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» LymeNet Flash » Questions and Discussion » Medical Questions » Opinions on Mepron

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Author Topic: Opinions on Mepron
average joe
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Looks like heavy duty stuff. Should I take this for babs or try alternatives?

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If you play at the beach, expect to get some sand in your shorts [Smile]

Posts: 223 | From central pa | Registered: May 2010  |  IP: Logged | Report this post to a Moderator
jenn
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It works!! did it with Zith, and noticed much improvement!
Posts: 501 | From Hudson Ticky Valley, NY | Registered: Aug 2009  |  IP: Logged | Report this post to a Moderator
sixgoofykids
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I had improvement and only felt good when on it, but I always declined off it.

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sixgoofykids.blogspot.com

Posts: 13449 | From Ohio | Registered: Feb 2007  |  IP: Logged | Report this post to a Moderator
missing
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love it !!

love it!!!

love it!!!!!!!!

I've been on it for 8 months.

I misunderstood my LLMD in August , and went off of it for 4 weeks. BOY!!!! did I ever get sick fast!!!!

I had to almost start all over again.

I take Mepron + ZITH and high dose oral amox

I have just started Plaquenil, although I was supppossed to be on it 8 months ago,,,,,long story.....

I was on Rifampin for 3 months,,,,

THIS has been the best two weeks I have had in 4 years!!!

If this lasts,,,,then I can say that I am now 90% cured.

I have also just started to eat 4 tablespoons of coconut oil everyday!!!!

I got permission from my LLMD to mix it with my mepron dose. I also add some peanut butter to the mix too. I mix it all in a tiny glass bowl. THen I use a scraper to make sure I eat every little bit of it up!!!!

Mepron is expensive and I won't let it go to waste. I then finish it off with a fruit smoothie, add extra coconut oil to it.

Do not over heat the coconut oil, and do not microwave it. If I need it to melt then I just put it in a glass bowl, and put that glass bowl into another bowl that has hot water in it.

I don't use it for cooking.

I am amazed at how healthy coconut oil is. I am finding so many articles about its benefits and how it has helped people so much.

I also rub it into my body to help with pain. And actually , since I started to eat it, I haven't needed as many pain killers.

So I don't really know if it is the coconut oil that has helped or if it is from Mepron, or just the whole combination and the whole treatment.

But , I don't care, I am just so happy to feel 90% better, and 80% more energetic!

I am nearly there!

Yahoo! [woohoo] [woohoo] [woohoo] [woohoo]

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I am not a doctor. I have no clue.

Posts: 606 | From somewhere out there | Registered: Sep 2009  |  IP: Logged | Report this post to a Moderator
nybasketball212
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Did you guys test positive for Babesia or just treat it clinically?
Posts: 306 | From NY | Registered: Sep 2010  |  IP: Logged | Report this post to a Moderator
BoxerMom
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Take the Mepron. Absolutely.

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 - Must...find...BRAIN!!!

Posts: 2867 | From Pacific NW | Registered: Apr 2010  |  IP: Logged | Report this post to a Moderator
Tammy N.
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Do most people seem to crash after going off it?
Posts: 2238 | From East Coast | Registered: Jul 2010  |  IP: Logged | Report this post to a Moderator
triathletelymie
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up

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? date of bite/no rash
10/09 symptoms, 4/10 diagnosed, after 6 mos. ER visits, tons of docs/tests
CDC+ 23/39/41/45/58/66/93
currently on oral plaquenil, doryx, rifampin, pyrazinamide, nystatin, numerous supplements

Posts: 718 | From Pennsylvania | Registered: Jun 2010  |  IP: Logged | Report this post to a Moderator
BHealthyNow
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How long did it take to see improvement on it?

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Lyme, Bart, possible Babs
Currently on IV Doxy, Bactrim, Zithromax, Nystatin, Mepron
Been on nearly every antibiotic since 10/09

About 60% improvement. Dizziness, air hunger remain.
http://lemonandlyme.blogspot.com

Posts: 333 | From Boise | Registered: Sep 2009  |  IP: Logged | Report this post to a Moderator
17hens
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YES to mepron. Clinically treating Babesia.

Being very aware of my symptoms has proven much more reliable than unreliable testing. And much cheaper!

The crashing after is a scary thought.
Hope more people answer here.

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"My flesh and my heart may fail, but God is the strength of my heart and my portion forever." Psalms 73:26

bit 4/09, diagnosed 1/10

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lululymemom
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Its a very good med for babesia just be very dilligent about testing your liver enzymes. I have seen them spike very quickly and very high.

