posted
sorry to hear of your pain Kerry. Don't lose faith, there are some good doctors left out there. Perhaps it's time for a switch if you haven't done so already?
My doctor in Montana takes my yeast concerns very seriously. When I tell her I feel like its acting up I get Diflucan for at least 2 weeks, and sometimes she gives me refills.
I'm not on ABX right now, but I am treating Babesia with herbs. Its a slow ride, but I do feel confident my doctor is not putting my health in further jeopardy by hammering everything out at once. She seems truly genuine.
posted
Kerry, I feel your pain. I have a terrible candida problem. I am angry that my doctor never mentioned anything about it in the beginning of my treatment. He never said anything about diet, so I wasn't terribly strict about what I ate. My diet has never been terrible, but I ate a lot of carbs to counteract the nausea that all the anitbiotics caused. There was no preventative in place except for diflucan 3 days per week. That wasn't enough to prevent this beast from taking over. He also didn't educate me on the proper probiotics. I was taking them, but they certainly were not the highest quality nor the right quanitity of bacteria needed.
I am now basically unable to treat with antibiotics because the yeast will rage even more out of control than it is now. I took diflucan for several months and that helped some, but I felt my body needed a break from it, so I stopped. Now I am on nystatin, which does makes me herx, but I don't know if it's as effective as diflucan.
I just don't know what to do anymore. Very depressing.
-------------------- "The simple things can get you through the hardest times." Posts: 628 | From Connecticut | Registered: Sep 2010
| IP: Logged |
[QB] Hi, I just had to respond to this old post. First, I want to thank Lymetoo for her "yeast" post that has helped thousands, I am sure. It sure helped me. I am still struggling with this but I wanted to share my story with this vicious illness.
About 3-4 months after started Mino and Levaquin for Lyme and Bart, it felt like medication stopped working or disease was overpowering the meds.
After MY research and seeing my LLMD who never diagnosed me with it. I told doc I believe I have yeast. He threw me script of Nystatin and out I went.
I still was on Mino but off Levaquin for doc's fear of "tendonitis" (least of problems). Then, out of nowhere, I come down with a case of hives, everywhere.
It was a clear sign of yeast but doctor had no idea, just told me to get off all meds. After, hives got under control after a couple of weeks, I went back on Mino due to joint ache and stiffness, unfortunately, I was unaware that I was herxing as the candida was flooding out of me.
Called office again and told them to put me on ani fungal. Nystatin did nothing. Extreme fatigue and depression took over.
I call office: again everyone's thinking it is Lyme worsening except me. Doc puts me on 10 day supply of Diflucan. 10 Days! On ABX!
Crazy, but it eased symptoms for very short time. Now, after losing time of treatment for lyme, I have to fight yeast. Worst than lyme. No one tells you this.
Doctor never warned me of yeast or gave me preventative medication. So, what does he do? Changes to stronger antibiotic: Biaxin and Plaquenil and Ketaconazole, three weeks later, I am vomiting.
I don't even call the office anymore. It takes days for them to respond. I leave a question on their machine and it never gets answered. I hate it there, it is all about money, these doctors don't care.
So, to end this: I felt okay after a few days of being off everything and then it was like someone hit me over the head. I wanted to go to hospital but I sounded so mentally unstable, they would have put me in psych ward.
I just told my husband and kids that I was dying. I have been prepping everyone since. For a month, I was in a herx. I took supplements for yeast and added more which made the herx even stronger.
After a month, slowly, I came out of this. Since then, I have had 2 more herxes or it is coming back, I don't know. All I can tell is when I start crying during the day for no reason I know I still have it.
Two days ago, I went back on antifungal (ket). I am sick of it not knowing whether it is coming or going. Fluid retention is on the symptom list. I have that on my one elbow, out of nowhere, it is bursitis.
Never hurt, never had issues with that elbow but fluid backed up and I read it could be from yeast overgrowth. Since I stopped all meds over a month ago, that has slowly decreased in size. Even more since beginning ketaconazole.
I can finally tell the difference between lyme and yeast. I blame my LLMD who apparently specializes in yeast, leaky gut, but failed to help me or my son who has it too. My llmd wanted to put me on IV Rocephin over this: I think if I chose that route, I would be dead right now for increasing the yeast.
It takes over your whole body, I can't even think, I thought I had ALS and MS due to trembling/shaking from anxiety. Without pain meds, Xanax, and regular Tylenol, I don't know how I would get through this.
Thank you for posting this. It should stay on your first page as Lyme patients need to be educated on this. I know a couple of patients that have been on ABX for years and insist they don't have a problem.
