck stiffness, neck pain 24.Tingling, numbness, burning or stabbing sensations, shooting pains 25.Facial paralysis (Bell's Palsy) 26.Eyes/Vision: double, blurry, increased floaters, light sensitivity 27.Ears/Hearing: buzzing, ringing, ear pain, sound sensitivity 28.lncreased motion sickness, vertigo, poor balance 29.Lightheadedness, wooziness 30.Tremor 31.Confusion, difficulty in thinking 32.Diffculty with concentration, reading 33.Forgetfuiness, poor short term memory 34.Disorientation: getting lost, going to wrong places 35.Difficulty with speech or writing 36.Mood swings, irritability, depression 37.Disturbed sleep-too much, too little, early awakening 38.Exaggerated symptoms or worse hangover from alcohol
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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What about me being in Florida, does that really make a difference? I mean I grew up with WOODS, I pull ticks off the cats and dogs and have been for years, by hand. Also used to go to the beach ALOT and ticks are there too.
Whats the most accurate test to make sure I dont have to retest 1000 times before they say "hey, you are positive". I dunno if I can even afford to do this yet, gonna call a doctor and see.
I have done alotttt of reading on Lyme and alot of searching on here to read from actual people with the problems instead of the standard vague medical jargon. Also have read alot about adrenal issues.
How does this make the joints creaky? I literally sound and feel like an OLD MAN. Im 5'7" and weigh 140 pounds, so it's not like Im overweight, although I have gained about 10-12 pounds in the last year. My friends have been giving me hell for YEARS, I have been called lazy, slacker, you name it. Which alot of people dont understand, especially ones that didnt know me before all this started, Im NOT lazy, I might be unmotivated at times but lazy is NOT me, I have always been an outdoor type, not anymore. Im just sooo tired and it seems to vary in degree of severity. Being out in the sun feels good but seems to make me tired also. I dont go out in the sun much at all anymore, I go outside but try to avoid the sun.
If I didnt know how to wheel and deal and sell car stuff, especially online, I would be SCREWED financially. The problem is, Im running so low on energy at times I cant get anything done.
I have NEVER and I mean NEVER done drugs or drank alcohol. I might not eat the healthiest but Im sick of hearing that as an excuse from people. I eat like any other American, yet my friends dont spend their time rolling around on a tennis ball trying to get knots to release in their muscles. They dont take otc sleeping pills to sleep.
-------------------- Dx w/ Fibromyalgia in 02, not totally buying it
Arachnoid Cyst & Venous Angioma in the brain
Blue Cross & Blue Shield PERMANENT DECLINED Posts: 18 | From USA | Registered: Mar 2007
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quote:Originally posted by Lymetoo: Lyme Disease Symptoms List 1. Unexplained fevers, sweats, chills, or flushing 2. Unexplained weight change--loss or gain 3. Fatigue, tiredness, poor stamina 4. Unexplained hair loss 5. Swollen glands: list areas____ 6. Sore throat 7. Testicular pain/pelvic pain 8. Unexplained menstrual irregularity 9. Unexplained milk production: breast pain 10.Irritable bladder or bladder dysfunction 11.Sexual dysfunction or loss of libido 12.Upset stomach 13.Change in bowel function-constipation, diarrhea 14.Chest pain or rib soreness 15.Shortness of breath, cough 16.Heart palpitations, pulse skips, heart block 17.Any history of a heart murmur or valve prolapse? 18.Joint pain or swelling: list joints_____________ 19.Stiffness of the joints, neck, or back 20.Muscle pain or cramps 21.Twitching of the face or other muscles 22.Headache 23.Neck creeks and cracks, neck stiffness, neck pain 24.Tingling, numbness, burning or stabbing sensations, shooting pains 25.Facial paralysis (Bell's Palsy) 26.Eyes/Vision: double, blurry, increased floaters, light sensitivity 27.Ears/Hearing: buzzing, ringing, ear pain, sound sensitivity 28.lncreased motion sickness, vertigo, poor balance 29.Lightheadedness, wooziness 30.Tremor 31.Confusion, difficulty in thinking 32.Diffculty with concentration, reading 33.Forgetfuiness, poor short term memory 34.Disorientation: getting lost, going to wrong places 35.Difficulty with speech or writing 36.Mood swings, irritability, depression 37.Disturbed sleep-too much, too little, early awakening 38.Exaggerated symptoms or worse hangover from alcohol
I have or have had at some point in time over 22 things on that list. So the hypoglycemic symptoms arent a symptom of lyme?
