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» LymeNet Flash » Questions and Discussion » Medical Questions » Tindamax vs natural remedies?

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Author Topic: Tindamax vs natural remedies?
mysteryillness1970
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My daughter was just prescribed Tindamax to break up the cysts and L-forms. She is also taking Zith and Mino.

I research all her medications/suppliments and although I know all pose a risk Tindamax concerns me a lot.

This is the documentation I have found from many sources:

WARNING: POTENTIAL RISK FOR CARCINOGENICITY (HUGE CONCERN)

Carcinogenicity has been seen in mice and rats treated chronically also with metronidazole, another nitroimidazole agent.

Neurological adverse reactions (child already has neuro enchalpathy, PANDAS, OCD, High D1 Receptor)

Convulsive seizures and peripheral neuropathy, the latter characterized mainly by numbness or paresthesia of an extremity, have been reported in patients treated with tinidazole.

Vaginal candidiasis (not as big a concern)

Blood dyscrasia (child has anemia and Babesia Duncani) Tinidazole should be used with caution in patients with evidence of or history of blood dyscrasia.

My first question is: would you feel comfortable (given her symptoms) giving this medication to a child of thirteen or would you choose something more natural like GSE?

Second, has anyone chosen natural over Tindamax...and if so, do you think it has been just as effective as pharmacuticals ?

Would love and appreciate ALL feedback before I decide to fill or not to fill...very grateful for all your suggestions!

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jkmom
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Well I admit I followed my daughter's LLMD's advice and didn't do my own research on Tindamax, so I didn't see all of that info.

She was not prescribed Tindamax until 2 years into treatment and I was happy she was finally being given a cyst buster.

So, right or wrong, I was comfortable.

And, I thought she did well on it and would like to get her on it again.

An LLMD that uses natural and pharmeceutical meds is the one that prescribed it for her.

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mysteryillness1970
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Thanks for your feedback jkmom.

I try not to read into anything tooo much or we would all be worrying all the time, right?

It's just that she has so much working against her already I hate to take a chance...but sometimes the risks do outweigh the benefits.

With that being said, if they do well, would they need to repeat?

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ktkdommer
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My son and I take tindamax two days a week so I don't think it can build up. He is 15. He has been on it for 3 months and is doing fine. We both have mild herxing from it. Worse in the beginning and not much now.
We take artemesia too. I think that is a cyst buster also. I'm pretty sure we take it for babesia. Too many meds and supplements to keep straight plus there are 3 of us.
We hit the probiotics hard since we are on 3 antibiotics and we drink Kefer. Not problems with yeast so far. My son takes nystatin daily also.
Best of luck!

--------------------
Things are never dull. After 3 fighting Lyme, 2 are in remission. Youngest is still sick, age 22. He has new diagnosed Chiari Malformation and Ehlers Danlos Syndrome.

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jkmom
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I am not sure we did it long enough for my daughter. We switched LLMD's and the new one put her on something else. That is why I would like to see her on it again.

I also took it for a month before my LLMD switched me to babs treatment. I felt like it was making me herx so I would like to get back on it, too. My herxes are almost always very mild so I actually like them. I feel like I am making progress.

My daughter has been in her bed for 3 years, so I weigh what *might* happen with what already *has* happened.

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LymeXtu
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My son and I have been on GSE for months, we have not seen alot of improvement on it.
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mysteryillness1970
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LymeXtu, how much do you know how to take? How can you tell if it's working?

jkmom, do you think your new LLMD will prescribe it or is she against it? I have been praying for you and your daughter. I was hoping she had improved some, I'm so sorry

Thanks for all the feedback everyone...I'm going to talk with the pharmacist today.

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MariaA
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This particular med seemed to really clear up brainfog for me.

--------------------
Symptom Free!!! Thank you all!!!!

Find me at Lymefriends, I post under the same name.
diet: http://lymefriends.ning.com/group/healthylowcarbrecipes
Homemade Probiotics thread
Herbal Links Thread

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jkmom
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I think the Tindamax worked on brain fog for my daughter, too.

The new LLMD is the one that prescribed it for me, so she isn't against it. She is just going after other things for both of us now. I don't disagree with this, but I do want both of us to take Tindamax again at some point.

When I say she did well on it, I mean she showed some progress on it. She was a long, long ways from being well.

When I talk to the LLMD again, I am going to ask about Tindamax again because it did look promising.

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LymeXtu
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We take Nutribiotic brand 250mg 3X a day.

Just have not noticed any difference on it good or bad.

Also it is about $10 a bottle for 60 capsules so it adds another $30 a month for us out of pocket.

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onbam
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It may just be a toxic preservative in GSE that does the killing. Look up benzethonium chloride on google.

As with everything else, they don't know, though.

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mysteryillness1970
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Thanks for the info everyone...you are all great and I am so grateful for your willingness to reach out!

Jkmom & ktk please keep me posted about you and your daughter/son.

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