I tried to tell them....all I can do is tell them my symptoms. My son and I are traumatized and lost faith in medical professionals. This page should be posted in facebook as well! Educate! Listen to your body!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96238 | From Texas | Registered: Feb 2001
| IP: Logged |
posted
Thank you kerry for sharing. Wish I could write more, but I have severe neck pain right now.
I do wish more patients would pay attention to preventing yeast because, as you said, it is worse than having Lyme once it takes over the body.
I followed the diet strictly while on abx and took probiotics. But I didn't know that PB8 was virtually useless!! It only contains 7 CFU's per pill and I would take one or two a day!!
I agree that the joints can swell from the yeast. I get that too.
I hope you can get a handle on the yeast. Consider asking your dr for a script for VSL#3 DS ... all you pay is your copay .. so it's cheaper and it is TONS of CFU's!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96238 | From Texas | Registered: Feb 2001
| IP: Logged |
randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
can you buy diflucan without a prescription??
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
| IP: Logged |
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96238 | From Texas | Registered: Feb 2001
| IP: Logged |
GiGi
Frequent Contributor (5K+ posts)
Member # 259
posted
As long as you carry toxic heavy metals, yeast will remain a problem no matter how many probiotics and what kind you take. The toxic metals would kill us if the body did not produce yeast as a response to protect itself. It has very little to do with your diet. My experience and Dr. K.'s publication going back mid-90's, "Heavy Metals and Chronic Diseases". Toxic metals kill and the list of symptoms is identical to all other neurotoxins, no matter which microorganism/co-infections or other source produces them.
If you have become allergic to the metals, the body has problems releasing them. Allergie Immun solves all allergies.
Take care.
Posts: 9834 | From Washington State | Registered: Oct 2000
| IP: Logged |
posted
Lyme tu tu is the one to address any yeast issues. She was better than any doctor of mine. I tried PB8 and they did nothing. I am on VSL#3 DS for some months now due to Lymetutu's advice. My son is on it now too. There is nothing better than that product. I have heard so many different opinions about the diet, though. I have heard from doctors that "good carbs" are okay so I guess you just have to go with what your body tells you. I have had this yeast coming out of me while still eating a piece of bread, apple, bananas but no ABX. I don't drink, or smoke, I am just trying to survive. The doc's office did food allergy tests and egg whites was the only thing and I have been eating eggs all my life. No reactions. Probotics are for prevention only, not cures.
Lymetutu: Are you on ABX right now?
-------------------- 30 Supplements Awaiting new protocol Diagnosed 2nd time 9/08/2011 with positive western blot No co infection Posts: 74 | From Pine Island, NY | Registered: Sep 2010
| IP: Logged |
GiGi
Frequent Contributor (5K+ posts)
Member # 259
posted
"Probotics are for prevention only, not cures."
That is correct. However, the "prevention" will be ongoing, systemic damage from yeast continuing unless the detox of toxic metals, chemicals, molds is addressed in an effective way. For many, The body has lost the ability to regulate these substances and detox them unless the body is given the correct "information".
- NO, I haven't been for years now. My GI doctor messed me up last fall with some antibiotics and I was not on VSL#3 at the time. Big mistake I am still paying for.
Gigi... Pay for my Allergy Immune and I may consider it. I'll be a good guinea pig.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96238 | From Texas | Registered: Feb 2001
| IP: Logged |
payne
Frequent Contributor (1K+ posts)
Member # 26248
posted
EVERYONE HERE NEEDS TO READ THIS...POST by stymielymie its a little long, but, there is a huge part of recovery here.. up #2
posted
I want to know what Payne was trying to Post?? There is nothing there....Did I miss the post: Do you know, Lymetutu?
-------------------- 30 Supplements Awaiting new protocol Diagnosed 2nd time 9/08/2011 with positive western blot No co infection Posts: 74 | From Pine Island, NY | Registered: Sep 2010
| IP: Logged |
payne
Frequent Contributor (1K+ posts)
Member # 26248
posted
kerry, just the entire post above by stymielymie.. when we up something it gets moved to first in topic post for attention.
-------------------- TULAREMIA/rabbit fever ? Posts: 1931 | From mid-michigan | Registered: Jun 2010
| IP: Logged |
posted
Kerry, I think PAyne was just trying to bump the post up for others to read...
-------------------- Down on her knees, she wept on the floor. This hopeless life, she wanted no more. Dead in the mind and cold to the bone, She opened her eyes and saw she was alone. ~Seether Posts: 427 | From Rhode Island | Registered: May 2011
| IP: Logged |
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96238 | From Texas | Registered: Feb 2001
| IP: Logged |
Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
Thanks for the bump up!!!!