I do get this shooting stabbing burning pain under my lower right ribcage, like almost behind the lower rib. I get it randomly, it burnnnnnssss for a second, the stops, then comes back on, over and over for a bit then goes away.
-------------------- Dx w/ Fibromyalgia in 02, not totally buying it
Arachnoid Cyst & Venous Angioma in the brain
Blue Cross & Blue Shield PERMANENT DECLINED Posts: 18 | From USA | Registered: Mar 2007
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David95928
Frequent Contributor (1K+ posts)
Member # 3521
posted
Lyme has been reported in every state except Alaska and Hawaii, I think. It's probably there too. Plus, you might have vacationed in CONN or MA during the summers (hint, hint) and done a lot of camping there.
Having lived in the woods and exposed to ticks you are at HIGH risk. If you have 22 of those symptoms, that would clinch it for me (I had about 30). If you can't find an LLMD, a Lyme-friendly doctor might be able to help. That's what I have and have done real well. Depending on where you are in Florida, I might be able to help as I used to live in the Tampa area.
-------------------- Dave Posts: 2034 | From CA | Registered: Jan 2003
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cantgiveupyet
Frequent Contributor (1K+ posts)
Member # 8165
posted
Everyone has given good advice. I at one point had all the symptoms on the list at one time. My LLMd said mine was a fast mover.
I also had burning pain like you described, but mine was on my left side , just below my collar bone.
Nothing suprises me with lyme.
I was bit by a tick in 2000, and i really believe lyme has been with me since then based on my health. After awhile your immune system just cant fight it as well and it takes over.
Glad you found us
-------------------- "Say it straight simple and with a smile."
"Thus the task is, not so much to see what no one has seen yet, But to think what nobody has thought yet, About what everybody sees."
-Schopenhauer
pos babs, bart, igenex WB igm/igg Posts: 3156 | From Lyme limbo | Registered: Oct 2005
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quote:Originally posted by TiredMofo: Got the PM from you lymetoo.
What about me being in Florida, does that really make a difference? I mean I grew up with WOODS, I pull ticks off the cats and dogs and have been for years, by hand. Also used to go to the beach ALOT and ticks are there too.
Whats the most accurate test to make sure I dont have to retest 1000 times before they say "hey, you are positive". I dunno if I can even afford to do this yet, gonna call a doctor and see.
Like David said...it's found nearly everywhere. Plenty of it in FL....just not recognized by drs. [as in most states!!]
You have a lot of risk factors.
The hypoglycemia could be from lyme. The other pain MIGHT be your gallbladder. Just guessing.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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Geneal
Frequent Contributor (5K+ posts)
Member # 10375
posted
Dear Tired,
Like you, prior to being dx with Lyme, I had many periods during the day when I felt like
my sugar was crashing. I'd drink a coke...or two...or more during the day.
It did may me feel better......temporarily.
Maybe it was the sugar or the caffeine or both.
By the time I found a doctor willing to do a Western Blot on me (hadn't found this board yet),
my blood sugar levels for 3 months (A1c) was running fairly high.
Noted then that a possible symptom of Lyme called NMH can cause you to feel like your sugar is bottoming out.
I broke down and bought a blood glucose machine.
Since then, despite a low carb, low sugar diet, my sugar still can fluctuate.
That is not to say that you don't have hypoglycemia, just that I felt like I did and my blood sugar levels didn't support that.
I hope you find a good LLMD.....and get the right diagnosis and treatment.
Hugs,
Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
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quote:Originally posted by David95928: Lyme has been reported in every state except Alaska and Hawaii, I think. It's probably there too. Plus, you might have vacationed in CONN or MA during the summers (hint, hint) and done a lot of camping there.
Having lived in the woods and exposed to ticks you are at HIGH risk. If you have 22 of those symptoms, that would clinch it for me (I had about 30). If you can't find an LLMD, a Lyme-friendly doctor might be able to help. That's what I have and have done real well. Depending on where you are in Florida, I might be able to help as I used to live in the Tampa area.
I live in the northwest panhandle, pensacola area.
