momlyme
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Member # 27775
posted
My son is normally very quiet. I've never heard him yell and very seldom seen him cry - even with all the pain he is in -- he hides it well. He cringes, twitches, falls down, crawls, and suffers in silence.
Today, he started crying at the dinner table. When his sister asked what was wrong, he screamed SHUT-UP - just Shut UP! And he kept sobbing... I asked if I could help, or cancel tutoring, or help him? He said he didn't know why he was crying. He said, "I just can't stop."
I don't know whether to be concerned... or whether he is just releasing because he has been in pain for so long?
I did cancel tutoring & after dinner I put on some comedy via Netflix. He laughed some & then I helped him to bed.
Anyone just get overwhelmed like this and start crying... and not able to stop?
Should I be concerned? I know he is in constant pain... he just doesn't usually sob like that.
I almost didn't post this because it seems like, of course he should cry... release is good, right? The more I think about it seems like it would be natural. It just seemed so out of character for him.
-------------------- May health be with you!
Toxic mold was suppressing our immune systems, causing extreme pain, brain fog and magnifying symptoms. Four days after moving out, the healing began. Posts: 2007 | From NY/VT Border | Registered: Aug 2010
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glm1111
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Really so sorry your son is in pain. Crying can be part of a herx. I have done it many times when I was herxing.
It would just come on and could last for an hour or so. I would say things that didn't make sense like 'I want my mommy" (I am a grown adult) I have seen other people post about the same thing. Crying can be a good release also.
Hope he feels better soon,
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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momlyme
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Thank you Gael! I was thinking this might be signs of a herx. That's good.
I really appreciate you confirming this is normal - or at least a normal step in his recovery.
-------------------- May health be with you!
Toxic mold was suppressing our immune systems, causing extreme pain, brain fog and magnifying symptoms. Four days after moving out, the healing began. Posts: 2007 | From NY/VT Border | Registered: Aug 2010
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I cried for 8 hours in the emergency room and the doctors and nurses all ignored me.
I also have had wanted to scream out to every one to "SHUT UP"
get him to put ear plugs in his ears, even when he sleeps,
keep the lights low in the house , or even as dark as possible,
keep him away from synthetic smells, and away from strong cooking smells,,
see if this helps him
IT TOOK me A YEAR to figure this out for myself,
I am exactly like your son, I would send you a video of my self if I could,
Imagine MAndy from "Under Our SKin"
okay, well, I am worse than she was on that show.
If I remember, I will try to PM you tommorrow with other ideas,
Bartonella made me cry like crazy, it was the first thing that my dear LLMD treated, the crying got a lot worse on Rifampin,
I don't have those crying spells any more, but putting earplugs in my ears helps tremendously!!!
I hope he is okay.
When I did all that crying, I would always say that I wasn't sad, I was just in so much pain, everyone thought I was a bit crazy or severely depressed,
I would beg them to believe that the crying was different than regular crying! IT is also impossible to stop, I just cried and cried and cried until my brain decided it was time to stop.
-------------------- I am not a doctor. I have no clue. Posts: 606 | From somewhere out there | Registered: Sep 2009
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steve1906
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Hi Heather, so sorry your son is in so much pain, just not fair...
I to think its okay, the crying that is. It seems the comedy show helped, that's a good sign.
I would mention it to his doctors, just to see what they say.
I hope he starts feeling better in the very near furture!!!
Take care Heather
-------------------- Everything I say is just my opinion! Posts: 3529 | From Massachusetts Boston Area | Registered: Jul 2008
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momlyme
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posted
Thank you missing. You have some great suggestions there. I will get him some earplugs and see if that helps.
By "synthetic smells" do you mean cleaners and such? How about a cinnamon candle? Or a tea candle and lavender oil when he sleeps? He has been enjoying the candles. I hope he doesn't have to stop that. Would candles... especially the cinnamon be a synthetic smell?
He said he wasn't sad or mad and he had no idea why he was crying. I think he was a little embarrassed too.
Thanks Steve! I think the comedy was a good sign that he was OK. He was glad to have the distraction and I actually started the comedy because he just couldn't stop crying and talking about it wasn't helping. Laughing is a great way to stop crying!
I like your signature - smiling everyday is very important. I read a book by Catherine Ponder that said a woman with cancer laughed herself well when doctors had given up on her... now we watch a comedy a day.
