LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash
Topic Closed  Topic Closed
Post New Topic  New Poll  
Topic Closed  Topic Closed
my profile | directory login | register | search | faq | forum home

This topic has been moved to Seeking a Doctor.     next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » I'm sick of my LLMD - who is the best?

   
Author Topic: I'm sick of my LLMD - who is the best?
Knight33
LymeNet Contributor
Member # 22028

Icon 1 posted      Profile for Knight33     Send New Private Message       Edit/Delete Post 
I've seen two LLMDs and have had severe cognitive impairment (absolutely no short term memory, extremely slowed cognitive function, brain fog, no concentration, etc), muscle twitches, dizziness upon standing, white tongue, and a drunk/altered/derealization feeling for almost two years now with no relief from treatment.

I've been on IV meds (almost 5 months), orals (10 total months), both, clean diet, exercise, detoxing, herbs, antifungals, everything I can think of. I had a really bad experience with my first LLMD who took me off antibiotics after two months. Then I went a whole year with no treatment until I went to another, who I've been with for about eight months.

He wants to take me off antibiotics because I have not responded at all. I've tested positive through igenex and cdc as well as a low cd57 which was just tested last week and was a 26 (through lab corp).

I feel that my situation calls for a top LLMD because I haven't responded to any treatment, I was most likely bit in Europe and have a european strain and/or coinfection, and I really believe my IQ has gone down by about 35 points. But most of all I think my situation is more than Lyme.

I'm scared I'm going to have permanent brain damage if I don't start seeing results soon. I tested negative for co-infections but have been treating bartonella for the last two months along with iv to no avail.

I'm willing to travel anywhere in the united states and pay any price to see one of the best LLMDs. I want a doctor who's up to date with everything and tests/treats every possible infection or virus that can go along with Lyme. (Candida, XMRV, mycoplasmas, all co-infections, viruses,even ccsvi procedure etc, etc, etc. (you see where I'm getting at?) Also, one who test with igenex and fry labs or any top lab for infections.

Really just a doctor who's known to cure or significantly treat patients who have not responded to previous treatment and know how to work with cognitive/neurological problems. The doctor doesn't necessarily have to be an LLMD neurologist just someone who knows how to treat bad cognitive problems.

I've had to postpone two years of graduate school because of my poor brain function and I personally don't think it's permanent damage and that I can get better but I need the right doctor. I'm sick of wasting time and money on doctors who treat half-ass and don't take their patients seriously. I just want to go to the top.

I'm willing to be put on a wait-list for a month or two but I also don't want a doctor who makes their patients be on a wait-list for 6+ months.

If anybody has ANY recommendation(s) please either send my a private message or respond. This is severely ruining my life. Please help.

Posts: 121 | From Houston, TX | Registered: Aug 2009  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

Icon 1 posted      Profile for Lymetoo     Send New Private Message       Edit/Delete Post 
Sorry.. but I have to move this to Seeking a Doctor.

Members.. please help him out !!

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 95672 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
   

Post New Topic  New Poll  
Topic Closed  Topic Closed
Open Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.