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» LymeNet Flash » Questions and Discussion » Medical Questions » What was "The Thing" that helped turn things around for you? (Page 2)

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Author Topic: What was "The Thing" that helped turn things around for you?
dan67
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Rifampin and Tinidazole pulsed, also rife machine, KPU protocol, and maybe at the top of my list MMS.
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CD57
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Am glad to see this. I have had no lasting gains with treatment -- still have raging infection how is that possible? and am still searching.
Now I know to treat parasites (have ignored this), treating KPU now (but not with high dose zinc) and hopefully getting an O2 concentrator to help with the cognitive symptoms which my doc says is hypoxia.

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SForsgren
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No specific order. All guided by energetic testing.

Detoxification of many kinds (FIR sauna, herbal, homeopathic, etc.)
Herbal antimicrobials
KPU treatment
Emotional work

--------------------
Be well,
Scott

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mojo
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My rife and my sauna.
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treehousemom
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Great thread--thanks for all the wonderful input!!!
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hopeful4
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1. Getting a Lyme disease diagnosis after 5 yrs. of debilitating illness

2. Treatment by a knowledgeable, supportive LLMD

3. Integrative treatment with antibiotics, supplements, herbs, diet, detoxification. When able adding yoga, qigong, massage, reiki, acupuncture.

4. Treating underlying infections and hormonal issues.

5. Gluten free, sugar free, healthy diet.

6. Prayer, meditation, gratitude.

Can't say it was just one thing. Thanks for the great thread.

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GiGi
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Removing all metals from mouth. Removing all root canals and dental infections/cavitations caused by them.

Detoxing, detoxing, detoxing.

Decreasing the microbial count with plant adaptogens.

Allergie-Immun finished things off nicely - the real letting go of toxic metals and much more.

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tickled1
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For those that say detox could you please be more specific. Thanks
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hopefull
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Knowing 2 things:
That the LORD is the great physician
and
that I'm NOT crazy!

--------------------
diagnosed with fibromyalgia 1992
Lyme disease Jan 2011
give it all to the LORD everyday [Smile]

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unsure445
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Early on Bicillin injections, more recently Byron White herbs.

--------------------
unsure445

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Runner17
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Exercise!! Aerobic exercise, running, swimming, biking, hot yoga. I know aerobic exercise isn't for everyone, but it has really helped me keep the bacteria load down. I turned a major corner once I started running again.
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Tammy N.
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Happy to see this was bumped up again:)

I am going to go back and re-read.

My next steps are to learn more on methylation (I KNOW this is an issue for me, just not yet sure how to treat). It has become clearer with my recent (big) stumbles these last 2 weeks. And also emotional release work. Not sure who is best pro in this field, but I have some leads. Any suggestions are welcome.

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dan67
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up
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pomegranite
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1. IV Rocephin
2. Mepron
3. Yoga
4. Accupuncture

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nonna05
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what is ozone shots for teeth?

what do some of you mean by detox. I'm trying one now that most responded as being to hard on the /my body right now.

Those of you that say exercise, obviously aren't next to bed bound. So were you at one time and got better/or you never got so sick that you could hardly move?

Thanks, Nonna

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Tammy N.
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Hi Nonna,

Some good biological dentists work with Ozone. They do a few different things. The ones I have been to have you breathe a safe diluted version of ozone for 30 minutes. They also gently pump it into your ears for 3 minutes. The injections they do can be in and around the gums, cheeks, and sometimes neck areas. If there is a significant jaw infection, they will drill a tiny hole into the jaw and inject the ozone there. It is a very effective, comprehensive treatment. The approach I've described above is designed to knock the bugs out and not leave them many places to run. Also, treatments need to be repeated several times. A good bio dentist will guide you. Good luck.

Sorry you are close to bed-bound, but I believe with all my heart you have to do EVERYTHING YOU CAN to move your body so things don't stagnate. If you don't use it, you can lose it. Gather every bit of your strength to get up and move....preferably in the fresh air outside. Even if you just start by sitting in a chair moving your arms and legs, breathing deeply and fully. And walk when you can. You can do it. And you must, everyday.

Best to you.

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dan67
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Regarding being bedbound:

This is something that happened to me. I was getting more and more fatigued, herxing on three antibiotics, feeling like my body was going downhill. I wasn't close to being bedbound but was VERY tired and didn't want to exercise at all. Even mild exercise set me back.

One day some friends invited me on a hike. I felt the hike would kill me but I went anyway. It was a pretty big hike.

I felt horrible the whole time. But after the hike, amazingly, I was MUCH better! I felt better than I had in months. I think the aerobic activity detoxed me, cleared out tissues, got blood moving.

Dr. B says you can't recover without exercise.

I now believe that pushing myself is a good thing, that the obstacles need to be overcome and blood needs to flow and move.

Just my experience.

By the way I'm lifting weights again too now, which was hell at first but little by litte, I'm getting my body back.

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TerryK
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It took much more than one thing but here are some of the treatments that have been most helpful.

IM Ceftriaxone (generic rocephin) took 70% of my all over body pain away!

Methylation (active form of folic acid allows me to sleep more than a few hours at a time)

detox detox detox (cholestyramine, microsilica, pekana remedies and more)

parasites

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Tammy N.
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dan - well said. I agree..... and am finally putting in the effort. I do Qi Gong every day, but the more rigorous exercise brings about a totally different response.

After about 15+ minutes of walking my legs start to itch like crazy (they always have done this). Feels like something is definitely moving and becoming unstuck.

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tickled1
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OMG about the itchy legs! Mine have always done that too! Wonder what that's all about.
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Tammy N.
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Someone once said it could be lactic acid build-up, but I don't know for sure.

Once I commit to walking with regularity, I notice it stops happening. This, in and of itself, should be my reminder that I do need to do it consistently. I'm really working on applying myself here. And in inclement weather, I intend to use my rebounder.

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daisys
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Hopeful4, Hope you let me (almost) just quote you. I've tweaked a little bit just for the fit.

1. Getting a Lyme disease diagnosis after 40+ yrs. of debilitating illness

2. Treatment by a knowledgeable, supportive LLMD

3. Integrative treatment with antibiotics, supplements, herbs, diet, detoxification. When able adding pilates, massage, acupuncture.

4. Treating underlying infections and hormonal issues.

5. Gluten free, sugar free, healthy diet.

6. Prayer, meditation, gratitude.

Can't say it was just one thing. Thanks for the great thread.

Ditto! What Hopeful4 said...

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amk33
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My legs itch like crazy when I exercise, too. This only started happening after illness , for me. I actually feel worse after exercising. My sore muscles and joints act up for days, and the day after I am so tired, and generally, feel sick.
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sixgoofykids
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quote:
Originally posted by amk33:
My legs itch like crazy when I exercise, too. This only started happening after illness , for me. I actually feel worse after exercising. My sore muscles and joints act up for days, and the day after I am so tired, and generally, feel sick.

It stirs up deep stored toxins and bugs. This used to happen to me, too. I think exercise is essential to getting well BECAUSE it stirs this stuff up like this. Otherwise, you're just doing to store the bugs in the muscles forever. Just take it slowly.

--------------------
sixgoofykids.blogspot.com

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sixgoofykids
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quote:
Originally posted by nonna05:


Those of you that say exercise, obviously aren't next to bed bound. So were you at one time and got better/or you never got so sick that you could hardly move?

Thanks, Nonna

Yes, I was that sick. My husband would come home from work, get me out of bed and make me get dressed. We would go to the gym and I'd lift light weights. I'd have to lie down on the bench in between exercises. I'd lose track of what I was doing or had done, so my husband had to keep track of my workout.

I would not be well today without exercise. My exercise today and as I got better is different than my exercise when I was sick, but I never stopped "exercising" even when bedbound.

--------------------
sixgoofykids.blogspot.com

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MannaMe
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So you are saying to exercise, even if you can't do much of anything?

My husband has been treating fatigued adrenals for the past few years (only diagnosed w/ Lyme this summer) and hasn't been able to do much at all.

Even going up & down stairs nearly does him in at times.

Rebounding was not a good choice because of the 'tipsy' feeling. Just walking around in the house is hard some days.

If lifting weights is good - he could try that.

What are some good starter exercises? How many minutes at a time?

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JenInMa
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For my son, it was the diagnosis of CVID and subsequent IVIG. He still has a long way to go but now that his immune system is getting the support it needs, we're finally seeing a gradual improvement.

--------------------
IGG 41++, 58+
IGM 31 IND, 41 IND, 83-93 IND

Son (most chronically ill)
IGG 41+
IGM 39 IND, 41+++
Bartonella positive

Daughter
IGG 39 IND, 41++, 58+
IGM 31+, 41 IND, 83-93+

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sixgoofykids
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quote:
Originally posted by MannaMe:
So you are saying to exercise, even if you can't do much of anything?

My husband has been treating fatigued adrenals for the past few years (only diagnosed w/ Lyme this summer) and hasn't been able to do much at all.

Even going up & down stairs nearly does him in at times.

Rebounding was not a good choice because of the 'tipsy' feeling. Just walking around in the house is hard some days.

If lifting weights is good - he could try that.

What are some good starter exercises? How many minutes at a time?

Dr. B says in his guidelines to do strength training and stretching for an hour and to go as slow as you need to go to be able to do it for an hour.

--------------------
sixgoofykids.blogspot.com

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