I would be grateful for suggestions on kid appropriate comedy... we resorted to Bill Engvall today. Not so kid friendly - but VERY funny. I started a Favorite Comedies post over in "Off Topic" if you want to see some good suggestions or add your own. We could really use the help.
I'm smiling. I just thought of something funny to say to my son tomorrow. My husband cooked tonight. He rarely cooks. Tomorrow, while my DH is at work, I'll ask my son, "You know how you said you didn't know why you were crying last night at dinner? I know why you were crying." Big smile on my face....looking proud. "It was dad's cooking" LOL.
Maybe it will open the door for talking. I think talking about it when he is not in a crying jag might help him. What do you think?
-------------------- May health be with you!
Toxic mold was suppressing our immune systems, causing extreme pain, brain fog and magnifying symptoms. Four days after moving out, the healing began. Posts: 2007 | From NY/VT Border | Registered: Aug 2010
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glm1111
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posted
I would tell him that you know some adults with Lyme who cry when they are in tx. Does he understand about the herx and dieoff stuff?
You might want to tell him that crying is a way for the body to get rid of toxins and it's not the same thing as regular crying.
Maybe he would relate to the explanation of when someone gets tickeled and they laugh it's not because anything is funny, but because that's the way the body responds. Just throwing out some thoughts.
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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Rumigirl
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Do speak to his LLMD about this to see if he can help with things to help with the die-off and the pain. It's hard enough for an adult to deal with all this, but a child . . .
There are both meds and remedies for die-off: lemon or lime juice in water, French Green clay in water, ground psyllium husks in water, etc.
Make sure that he has plenty of magnesium to relax the muscles. Swanson's Magnesium oil applied topically is cheap and really effective.
And if the pain is really bad, ask the LLMD if he can rx something appropriate for it. It's too much for a child to deal with without all the help he can get.
I hope he feels better soon.
And, yes, the crying helps, strange as it may seem to him and to everyone else! Almost everyone here I think has done our share of crying. Who wouldn't dealing with all this? NOt to mention the die-off.
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momlyme
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All good thoughts Gael - that will add to the conversation.
Rumigirl - where do you get the Swanson's? I looked on vitacost and only found SunFood? I have never heard of the topical oil! Sounds great and I will do that ASAP - or as soon as I find it!
He does have a pain killer as of last monday... tylenol w/cod. He takes 1-2 a day and can take up to 4 but I limit it. He had nothing for pain for a loooooong time and getting this script was not easy! I have him alternate with ibuprofin.
Found a post on helping with herx suggesting glutathionine, lemon water and alka seltzer gold and I will check with LLMD on using this combo for herxing (plus dosage for a child, 70 pounds)
Thanks everyone!
-------------------- May health be with you!
Toxic mold was suppressing our immune systems, causing extreme pain, brain fog and magnifying symptoms. Four days after moving out, the healing began. Posts: 2007 | From NY/VT Border | Registered: Aug 2010
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Lauralyme
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I've experienced that. I had no idea why I was crying. I was on the way out to go to the gym and I thought I don't have time for this crying. I still couldn't stop.
Must of been a herx
-------------------- Fall down seven times, get up eight ~Japanese proverb Posts: 1146 | From west coast | Registered: Mar 2008
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littlebit27
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I've spent time crying for no reason, or no perceived reason-usually I make something up. Sometimes just the drop of a hat makes me want to bawl-I try to hold it back because of my young girls.
But I wanted to say if his pain is anything like mine there is NO way I could live off of 1-2 tylenol 3's a day. I actually had to stop treating because the pain while I was treating was 10 X worse with the herxing.
I'm now on hydrocodone and allowed to take 8 pills a day. Usually I take 5-7. Always 7 on bad days.
Maybe he could do some more detoxing-I'm sure someone mentioned this but I skimmed through the other answers. Epson bath, foot soak (I personally love the foot soak it really helps me with my pain) and plenty other options. And easy one, drink lots of waer with lemon. It's good for him.
I hope he starts to feel better soon, really from the bottom of my heart. I HATE when kids are sick with this crap. I hate it, they don't deserve this disease.
momintexas
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posted
My son had this earlier this year. He also had a lot of anger and frustration and would yell a lot. It has gotten better as treatment has gone on and it rarely happens anymore.