I get you on the "hint hint"
-------------------- Dx w/ Fibromyalgia in 02, not totally buying it
Arachnoid Cyst & Venous Angioma in the brain
Blue Cross & Blue Shield PERMANENT DECLINED Posts: 18 | From USA | Registered: Mar 2007
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Like you, prior to being dx with Lyme, I had many periods during the day when I felt like
my sugar was crashing. I'd drink a coke...or two...or more during the day.
It did may me feel better......temporarily.
Maybe it was the sugar or the caffeine or both.
By the time I found a doctor willing to do a Western Blot on me (hadn't found this board yet),
my blood sugar levels for 3 months (A1c) was running fairly high.
Noted then that a possible symptom of Lyme called NMH can cause you to feel like your sugar is bottoming out.
I broke down and bought a blood glucose machine.
Since then, despite a low carb, low sugar diet, my sugar still can fluctuate.
That is not to say that you don't have hypoglycemia, just that I felt like I did and my blood sugar levels didn't support that.
I hope you find a good LLMD.....and get the right diagnosis and treatment.
Hugs,
Geneal
I have tested my blood sugar once with a diabetic friend's blood sugar monitor. My sugar felt low but near as low as it usually gets and the machine did indicate it was low. I was tested for diabetes back in 02 and came back negative. I had my blood sugar tested back in 04 when I went to the ER with food poisoning, my arms and fingers were drawn up tight and it felt like my legs were being crushed. They said I probably threw up so much I starved the muscles for oxygen? They checked my blood sugar because I figured it had dropped since I threw up 7 times and had NOTHING in me at all but it was normal at the time.
-------------------- Dx w/ Fibromyalgia in 02, not totally buying it
Arachnoid Cyst & Venous Angioma in the brain
Blue Cross & Blue Shield PERMANENT DECLINED Posts: 18 | From USA | Registered: Mar 2007
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posted
I keep reading about this IGENEX lab, can you order tests from them yourself and get the results yourself and then present them to a doctor? How does all that work? Or do I go to the doctor and request them use that lab?
-------------------- Dx w/ Fibromyalgia in 02, not totally buying it
Arachnoid Cyst & Venous Angioma in the brain
Blue Cross & Blue Shield PERMANENT DECLINED Posts: 18 | From USA | Registered: Mar 2007
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Geneal
Frequent Contributor (5K+ posts)
Member # 10375
posted
You can call Igenex and request a test kit for Lyme disease, however you must have a written order from a doctor for the test.
They also send the test results to the doctor. They will not send them to you.
Hope this helps.
I found it cheaper to get test from Igenex than LLMD (about 100.00 worth), and just got my LLMD to write the order...
Of course this was for my husband....I didn't know about Igenex when I was tested.
He's to see my LLMD in about 10 days...hopefully will get results then.
Hugs,
Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
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quote:Originally posted by Geneal: You can call Igenex and request a test kit for Lyme disease, however you must have a written order from a doctor for the test.
They also send the test results to the doctor. They will not send them to you.
Do you think you can find a cooperative MD?
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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posted
Hi Tired -- you need to get tested and treated. Igenex test form and kit, as others have mentioned. If you look on support groups here, you might check to see whether there are people right in your area you could chat with. I contacted my local person and he was very helpful re the test form.
We had someone planning to fly to the west coast from Hawaii this past year looking for an llmd here, so Lyme's in Hawaii too...
Also, you can start to tell your friends you are ill and to lay off on the judgments...
Posts: 13171 | From San Francisco | Registered: May 2006
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posted
There seem to be several tests, which test is the most likely to be accurate the first time? Im just worried that Im gonna go through the trouble and be negative, I have already been tested for so many things in the past. It just sucks. I know I should not feel this run down at age 24, especially somebody who flat out doesnt drink, smoke or do drugs, let alone feel drained for years.
I guess Im gonna start calling Monday to see what I can figure out.
Never once has any dr ever even mentioned Lyme disease to me and I have always blown it off when reading the symptoms because I dont recall a tick or a bullseye rash. Seems that alot of Lyme people dont ever remember seeing theirs either.
All I know is, it's warmer outside and Im glad because I can NOT deal with the cold at ALL.
Does Lyme ever involve the adrenals?
