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» LymeNet Flash » Questions and Discussion » Medical Questions » UGH! Friend thinks is mernier's not lyme because symptoms "cycle"

   
Author Topic: UGH! Friend thinks is mernier's not lyme because symptoms "cycle"
lymegal23
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Member # 28573

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Ok so heres a run thru of the story.. My co worker has been telling me shes been not feeling good in cycles for about two years. She said that she stars feeling sick in the winter and shes ok in the summer. Her symptoms are vertigo, ringing in the ears that can last up to 10 minutes. dizziness where she sees the room spinning. very bad insomnia where shes lucky that she even gets 2 hours of sleep a night. Her eyes look swollen and puffy. She says some days she can't get out of bed but then some days shes ok. she said it goes in cycles. She was tested for lyme by an ID doc and he told her one test came back pos and the other came back neg. therefore he doesnt think she has lyme. plus she said she was on doxy for a few years for acne so she doesnt think she can have lyme. I told her doxy at a low dose is pretty worthless and that she could be co infected. She went to three Ear Nose and Throat docs and theyve all diagnosed her with mernier's. she said all the test pointed to that. altho last time I checked theres really no definitive test for mernieres. they just diagnose it if theres no other possible reason for symptoms.

I was hoping shed go to my lyme doc. but now it seems that she really thinks is mernieres. she said she thinks that because she cycles her symptoms in days. a few pretty good days and then a few really crappy days. she said if she had lyme shed just keep feeling worse and worse everyday. I told her lyme can cycle too and theres so many different strains

does what she have really sound like merniers?

Posts: 995 | From somewhere out there | Registered: Oct 2010  |  IP: Logged | Report this post to a Moderator
momofthree
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no...sounds like lyme to me
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lymegal23
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^ I so agree with you. I always thot mernieres was more of a localized thing. like it doesnt make you feel "sick" as a whole.
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Keebler
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-
I can't read your post but links below should help.

Meniere's is never just meniere's - there is always a cause (or a set of circumstances). There can be many causes but lyme or other chronic stealth infections are often the cause.

Of course, only LL doctors are adequate in this department. Few ear specialists are LL. Very few. Your LLMD may know of one who is.

Also, it's vital for any inner ear patient to have a diet free of: gluten, dairy, corn and soy. Sometimes, just clearing the diet makes a huge difference.

Mold, parasites and heavy metals also need to be considered - independently - and in light of possible "co-situation" kind of thing with lyme or other infection.

All food additives, dyes, "fake" foods, etc. also need to be left alone.

Environmental stuff also needs to be considered, going scent-free is essential.
---------------------------------

Every single one of these symptoms can be caused by lyme or other tick-borne or stealth infections:

http://www.vestibular.org/vestibular-disorders/symptoms.php

VESTIBULAR SYMPTOMS

============================

ALL EARS. Specifically for LYME patients - lots of details about ears and what can help:

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=065801

Topic: TINNITUS: Ringing Between The Ears; Vestibular, Balance, Hearing with compiled links - including HYPERACUSIS
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Lymetoo
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"She was tested for lyme by an ID doc and he told her one test came back pos and the other came back neg."

This was probably the ELISA that came back positive... so she VERY LIKELY has LYME.

It's very common for Lyme patients to feel ill in different seasons, as she mentioned. And of course, it does cycle.
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moving to general support

--------------------
--Lymetutu--
Opinions, not medical advice!

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