As others have mentioned, detox is HUGE. Lemon water, epsom soaks, charcoal.
Hugs to both of you......it will get better.
Posts: 1408 | From Tx | Registered: Nov 2009
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Dear, dear momlyme, Gentle hugs to your whole family!
You've gotten good suggestions. LD causes "emotional lability" or something that means "easy crying."
I can relate to the crying, specifically around mealtime or trying to get out the door, like Lauralyme.
When hypoglycemic and food's not ready yet, sometimes I start to squeak/whine & cry. Whether anyone else is around or not. Now I know it means I've stressed my body too far. (Never cried like this in past yrs.)
I also may start crying when gathering up my things to head out into town. So much to think about at once! Too much for a Lymie! Should i just crumble in a heap on the couch and cancel? Now, I usually push thru if I've been rested and the excursion is required & not elaborate.
Your dear son battles HUGE issues. Quite a task for a boy to balance chronic pain, understandable anxiety, normal sibling stuff, etc with the knowledge of a tutor coming to see him after dinner! Plenty of reason to just cry...
Too much activity surrounding meal prep can overwhelm (clanking plates, noisy silverware, slamming cabinets & drawers, cheerful well-meaning people hurrying about). Plus bright kitchen lights.
There was time very early in tx that I liked sunglasses in the house.
Hyperaccusis hits me hardest & most often in my kitchen.
Severe neuroborreliosis makes multi-tasking near impossible. Meal prep is multi-tasking and difficult for a Lymed brain to experience. Just watching someone else bustle about can be too much on some days.
It may be best to have your son lie down on his bed, or with a fav pillow on a quiet couch in dim light, before meals. Do not ask him to do any prep, but rather come to the table composed and rested.
If he's hanging around the kitchen because he's hungry already, give him a snack and have him sit in a quiet place.
Before/during/after meals, watch for any sign that he's wilting. Be ready to ask everyone to eat quietly without talking for a few minutes and/or turn down lights. Be very in tune to how hot or cold he may feel and be ready to make adjustments.
He may have the stamina to help clear some dishes, after a meal.
I do MUCH better socially if I can rest in a quiet, dim room before joining others for a meal.
Hypoglycemia can cause irritable outbursts. If he's hypoglycemic, proper tx with a LLMD will clear that in time.
Meanwhile, be sure he sticks to gluten-free, yeast-free, dairy-free, sugar-free diet.
Spirulina is great for maintaining blood sugar btwn meals. I take tabs from Whole Foods 3x/day with other supps on empty stomach. (Spirulina also comes as powder to mix in w/ other drinks, but it's messy and smelly!)
Another member brought up multiple chemical sensitivity concerns. Very important! Most with Lyme have the problem to some degree, and it can worsen during some treatments.
Candlelight can be lovely, but be sure to get pure beeswax candles. Many candles emit toxins.
Candleholders that sheild the eye from direct view of flame are best for me.
I cannot tolerate most earplugs. They must be very soft and pliable. You may be able to find comfortable earmuffs for him. If the earmuffs aren't 100% cotton, you could cover them with flannel.
Please search Med section for Pain threads. Sounds like your son's pain is NOT being addressed appropriately. Yikes!
Natural herbal remedies and homeopathic remedies can be both gentle & effective. I'm sold on Curamin by Terry Naturally.
If you haven't already, print out the LDA's ABCs of Lyme Disease. It's esp for children.
lyme in Putnam
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Member # 11561
posted
I'm so sorry your son is going through this. This is cruel for everyone, but so young, it's heart wrenching. My son wascactive for 3 years, he's dormant for the last 3 years. Hoping that it doesn't happen too often and passes not to come back.
-------------------- He took u to it, He'll you through Posts: 2837 | From NE. | Registered: Apr 2007
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My son does this too, but he is 4. He says "I cannot stop crying, mommy" all the time. You might think that is normal for a 4 year old, but it is different than normal 4 yr. old meltdowns.
We started his treatment a couple months ago. Within the first 4 days, he had a complete meltdown, crying and yelling/kicking and then switching abruptly to hysterical laughter and then back to screaming/crying again, very out of character! It scared me to death and really scared him also. His Dr. said it was a herx.
