LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » How long on each protocol????

 - UBBFriend: Email this page to someone!    
Author Topic: How long on each protocol????
lymegal23
LymeNet Contributor
Member # 28573

Icon 1 posted      Profile for lymegal23     Send New Private Message       Edit/Delete Post   Reply With Quote 
I was wondering roughly how long people spend on a protocol. I've been taking Biaxin and Planequil for a month and a half. i herxed right away

I know it treats only two forms of lyme so I'll end up needing a third drug down the line

about how long should I be expecting to stay on this combo?

Posts: 995 | From somewhere out there | Registered: Oct 2010  |  IP: Logged | Report this post to a Moderator
sixgoofykids
Moderator
Member # 11141

Icon 1 posted      Profile for sixgoofykids   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
As long as you're seeing progress. It varies. I was on Biaxin/Plaquenil rotating other drugs in for over a year.

--------------------
sixgoofykids.blogspot.com

Posts: 13449 | From Ohio | Registered: Feb 2007  |  IP: Logged | Report this post to a Moderator
Cattail
LymeNet Contributor
Member # 24357

Icon 1 posted      Profile for Cattail     Send New Private Message       Edit/Delete Post   Reply With Quote 
I have been on this combo for 7 months, introducing Doxycycline back in Septmber because I began getting worse on the combo alone. I believe it's because Bart came out and this is why I made more progress when the Doxy was introduced.
Posts: 319 | From Mass | Registered: Feb 2010  |  IP: Logged | Report this post to a Moderator
penguingirl
Frequent Contributor (1K+ posts)
Member # 28688

Icon 1 posted      Profile for penguingirl     Send New Private Message       Edit/Delete Post   Reply With Quote 
I'm on Biaxin and Amantadine for also at least 6 weeks and not seeing too much progress but tolerating it better than Minocycline.

Just came back from my LLMD appt who said to keep staying on it.

I'm frustrated because it doesn't penetrate the BBB as good as Minocycline and I need it to, but can't tolerate it so I'm just not really getting to the brain right now.

I guess I am looking for a more aggressive approach (like incorporating Doxy or something) while on the Biaxin so I am being more efficient in treating this whole thing.. but have to take my LLMD's word?

I have some Doxy (not too many pills) from my GP's prescription back when he thought I had lyme but told me to stop because the lyme test came back negative. I wonder if I can take those too to see if I get any progress.

--------------------
 -

Posts: 1204 | From USA | Registered: Oct 2010  |  IP: Logged | Report this post to a Moderator
lymegal23
LymeNet Contributor
Member # 28573

Icon 1 posted      Profile for lymegal23     Send New Private Message       Edit/Delete Post   Reply With Quote 
Alot of people on here have said that Biaxin penetrates the BBB.......
Posts: 995 | From somewhere out there | Registered: Oct 2010  |  IP: Logged | Report this post to a Moderator
hurtingramma
LymeNet Contributor
Member # 7770

Icon 1 posted      Profile for hurtingramma     Send New Private Message       Edit/Delete Post   Reply With Quote 
So does Amantadine

--------------------
"Few of us can do great things, but all of us can do small things with great love". Mother Theresa

http://www.facebook.com/profile.php?id=1629665573&ref=name

Posts: 938 | From Northeast Kingdom Vermont | Registered: Aug 2005  |  IP: Logged | Report this post to a Moderator
nefferdun
Frequent Contributor (1K+ posts)
Member # 20157

Icon 1 posted      Profile for nefferdun     Send New Private Message       Edit/Delete Post   Reply With Quote 
I believe the only macrolide that crosses the BBB is roxithromycin. I don't think biaxin does. I don't know about amantadine.

--------------------
old joke: idiopathic means the patient is pathological and the the doctor is an idiot

Posts: 4676 | From western Montana | Registered: Apr 2009  |  IP: Logged | Report this post to a Moderator
bcb1200
Frequent Contributor (1K+ posts)
Member # 25745

Icon 1 posted      Profile for bcb1200     Send New Private Message       Edit/Delete Post   Reply With Quote 
Amantadine isn't an antibiotic and has no bug killing properties. It simply raises cellular pH and makes the Biaxin works better. Biaxin does cross BBB a bit.

--------------------
Bite date ?
2/10 symptoms began
5/10 dx'd, after 3 months numerous test and doctors

IgM Igenex +/CDC +
+ 23/25, 30, 31, 34, 41, 83/93

Currently on:

Currently at around 80% +/- most days.

Posts: 3114 | From Massachusetts | Registered: May 2010  |  IP: Logged | Report this post to a Moderator
sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270

Icon 1 posted      Profile for sutherngrl     Send New Private Message       Edit/Delete Post   Reply With Quote 
I think you should stay on a protocol as long as you are gradually improving on it. I have been on Doxy for about a year and a half because its the only thing that has given me any improvement.
Posts: 4035 | From Mississippi | Registered: Jul 2008  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.