Been trying to figure out what I could safely use to fight yeast!!!
Silverwolfi here
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
| IP: Logged |
Ellen101
Frequent Contributor (1K+ posts)
Member # 35432
posted
This came at a great time for me. I would have continued to stay on Lyme treatment when what I am dealing with right ow is out Lyme, but the mess it left behind.
Posts: 1748 | From United States | Registered: Dec 2011
| IP: Logged |
droid1226
Frequent Contributor (1K+ posts)
Member # 34930
posted
crazy. my first bad symptom was/still is a very bloated stomach, so bad it was hard to breathe. but i also have specific lyme sx's like terrible leg pain and muscle loss. yeast can't be the cause of that. i did test pos for candida albicans
posted
Thanks Dave, I haven't been active for a spell so glad to hear from you.
Al
CT, now in FLA, (Got tired then retired)
Posts: 789 | From CT, | Registered: Jun 2006
| IP: Logged |
Catgirl
Frequent Contributor (5K+ posts)
Member # 31149
posted
Love this post. I remember reading it last year. I just want to add my two cents to help those still suffering. I have had MAJOR yeast issues ever since I went on abx.
I tried absolutely everything to get rid of it. Like many here, I wasn't given enough probiotics when I started on abx. But, I had yeast prior to getting abx, I just didn't recognize the signs. Looking back, every single time I got bit (that I'm aware of), I craved sugar like a fruit fly on crack. You couldn't keep me away from it. I became absolutely addicted to cookies and cakes. Each tick bite, it was something different (a new sweet).
I have tried Burrascano's anti candida diet, diflucan, nystatin, every single anti yeast herb and product out there. You name it, I've done it. All of these help. Rest too. Aside from all of this, I have to say, Gigi is spot on (heavy metals).
I recently started removing my amalgams and my yeast got better. Each time I get some removed, my yeast gets better. This alone was worth the expense and worry of removing them. I wish I had listened to Gigi 2 years ago. I wasn't ready back then though. My mind wasn't open to it.
I have also been working on parasites. There is a heavy metal and parasite connection to the yeast. Gigi's babushka principle explains this (search). Looking back with the sugar cravings and all, I'm convinced some parasites came with the tick. I started treating parasites last year. I can now eat things that I couldn't eat before thanks to working on both heavy metals and parasites. Not a lot, just a little (some fruit, potato chips, gluten free bread and pizza). I still have more amalgams to replace. Once they are all done, then I can start working on detoxing heavy metals.
If you really want to make an impact on yeast, I would listen to Gigi and Gael. Heavy metals and parasites have been at the heart of my yeast problem. Of course everyone's advice above is helpful too, but if you truly want to kill the yeast beast within, go after the source of the yeast: parasites and heavy metals. They're in you whether you test positive or not. If you breathe air or live on the planet, you have parasites. Like the western blot, these tests are fallible.
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
| IP: Logged |
posted
And THIS is my biggest fear of aggressive Abx treatment. I know i have a systemic yeast problem. It is everywhere! In fact before we had thought of lyme, my naturopath was treating me for yeast. He said i was a very bad case...and it can get rough real quick. I had been on abx for aut three months due to a dental infection...and i got sick with the yeast.
Many docs will think only in terms of oral or vaginal...obvious yeast signs and think the rest is a crock. But i experienced the difficulty breathing, extreme fatigue, chemical smell sensitivity etc. I was fortunate to be working with a chiro whose mom almost died of candidiasis. She had been givien two weeks and another chiro said..here is the one thing you might could do as last ditch effort. No one knew what was wrong with her. She just couldnt breathe. This man worked with her doc to get her off unnecessary meds, candida strict diet, she even showered with a special water filter. She is alive and well today. So i began to tell him the symptoms of candidiasis without even knowing it. I resisted this diagnosis for a while...but once i went on the diet, it took a couple of months and i was much better. I followed it very strictly. If i ate candy, the next day was automatic thick breathing. At that point, i would have done just about anything. Regular docs make me feel crazy if i say this happened to me. He said people called his mom crazy, but her breathing was so bad she slept on the driveway. Its real and i have no idea why mainstream can not understand.
Now i have a maybe lyme diagnosis, positive igm, negative igg...and many of the symptoms. I am having to take abx now to just stay afloat. Mainly issues with pain in my teeth, head and neck.
I have an appnt with an llmd but i just know my body can not handle the yeast so i feel like i cant win for losing.
I am going to try the probiotics lymetoo mentioned. I take a different now. I do need some options for the oral yeast. I am having major dental issues...and i am strting to wonder if it is more yeast related than bacterial, but abx makes it better.
Dr. b discusses chewable acidopholus...can you get that otc?
Posts: 66 | From Memphis | Registered: Feb 2013
| IP: Logged |
posted
Ironically, I looked at this thread cuz of babs and Malarone withdrawal. I began my Lyme journey w/Candida. In 'Feb. '12 (after Valentine's Day!) I noticed my head/eyes drooping during conversation. Never one to be fatigued unless sick, I knew something was very wrong. I also had a strange stench in my nose that only I could smell.
After 26 yrs. of disabling pain and various sxs, I was finally dx'd Bb 6/12. At this point I'd been on a strict Candida diet along w/Diflucan for several mos., as well as a strong dose of Nystatin. I began abx for Lyme, then Lymetutu said it sounded like I had babs and that I MUST treat immediately. I asked my Dr. to treat, she put me on Malarone 3 pills bid. The 1st week I was so very, very sick from it: short of breath, extreme nausea, etc. my doc had me do an ultrasound for gall bladder. I had to go off of Mal. cuz I couldn't handle fat. After gb removal I went back to Mal. high dose.
It helped my middle back pain and returned my voice (which had been gone for most of a decade). I was on it for 6 straight mos. I've just asked to go off of it cuz of extreme nausea and the stench which has worsened. My LLMD suggested I go off of Mal. for a few days and see what happens. I've been off since last night (missed 3 doses now). The nausea has been a bit better, but the stench is horrendous, and my stomach/digestion is awful.
I'd always leaned toward constipation, now I'm having 2-4 loose stools/day. It's messy and depleting, and I never feel quite right. I'm thinking it may be yeast, although I've remained on a VERY strict diet (even stopped fruit for a couple mos.), no sugar, yeast, vinegar, etc. since Feb. '11. After reading Stymie's post I'm thinking I need to address the yeast once and for all.
I had my fillings removed in '89 which got me up out of a wheelchair- had been very careful w/metals since, but tested positive for lead. Have been on DMSA for that since last April.
I'm afraid of stopping the Mal. before the bugs are gone, but I know that it encourages yeast growth too. I have written to the group at large since I managed to finally re-register when it kept spewing me out after the site change. I've never gotten any response. Sitting at the computer is hard for me (pain), I can't get the group on my phone or I would.
My husband and I are both on this tx w/this LLMD. I think he has yeast too but won't admit it. We've both lost lots of muscle, we look like scarecrows!
Anyway, I'd like to know these things: 1. Does anyone else deal w/a stench in the nostrils which worsens w/extra carb intake?
2. Do you think that babs can be removed with yeast in the system?
Please address the group and PM me if possible so I can read responses through Email.
cmomlq
Cipro 500mg bid Azith 500/day Ketoconazole bid Gris-Peg/day (anti-fungal) Methylation genetic problem- can't digest foods On allergy drops for: Candida, T3, Molds- all 7 (live in mold-free house now), Trees/weeds 7 food allergies including cane sugar
Posts: 8 | From NV | Registered: Feb 2013
| IP: Logged |
posted
Keeb.. Did you intend to put this info on a thread about yeast?
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96238 | From Texas | Registered: Feb 2001
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Yes.
As I read it, the article seems to say that by ingesting so many foods treated with RoundUp (or taking it into our bodies in other ways) - it's harder for the gut to manage its internal balance.
Did I not read the article correctly (?) as it sure seems connected to yeast infections to me but I'm so dizzy all the time that I'm not always sure I see things right.
But this quote seems to say it all:
"The researchers stated that "A reduction of beneficial bacteria in the gastrointestinal tract microbiota by ingestion of glyphosate could disturb the normal gut bacterial community." (end excerpt). -
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
posted
Hi Cmomlq: I did not have a stench in the nose but definitely burning on my tongue that increased greatly with carb intake. I would have to say, I wonder on the other question you have. As it seems that until I got candida under control, lyme was much easier to beat as well as babesia. And before that... I had tried for years. So I think you might be on to something there...
Have you heard of the gaps diet-- that helped me immensely, heal the gut (seal it as I had leaky gut I think from yeast) and kill the yeast- you basically starve it on this diet and eat good probiotics that help replenish the good bacteria. That was a huge turning point for me...
posted
LOVE this post! It dawned on me yesterday that I'm feeling the yeast again since back on abx. I was on a break for over a month, treating parasites and feeling not as sick until a major herx with salt/c. I restarted abx thinking I need to follow my doctor's orders. Now I can feel the itchiness, more aching, depression, worse fatigue, terrible brain fog, etc. I've been panicking wondering what should I do... Is it a herx, is it the laser, is it from abx, etc. You know how our mind goes crazy trying to figure out what the heck is going on with us and what we should do. Then YEAST came strongly to my mind. Thank you for this post!
Posts: 463 | From Sandusky, Ohio | Registered: Jan 2012
| IP: Logged |
phyl6648
Frequent Contributor (1K+ posts)
Member # 28522
posted
Gee, interesting but a lot to process.. To get an rx or try natural and diet.. or both?
Posts: 1058 | From VA | Registered: Oct 2010
| IP: Logged |
phyl.. Personally, natural has never worked for me. DEFINITELY do the diet.. a MUST .. and ask for Nystatin and some Diflucan.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96238 | From Texas | Registered: Feb 2001
| IP: Logged |
randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
Why don't drs recognize yeast?
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
| IP: Logged |
TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
randi, my guess is because it is not taught in med school. You know, they only believe it exists if it is taught to them.
It takes personal experience to change that. My dentist believes in yeast and tells his patients to take probiotics any time he gives them an Rx for antibiotics. He recognizes yeast in the mouth and sells probiotic losenges to combat it.
His father died of c diff. I think that is what taught him.
Posts: 9931 | From Maryland | Registered: Dec 2007
| IP: Logged |
Bartenderbonnie
Frequent Contributor (1K+ posts)
Member # 49177
posted
I pulled up this oldie-but-goodie thread because I m researching Candida, which I now have.
I have been taking nystatin and I pulse flagyl on weekends.
I just got new script for difiucan.
Has anyone taken these together ?
Should I go off antibiotics totally till I get yeast under control ?
I also take 3 probiotics 2x a day purchased from LLMD office.
P.S. I make my detox and antioxidant nutrabullet shake every morning with cilantro, garlic, carrot, ginger, Apple, blueberry, orange juice, spinach, and water. Apparently, fruit is a big No No ?
Posts: 3075 | From Florida | Registered: Nov 2016
| IP: Logged |
TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
Fruit contains fruit sugar so it feeds yeast. Orange juice is a lot of sugar for sure.
Bread, crackers, pasta, potatoes, cereal, etc. all turn into sugar as they are digested, so none of these are allowed either.
Basically, you can eat meat and all non-starchy vegetables and that is it. (Plus eggs, nuts, seeds, and dairy.) So, you can eat quinoa since it is a seed. Substitute it for rice or pasta.
See pages 34-5 of Burrascano for the proper diet.
You can eat all the lemons, limes, and grapefruit that you want.
Flagyl will cause candida, period.
Also, note Burrascano's flagyl precautions on page 15.
If you can see the candida in your mouth, then cleanse your mouth as per Burrascano p. 34. You can use peroxide and water to do the cleanse. Half water and half peroxide.
Be sure to open a probiotic capsule and sprinkle it in your mouth after the cleanse and rinse with water. Let the probiotic remain on your tongue until it totally dissolves. That could take 20 minutes or more.
The idea is to kill the candida in the mouth because otherwise it goes into the stomach with each swallow.
After killing it in the mouth, it will be the first to grow back, so you sprinkle with the probiotic to encourage those flora to grow right away.
As long as you are on flagyl, you can't cheat on the diet one single bit. And be sure there is no alcohol in any mouthwash, etc. that you use. This could cause a horrible reaction like antabuse. See it discussed on p. 15.
Candida symptoms can make you as sick as lyme and company. So, try to keep it under control as much as possible while you are treating.
If it gets too out of hand, the doc may stop your treatment to treat it. Hope you don't have to do that. Most lyme docs try to keep it under control as they treat you. It can be tough once you get it, so it is best to avoid getting it at all.
That said, it is hard to avoid getting it while on flagyl.
Burrascano says to drink some kefir (plain, unsweetened) daily. My lyme doc had me do that. It is a great probiotic. My doc also had me make fermented cabbage as in the Body Ecology Diet. I had to eat a few spoonfuls of that daily also.
These are other types of probiotics that will help maintain/restore your gut flora.
Keep a tight rein on this as best you can.
Posts: 9931 | From Maryland | Registered: Dec 2007
| IP: Logged |
TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
You can take diflucan daily to try to kill off the yeast. You can take it along with your antibiotics. I don't know but I think I would stop the nystatin while taking the diflucan.
I hope your nystatin is the pills. If it is a liquid, that is NOT sugar free.
Posts: 9931 | From Maryland | Registered: Dec 2007
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[Razz]](tongue.gif)
![[lol]](graemlins/lol.gif)
![[group hug]](graemlins/grouphug.gif)
![[Big Grin]](biggrin.gif)
Printer-friendly view of this topic