He has gotten much better since starting treatment...or seems better to us, has gained a lot of weight, speaking more clearly, easier to reason with, sleeping through the night w/o screaming about pain, and we're getting his "foggy" eye checked again tomorrow to see if it's improved at all. so, there is hope!
I pray your son finds relief soon. No child should have to go through this!!!!
Posts: 618 | From NC | Registered: Oct 2009
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momlyme
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Update. The conversation didn't go that well. When we changed the subject, he seemed to have a better day than yesterday.
When it's bad, it's worse than bad. When it's good it's still pretty bad.
I know his pain is not managed. He has been in so much pain for 5 straight months and got his first pain med last week! Not for lack of trying! I have been trying since the first week to get him pain meds. He tells every doc that his pain is at a 9.6 and they say... alternate tylenol and ibuprofin... that doesn't touch it!!!
We have an appt. with our LLMD Thursday and I have a list of things to go over with her. I am trying desperately to find something that brings him some relief. I have been reading what is working for people here and researching online. I have a pain.txt file with tons of ideas (both psx and natural).
I don't think that long term narcotics are a good idea... His little brain turns to mush on those things!
I am going to ask about adding IV Glutathione Curamin (yes, smile- I have Terry Naturally in my notes Magnesium Oil - still not sure on this. I have a note saying topical application relieves pain and today I read an old thread that says it burns, it's sticky... I don't want to torture the kid!
Thanks everyone! Tomorrow is another day.
May it be pain free for everyone!
-------------------- May health be with you!
Toxic mold was suppressing our immune systems, causing extreme pain, brain fog and magnifying symptoms. Four days after moving out, the healing began. Posts: 2007 | From NY/VT Border | Registered: Aug 2010
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momlyme,
Plz see GiGi's new post in Medical today with the latest Lyme protocol from the well-known Dr K. (featured in Under Our Skin). He offers many suggestions esp for children.
On pg 57, he notes the great anti-inflamatory benefits of Boswellia and Curcumin, both found in Curamin by Terry Naturally.
(Wish i got royalties or commission for Curamin, but atlas, am just a grateful consumer.)
I also take Bromelain 3x/day on empty stomach for anti-inflamatory. People can benefit from eating fresh pineapple, too.
posted
When I cry, my tears often burn. Sometimes I don't even feel that upset. It makes me wonder if it's sometimes just a method of detox and my body needs to cry. I know you didn't mention that his tears were painful, but I think it's possible it's a bit of a chemical detox.
Sorry about your little guy. I'll be thinking about you and hoping he is healed soon.
Posts: 707 | From Colorado | Registered: Jul 2010
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momlyme
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LLMD appointment tomorrow. I have to get my notes together on all the supplements I want to add for him. Thanks for all the help - that goes for everyone.
-------------------- May health be with you!
Toxic mold was suppressing our immune systems, causing extreme pain, brain fog and magnifying symptoms. Four days after moving out, the healing began. Posts: 2007 | From NY/VT Border | Registered: Aug 2010
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Crying is definitely a release of toxic chemicals. That's why having "a good cry" feels good!
Also of note, Borrelia has been found in tears.
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I remember his complaints of muscles spasms from a previous post. This could be a sign of Bartonella. Bart also causes depression. Maybe if you get a more specific treatment for Bart too, he would have more luck. My daughter is currently on A-Bart with good effects so far. I am about to satart this myself. And then again...this sickness and these muscle contractions are enough to make anyone simply frustrated! I will continue to pray for his quick and complete recovery!
Posts: 21 | From Honey Brook | Registered: Aug 2010
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I cry too. Sometimes it's because I feel overwhelmed. And other times it comes from nowhere. I also have emotional outbursts, sometimes toward my two year old son. I think chronic illness in general is depressing, so it might be just a reaction to being sick.
-------------------- Lyme, Bart, possible Babs Currently on IV Doxy, Bactrim, Zithromax, Nystatin, Mepron Been on nearly every antibiotic since 10/09
Rumigirl
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posted
On the magnesium oil, google Swanson's Magnesium Oil. It's the cheapest brand, but also good quality. Other brands are probably fine, too.
You apply it topically, and you can use lots of it! Dilute the bottle 1/2 and 1/2 with filtered or distilled water. Otherwise it can burn or itch on the skin. After about 20 minutes they say you can wash it off, if you want, as it's absorbed by then.
If your LLMD can't rx pain meds that do the job for him, you may need to take him to a pain management dr. I hope not, but it would be better than him suffering so!
But DETOX, DETOX, DETOX is critical to get the neurotoxins out that cause the symptoms. Welchol or cholestyramine are two meds that can help with detox (one or the other). I know you just had your LLMD appt, however.
Another thing that helps me a lot for pain is Lidoderm patches. They are an rx of lidocaine (the same as novacaine) that you apply to the body for up to 12 hours. They do help a lot with pain. Sometimes you need to use something to hold them in place, like a headband if it's the neck, or tape elsewhere. They're supposed to stick and sort of do.
He needs relief! ANd you, too.
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quote:Originally posted by momlyme: he started crying at the dinner table. When his sister asked what was wrong, he screamed SHUT-UP - just Shut UP! And he kept sobbing...
I asked if I could help, or cancel tutoring, or help him? He said he didn't know why he was crying. He said, "I just can't stop."
Dear momlyme, I hope your son's recent LLMD appt went very well.
I was thinking of him during the busy Thanksgiving holiday. Praise God you are caring for him!
I've always enjoyed Thanksgiving very much. But with neuroborreliosis, all the activity can overwhelm.
Came up with a super idea that really helps me:
Wear ear protection in the kitchen! Real, manly hardware store ear protection (not just ear plugs). It's fabulous.
When all the busy sounds, lights, and multi-tasking get me feeling like I'm about to cry, I put on the ear protection and get peace. After about 5 min, I can take them off and be fine again. Saves me from having to retreat to a darkened spare room for 30 minutes.
Your son may be glad to relax with the rugged ear protection his dad uses with his power tools...
Just sharing ideas and wishing you well, Smile
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momlyme
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Thanks, everyone for all the help.
I thought he was doing better today. When I asked him if he thought the same... he said he felt like he was worse today. I guess he is just getting good at hiding it.
The holidays were very busy for him. He tries so hard to participate... He just can't be a normal kid and do normal kid stuff.
He is wearing the earplugs when he is overwhelmed. He doesn't seem to think light is an issue at this time. He hasn't had any crying jags lately...
Detox... we are working on that with foot baths, garlic, coconut oil, lemon water, drinking plenty of water, detox teas, olive leaf extract... What else can we add that's natural? We're buying a portable sauna but he can't use it right now because of the picc line.
-------------------- May health be with you!
Toxic mold was suppressing our immune systems, causing extreme pain, brain fog and magnifying symptoms. Four days after moving out, the healing began. Posts: 2007 | From NY/VT Border | Registered: Aug 2010
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17hens
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posted
momlyme,
I forwarded this thread to a friend of mine who has a very sick little girl, thinking she would find some of this info helpful.
I've posted on lymenet about her before (one titled "help dying 13 year old", or something like that).
To my surprise, my friend sent me an email today asking me to post it for her on this thread.
She is now in a good enough place, emotionally, to be able to reach out and try and help others! I am so happy about this!
Her post is as follows...
-----------------------------------------------
DETOX is CRUCIAL.
Doesn't matter if you are on doctor prescribed medications or homeopathic options.
My daughter has been ill for 2-1/2 years.
She has been on all types of constant severe rheumetory arthritis meds and constant prednisone until 3 weeks ago!
Yes, prednisone against my better wishes and it's very very damaging to someone with lyme disease.
During this I've been going rounds with her arthritis doctor that she does have lyme even though 3 of 5 tests came back negative.
Now my daughter also tested for a bartonella co-infection which I've been saying she has for the last year, but he wouldn't test for.
Finally got her to a real LLMD, the best, and sure enough...he completely agree with me, tested her, and congratulated me for standing my ground, educating myself and recognizing the pieces to the puzzle and helping him "save" my daughter.
This past spring, about 7 months ago, I attempted another route to get her help, prior to an LLMD, as my ex-husband was not happy about my going against her arthritis doc.
He did not want her doing the homeopathic route and said her lyme was now dormant.
He couldn't have been more wrong.
I sought the help of a homeopathic healer.
My daughter goes to see him monthly for muscle testing.
Its a very strange way of examining the body's ailments and even more of a bizarre way of determining dosage of whatever natural remedy is needed, whether its herbal, or what-have-you.
It is NOT voodoo!
People need to give this alternative form of medicine a try.