-------------------- Dx w/ Fibromyalgia in 02, not totally buying it
Arachnoid Cyst & Venous Angioma in the brain
Blue Cross & Blue Shield PERMANENT DECLINED Posts: 18 | From USA | Registered: Mar 2007
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posted
Wow, been reading that mosquitos, black flys and fleas can possibly transmit these diseases. I have had literally THOUSANDS UPON THOUSANDS of mosquito bites, plenty of fly bites and even had my rounds with fleas! Inside animals, plus living in the country = war with fleas in the summer, you can kill them with the right stuff but you dont suspect them until they attack in the droves, by then you have already had 100000000 bites.
There was a creek in the back yard that would dry up some in the summer, the water would become stagnant, as well as neighboring areas having similar bodys of water. Where I grew up and where I live now are the biggest known mosquito areas within 50 miles.
-------------------- Dx w/ Fibromyalgia in 02, not totally buying it
Arachnoid Cyst & Venous Angioma in the brain
Blue Cross & Blue Shield PERMANENT DECLINED Posts: 18 | From USA | Registered: Mar 2007
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Geneal
Frequent Contributor (5K+ posts)
Member # 10375
posted
Dear Tired,
Yes, Lyme loves the adrenals!!!
I know myself I am very cold sensitive.
I order the Western Blot Igg and Igm from Igenex.
I believe tests # 188 and #189 for my husband.
I can talk mosquitos, biting flies and fleas with you too.
Following Katrina, we had a dramatic increase in all of these bugs.
My neighbor and myself have Lyme, my husband probably has it, other neighbors have had bulle-eye rashes, one was recently
hospitalized in NY where he was dx with Lyme....well we obviously have a common vector or vectors in our area.
However, we also have ticks....We live in the country.
Who knows? We will probably never know which one or ones got us.
I know it is difficult to be ill....must be really hard when you are so young....
Find a good LLMD. Get tested. Get on the road to getting better.
Hugs,
Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
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posted
Im making the phone call tomarrow.......errrr today! When I get the best of this insomnia and sleep for a fit. I was PM'd a semi local LLMD's phone number, gonna see how they seem and go from there.
-------------------- Dx w/ Fibromyalgia in 02, not totally buying it
Arachnoid Cyst & Venous Angioma in the brain
Blue Cross & Blue Shield PERMANENT DECLINED Posts: 18 | From USA | Registered: Mar 2007
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posted
Didnt make the call the last two days, procrastination, sleeping wayyyyyy too long and just forgetting to do it have kept me from doing it. It will get done today!
-------------------- Dx w/ Fibromyalgia in 02, not totally buying it
Arachnoid Cyst & Venous Angioma in the brain
Blue Cross & Blue Shield PERMANENT DECLINED Posts: 18 | From USA | Registered: Mar 2007
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posted
if you want tests from Igenex, you work with a doctor who will consider running those labs for you, as you would if you wished to have any specialty labs run for any purpose.
if you think you may have Lyme disease, there are many credible physicians who work with the ILADS standard of care.
these doctors sometimes use Igenex, it's a lab which specializes in TBD's and some of the tests have greater sensitivity to antibodies. A Lyme disease specialist will run alot of other labs as well.
being that you describe so many symptoms which could overlap with other conditions, your best bet is to focus on an objective evaluation from a doctor who treats persistant Lyme, so you may rule the possibility in or out.
if your symptoms are being caused by some other thing(s), they can refer you accordingly.
good luck,
mo
Posts: 8337 | From the other shore | Registered: Jul 2002
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posted
Finally called the lime dr I was told about through PM's here. The office said the nurse was busy but told me what it would cost. $200 for the test, $110 for the visit and a $48 processing fee. Arrrrg. His nurse is supposed to call me back Monday or so, I guess I will try to get a feel for them and see what they think before going 90 miles to the place.
They leave at 4, so catching them on the phone was harder than I thought it would be, especially as late as I wake up sometimes.
-------------------- Dx w/ Fibromyalgia in 02, not totally buying it
Arachnoid Cyst & Venous Angioma in the brain
Blue Cross & Blue Shield PERMANENT DECLINED Posts: 18 | From USA | Registered: Mar 2007
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![[Smile]](smile.gif)
I do it several times a day
![[cussing]](graemlins/cussing.gif)
![[Wink]](wink.gif)
![[dizzy]](graemlins/dizzy.gif)
![[Eek!]](eek.gif)
![[bonk]](graemlins/bonk.gif)
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