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IGM 41 IND, 83-93+ IGG 31 IND,34 IND, 41++, 58+, 83-93 IND

31 Epitope test neg.

Bartonella henselae 1:100

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BHealthyNow
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Are there symptoms of increased liver enzymes? I am having bloodwork weekly, but I was wondering if there was something else to watch out for.

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Lyme, Bart, possible Babs
Currently on IV Doxy, Bactrim, Zithromax, Nystatin, Mepron
Been on nearly every antibiotic since 10/09

About 60% improvement. Dizziness, air hunger remain.
http://lemonandlyme.blogspot.com

Posts: 333 | From Boise | Registered: Sep 2009  |  IP: Logged | Report this post to a Moderator
mojo
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When my liver enzymes were high I was very ill (thought it was a super herx) had a terrible headache and even had hives.
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BHealthyNow
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How long were you on the meds before enzymes elevated? Also, how long until they went back down? (Sorry for so many questions. I think mine will be fine but just asking in case.)

--------------------
Lyme, Bart, possible Babs
Currently on IV Doxy, Bactrim, Zithromax, Nystatin, Mepron
Been on nearly every antibiotic since 10/09

About 60% improvement. Dizziness, air hunger remain.
http://lemonandlyme.blogspot.com

Posts: 333 | From Boise | Registered: Sep 2009  |  IP: Logged | Report this post to a Moderator
jackie51
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MEPRON--there is a link somewhere about mepron blues. You have to be careful of it causing depression which sneaks up very quickly. I haven't had this problem but I'm glad I know this is a side effect.

I'm also on Zith and Mepron, 2nd month. Doing wonderfully. Best I've felt in a long time. I'm also doing Humaworm, about half way through. So, may be a combination of all these.

Good luck.

Posts: 1374 | From Crazy Town | Registered: Dec 2007  |  IP: Logged | Report this post to a Moderator
t9im
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Hi Average Joe:

The LLMD my daughter goes to indicates the mepron and zithromax treatment for babesia will take at least 8 months.

Her diagnosis is clinical. Tested negative 3 times but she's had / has the symptoms.

She did not see the type of improvement some have posted here (due to the Lyme I believe) but we have seen the babs symptoms alleviate (breathing is better, bone pain decreased, headaches much less frequent / severe).

As for liver we are more concerned on the zithromax versus mepron.

--------------------
Tim

Posts: 1111 | From Glastonbury, CT | Registered: Apr 2010  |  IP: Logged | Report this post to a Moderator
TF
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If you notice your skin turning a yellowish color, call the doc. That is what happened to my girlfriend when her liver enzymes went high while taking Mepron.

It can be a vague yellowish color.

Posts: 9931 | From Maryland | Registered: Dec 2007  |  IP: Logged | Report this post to a Moderator
lululymemom
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Also watch for dark urine and clay coloured stools. There could be some side pain as well but that doesn't always happen.

It can take up to a month to settle back down but depending on how high they go. I've heard them taking 3 months during which time you have to stop all meds.

--------------------
IGM 41 IND, 83-93+ IGG 31 IND,34 IND, 41++, 58+, 83-93 IND

31 Epitope test neg.

Bartonella henselae 1:100

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nefferdun
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I just started Mepron yesterday and I believe I can tell a slight difference already. I am not as dizzy or as tired as I was. I hope I do not get the depression or liver problems.

I tested positive - which is good as Mepron is so expensive I would hate to be treating my imagination. It cost me over 1000 dollars from Costco. I am so worried about spilling it.

The LLMD did not tell me to check my liver and I am not scheduled to talk to him again for three months. No one told me to take it with a lot of fat either, which I found out about on here. And the instructions said to take 5 ml but I was not given anything to measure ml so I accidentally took twice the dose yesterday. This morning I found out it is supposed to be one teaspoon.

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old joke: idiopathic means the patient is pathological and the the doctor is an idiot

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TF
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nefferdun, are you sure the lyme doc didn't give you lab slips to have blood work done monthly? I hope he did give them to you.

If not, it was likely an oversight.

I would call the doc's office and tell them you will not be talking with the doc for 3 months. Should he send you some lab slips to check your liver enzymes monthly since you are taking Mepron...

Posts: 9931 | From Maryland | Registered: Dec 2007  |  IP: Logged | Report this post to a Moderator
   

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