I'm not saying that it is to replace all modern medicines, especially if someone's condition is severe or life threatening like in case of cancers, but it definitely does help in addition to modern meds and in many cases, can cure.
I would highly suggest making sure that any and all docs, if more than one are involved in the health care needs, that they all be advised consistently of all homeopathic remedies being used.
I've learned that the two worlds don't mesh well together, one always says the other is bad and theirs is better.
If they would only work together, but that is impossible due to law suits and the CDC/Medical Board.
My daughter has 4 docs, and I'm in the middle, making sure every doc knows at the same time what my daughter is taking and why, and I MAKE THE CHOICES to follow their suggestions.
I don't allow the modern medicine world to tell me that the homeopathic world is a joke or vice versa.
When you add an LLMD to the mix...LOOK OUT!
It is not easy, but again, keep everyone and every doctor involved in your child's health care informed with what you agree with, don't agree with and what you want each of them to use, and you will be fine.
I have learned that I'm saving my daughter's life.
Because I've educated myself about lyme and bartonella and other co-infections, I've watched for the symptoms and knew of them before more of them showed up, so when they did I was prepared, and although her tests came back negative, I was able to back up what I knew!
Now we have treatments that bring us hope, and we'll know more in a few months.
Docs who say we can't mix antibiotic treatments and arthritis treatments or other modern meds with homeopathic meds are full of poop.
The key is to know what you are talking about, speak your mind and what you know and feel strong about, and make them listen to you like I did.
If I can do it anyone can do it, and if you are not getting thru to them collectively, time for a change in one or more of the docs.
If its three things I've learned, its this:
1) a great LLMD will not shoot down allowing you homeopathic help,
2) another great advantage to homeopathic help is that they can determine what exactly your child needs to keep their immune system and vital organs clean and running well or get them healthy, and I feel they can do this better than a regular physician after the experience I've been having with my daughter.
They focus on keeping the body healthy as a "whole" rather than concentrating on simply one aspect, cause really you can't fix that one aspect thats wrong with you, and expect the rest of your body to be healthy despite the man-made poison drugs we call antibiotics and modern medicine and
3) detoxing is crucial, and not enough of our regular physicians and other docs push that.
This is where your child comes in with the pain and why I'm writing this to you.
My daughter was experiencing severe cramps in her stomach, inner thigh and bottom of her left foot.
She lives with pain all day everyday as well, and sometimes she would scream and cry in severe pain.
During one of our trips to see the homeopathic gentleman, she was in a great deal of pain, and he realized her pain was in the lymphnodic area of her inner thighs.
Her lymph nodes weren't swollen, however the pain was there, and after further examination and muscle testing he determined that she needed detoxing immediately or else her kidneys and liver were going to start showing severe damage.
So he added detoxing remedies to her routine, a simple remedy of parsley drops and another liquid drops for adrenal.
She went to the bathroom alot, but her body released toxins through her urine.
As the months went on over the 3 months, she now has more meds
(enbrel for arthritis,
prednisone still being worked out of her system from prior usage that recently stopped,
2 antibiotics from her LLMD,
and left over "stuff" from all the other crap she was on the last two years that is still lingering,
plus all the dead toxins she is currently making on a daily basis),
so now we do detox baths.
2 to 3 times a week, your child may need more often, you'll have to judge, if he is still in severe pain everyday, maybe he needs a detox bath everyday for weeks to see relief, but never assume it is not helping him.
It will help him even if you don't see results fast enough to suit.
The best detox bath is: 3 cups of epsom salts, 2 cups of aluminum-free baking soda (not cheap but necessary) and 1 cup of peroxide in very warm water, almost hot, but not too hot.
He should sit in the tub and soak for no less than 45 minutes.
My daughter reads while she is the tub to pass the time.
Sometimes I put her in the tub screaming in pain and in an hour of sitting in the tub...she is calm as a cucumber.
Again, everyone's detoxing needs may be of a different level, some more or less and some once or twice a week or once a day.
Last week, my daughter had a herx/die off and she did two detox baths in one day and one the day after and one the day before.
Hasn't needed one in the last 5 days, but it also doesn't hurt to give them once a week even if you feel they are not needed, cause I'll gaurantee it will help something inside him as long as he is on any kinds of meds.
I hope this helps you.
I will keep him and the rest of your family in our prayers.
