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» LymeNet Flash » Questions and Discussion » Medical Questions » I'm so afraid of rifampin...

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Author Topic: I'm so afraid of rifampin...
Nicole2011
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I know im going to have to start taking it sooner or later for this Bart but i've heard terrible stories about it.. It makes my stomach turn whenever i think about taking it... Why does it cause so much (mental) discomfort?

--------------------
Neuro-Lyme (possible bart)
Symptoms started Jan 2011::Diagnosed Feb 11th,2011::
*Anything is possible thru God who strengthens me*

Posts: 775 | From Pennsylvania | Registered: Feb 2011  |  IP: Logged | Report this post to a Moderator
17hens
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I loved it.

The first three weeks were rough but I expected that so it was tolerable.

I felt down and anxious but after that it was so worth it.

It helped me feel SO much better!

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"My flesh and my heart may fail, but God is the strength of my heart and my portion forever." Psalms 73:26

bit 4/09, diagnosed 1/10

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Nicole2011
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Was the herx really bad, like did it intensify your depersonalization alot?

--------------------
Neuro-Lyme (possible bart)
Symptoms started Jan 2011::Diagnosed Feb 11th,2011::
*Anything is possible thru God who strengthens me*

Posts: 775 | From Pennsylvania | Registered: Feb 2011  |  IP: Logged | Report this post to a Moderator
Deb133
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My daughter has been on it two different times in the past 2 years with no problems no side effect and barely any herxing.

So far her Rifampin was NO problem whatsoever.

Good luck,

Deb g

Posts: 499 | From Malta, NY | Registered: Dec 2008  |  IP: Logged | Report this post to a Moderator
Nicole2011
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@Deb- How old is your daughter? & has it helped her at all?

--------------------
Neuro-Lyme (possible bart)
Symptoms started Jan 2011::Diagnosed Feb 11th,2011::
*Anything is possible thru God who strengthens me*

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lyme in Putnam
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Bad move For me.

--------------------
He took u to it, He'll you through

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Haley
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for me the depersonalization was much worse at first. It took a couple of months before it got a bit better. That's just my experience.
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17hens
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If depersonalization means feeling like I have no feelings then yes. It also brought back depression and anxiety.

But again, knowing what to expect helps and you can get thru anything if you believe it is a hope for something better.

--------------------
"My flesh and my heart may fail, but God is the strength of my heart and my portion forever." Psalms 73:26

bit 4/09, diagnosed 1/10

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Nicole2011
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@17hens- By depersonalization, i mean the feeling of being invisible & feeling sort of unreal, like your living in your head

--------------------
Neuro-Lyme (possible bart)
Symptoms started Jan 2011::Diagnosed Feb 11th,2011::
*Anything is possible thru God who strengthens me*

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AnnaOD20
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I have been on Rifampin since Jan 1 and was worried too but have really had no problems on it. I am less a fan of Flagyl (which I am doing OK on now) and Ceftin (feels like I am swallowing poison). I didn't herx or have any side effects from Rifampin! Good luck!
Posts: 376 | From New York | Registered: Jan 2011  |  IP: Logged | Report this post to a Moderator
Nicole2011
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okay well its good to hear not everyone has a bad experience from it [Smile]

--------------------
Neuro-Lyme (possible bart)
Symptoms started Jan 2011::Diagnosed Feb 11th,2011::
*Anything is possible thru God who strengthens me*

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kidsgotlyme
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My daughter has been on it for six months and is doing fine on it.

Her brain fog has went away and that's always a positive. She hasn't complained of any negative side effects from it.

I think that at some point everybody finds that ONE drug that makes them feel awful. Doxy has been really hard on my daughter.

She hasn't felt well at all in the last two months since she has been taking it. It's just so different for everyone.

--------------------
symptoms since 1993 that I can remember. 9/2018 diagnosed with Borellia, Babesia Duncani, and Bartonella Hensalae thru DNA Connections.

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Sheryl777
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I had the most severe headaches of my life the first few days on rifampin but I didn't even mind because I knew what it was doing. 1+ month later I'm doing better.
Posts: 258 | From Spokane, WA | Registered: Oct 2008  |  IP: Logged | Report this post to a Moderator
Tammy N.
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I had no problems with it at all.
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bigstan
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Why worry about it if your not yet on it. Heck, the No 1 fighter against Bart is Levaquin not Rifampin an older antibiotic.

Now your going to hear the people talk about Levaquin and tendon ruptures. My point is you can't worry about meds and what people say. We are all different and react differently then others.

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HERX is a Four Letter Word!

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Katrina
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I would not worry so much. Rifampin caused a headache for me at first but it in time resolved.

Also, you may want to consider increasing the dose gradually. That was so helpful to me and helped me get adjusted to the drug. At first I took 300mgs per day. Then 450mgs day and after that I went to the full 600mgs daily.

It was very helpful!

Katrina

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raw vegan runner
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Ha! I am the opposite of you...I can't wait to get on it! I did doxy and though it helped tremendously, the first 2 weeks were the herx from hell and then by about month 3-4 I felt like I had swallowed a bowl full of glass shards and I would get a sunburn after being outside for 10 mins. on a cloudy day. In December. In New England.
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blinkie
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Rifampin was the easiest drug I have taken and I've taken more than you can imagine.

The first time i did rifampin with bactrim and got to remission.

The second time I did it in IV form with IV levaquin. Not problems.

Good med...don't fret...for as many nightmares as you read about there are at least as many good stories.

Posts: 1104 | From N.California | Registered: Jan 2008  |  IP: Logged | