LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » Advice/Input appreciated on my Lyme treatment

 - UBBFriend: Email this page to someone!    
Author Topic: Advice/Input appreciated on my Lyme treatment
one4islands
LymeNet Contributor
Member # 28187

Icon 1 posted      Profile for one4islands     Send New Private Message       Edit/Delete Post   Reply With Quote 
I was diagnosed Western Blot by primary care dr. end of August.

No tick bite that I recall (mom says we did as kids) and never any rash.

Saw two ID drs. and Rheumatologist none convinced it was Lyme.

Because I cannot afford any top notch LLMD I am seeing a dr. who is new in treating Lyme patients.

He accepts my insurance.

I have seen my Lyme dr. twice end of November and in January.

Due soon for another two month follow up.

My lyme symptoms are nowhere near as bad as others, but I still am concerned with the care I am getting and how to beat the Lyme.

My biggest concerns in regards to my symptoms are the mixed words/typos and air hunger.

I mentioned the air hunger to my dr. in January and he blew it off.

I am seeing a rheumatologist this week as I was diagnosed with mild asthma in September.

My dr. believes in low dose abx with herbals, supplements and natural abx.

At present I am taking the following:
Lumbrokinase, Samento (alternating w/ Banderol) and 250 mg once a day of Clindamycin.

I also take chelated magnesium, R-lipoic acid, MSM, Ubiquinol CoQ10, Vit D3, Biotin, Zinc picolinate and krill oil.

I also take Florastor twice daily and a 50 billion count probiotic once daily.

I was on Zithromax for two months before the Clindamycin.

I am gluten and wheat free with little dairy and little sugar.

I have not felt anything that I felt like was a herx.

I experience my normal cycle of aches, pains and other symptoms that come and go.

I am able to function daily working two jobs and exercise most of the time.

I find myself getting fatigued when I sit and do nothing or when I lay down to take a power nap and have difficulty getting up-my eyes just won't stay open otherwise I can carry on until I sit and the energy ends.

I don't feel my symptoms worsening except for the air hunger and the ringing in my ears is getting more noticeable.

I feel some of my symptoms are coming less often.

I feel others are showing no improvement like the mixed words/typos.

I would appreciate any advice on what else I should be doing to get rid of the Lyme and sticking with this dr. as he is the only option I have now.

I have bought chlorella and olive leaf extract capsules, I just haven't found a way to get them into my body with everything else.

[ 02-21-2011, 02:59 PM: Message edited by: one4islands ]

Posts: 412 | From Virginia | Registered: Sep 2010  |  IP: Logged | Report this post to a Moderator
jackie51
Frequent Contributor (1K+ posts)
Member # 14233

Icon 1 posted      Profile for jackie51     Send New Private Message       Edit/Delete Post   Reply With Quote 
Sounds like you need treatment for Babs. Babesia is becoming more "popular" and perhaps you can find some articles to bring into your doctor. There was something recent in Self Magazine, do a search on this site.

Do you have Buhner's book on herbal remedies?

Posts: 1374 | From Crazy Town | Registered: Dec 2007  |  IP: Logged | Report this post to a Moderator
TF
Frequent Contributor (5K+ posts)
Member # 14183

Icon 1 posted      Profile for TF     Send New Private Message       Edit/Delete Post   Reply With Quote 
This doctor is putting you on one antibiotic at a time.

If you study the Burrascano Guidelines, this monotherapy is not what he recommends. Lyme has the ability to change forms, so it can easily change into a form that that one antibiotic cannot reach. Taking one med at a time will not kill lyme, in other words. I wasted 2 years doing that with a doctor who didn't know better. But, at least I was on high doses. I did improve some.

In addition, Burrascano only mentions clindamycin as being an old remedy for babesiosis (in combination with quinine). It had a high failure rate as a babs treatment, he says.

Burrascano does not mention this med as a treatment for lyme disease.

So, when you say your doc is new and gives low doses of antibiotics, you are telling us right there that his expertise level is low and his treatment is "low and slow." I would not expect much to happen with the type of treatment you have gotten from him so far. With low doses of meds, a person often does not herx.

Also, nearly everyone with lyme for at least 1 year has coinfections. If you don't treat them, you won't ever get rid of the lyme. These diseases all help one another stay in our bodies.

Babesiosis, for example, is believed to compromise the immune system. So, then you will never be able to fight off the lyme as long as the babs is not treated. And, lyme definitely compromises the immune system significantly after one year, so you can't fight off and get rid of any coinfections. This is all from the Burrascano Guidelines.

Sounds like your doc doesn't know much about babs.

I am sorry that you have no other alternatives right now.

Your supplements sound good.

Posts: 9931 | From Maryland | Registered: Dec 2007  |  IP: Logged | Report this post to a Moderator
Robin123
Moderator
Member # 9197

Icon 1 posted      Profile for Robin123     Send New Private Message       Edit/Delete Post   Reply With Quote 
I guess you will hear different things from all of us. Were you taking the clinda for Lyme? It's the only antibiotic that works for me and I herxed on it after a month.

I also have air hunger but no babesia. I think Lyme can diminish oxygen access in us as well.

I was able to affect the ear ringing by using a PEMF machine for 10 sessions. Google it - some chiropractors may have it.

It puts out electromagnetic pulses which boost the body's electromagnetic energy, aid in ion transport in all cells, reduce pain, help the nerves. It stopped all ear ringing for 6 hours at a time.

Posts: 13069 | From San Francisco | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
Camp Other
Unregistered


Icon 1 posted            Edit/Delete Post   Reply With Quote 
Robin123,

The PEMF machine is interesting... can you hear it while it's turned on?

I wonder what frequency it is set to...

IP: Logged | Report this post to a Moderator
one4islands
LymeNet Contributor
Member # 28187

Icon 1 posted      Profile for one4islands     Send New Private Message       Edit/Delete Post   Reply With Quote 
Yes, the Clindamycin is for the Lyme.

Prior to that I took two months of Zithromax.

I'm allergic to Tetracycline.

Posts: 412 | From Virginia | Registered: Sep 2010  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.