If I can ever help you with any questions or concerns or curiousities with respect to the homeopathic route or dealing with all the different types of docs together as a whole, please just let me know.
My friend sending this to you for me has my permission to privately give you my contact information if you would like to contact me.
I wish you the best. God Bless ---------------------------------------
-------------------- "My flesh and my heart may fail, but God is the strength of my heart and my portion forever." Psalms 73:26
bit 4/09, diagnosed 1/10 Posts: 3043 | From PA | Registered: Dec 2009
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momlyme
Frequent Contributor (1K+ posts)
Member # 27775
posted
Thank you so much 17hens... and thank your friend for me.
We just went for muscle testing last week. It looks like voodoo! LOL. But it's not. The results were spot on. Parasites, bacteria, immune system and spleen were his problem areas. He started on a parasite cleanse because that was the most reactive.
I wish we did muscle testing from the start! She tested all the vitamins & supplements that my son is taking and confirmed my fears that some of them were not working well with his body chemistry.
What your friend says about having all the doctors work together is right... I am lucky to have an LLMD who suggested seeing an ND when she could not answer my questions about some homeopathic remedies.
And detoxing is key. I know that. I wish my son liked baths more... for now, we are doing foot baths with the epsom salt and hydrogen peroxide. I have never heard of the aluminum free baking soda? I will have to give that a try.
We are attacking these bugs from all angles... and pushing their dying carcasses out of his body, one by one or in herds! No one treatment will work as well as a combination of all treatments, done carefully, under professional supervision and systematically. At least that's how I feel about it.
Going over to the post on your daughter's acid... I have an idea.
-------------------- May health be with you!
Toxic mold was suppressing our immune systems, causing extreme pain, brain fog and magnifying symptoms. Four days after moving out, the healing began. Posts: 2007 | From NY/VT Border | Registered: Aug 2010
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
You can add Vitamin E and C which have been shown to help with the detox...Vitamin E also reduces cholesterol that they like...
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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momlyme
Frequent Contributor (1K+ posts)
Member # 27775
posted
Thanks Pinelady... we haven't added Vitamin E...yet. I have been thinking about adding that and Vitamin K due to some research.
Odd thing... vitamin C (in grapeseed extract) tested counterproductive to his system in muscle testing with our new naturopath. I have temporarily removed it from his daily regiment.
-------------------- May health be with you!
Toxic mold was suppressing our immune systems, causing extreme pain, brain fog and magnifying symptoms. Four days after moving out, the healing began. Posts: 2007 | From NY/VT Border | Registered: Aug 2010
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
I just use Ester C. Not grapeseed. But whole grapes might be good too....The resveratrol comes from grape skins and grapes also raise our PH really fast. One of our goals.
BACKGROUND: Neuronal loss in multiple sclerosis (MS) and its animal model, experimental autoimmune encephalomyelitis (EAE), correlates with permanent neurological dysfunction. Current MS therapies have limited the ability to prevent neuronal damage.
METHODS: We examined whether oral therapy with SRT501, a pharmaceutical grade formulation of resveratrol, reduces neuronal loss during relapsing-remitting EAE. Resveratrol activates SIRT1, an NAD-dependent deacetylase that promotes mitochondrial function.
RESULTS: Oral SRT501 prevented neuronal loss during optic neuritis, an inflammatory optic nerve lesion in MS and EAE. SRT501 also suppressed neurological dysfunction during EAE remission, and spinal cords from SRT501-treated mice had significantly higher axonal density than vehicle-treated mice. Similar neuroprotection was mediated by SRT1720, another SIRT1-activating compound; and sirtinol, an SIRT1 inhibitor, attenuated SRT501 neuroprotective effects. SIRT1 activators did not prevent inflammation.
CONCLUSIONS: These studies demonstrate that SRT501 attenuates neuronal damage and neurological dysfunction in EAE by a mechanism involving SIRT1 activation. SIRT1 activators are a potential oral therapy in MS.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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I'm smiling. I just thought of something funny to say to my son tomorrow. My husband cooked tonight. He rarely cooks. Tomorrow, while my DH is at work, I'll ask my son, "You know how you said you didn't know why you were crying last night at dinner? I know why you were crying." Big smile on my face....looking proud. "It was dad's cooking" LOL. ![[group hug]](graemlins/grouphug.gif)
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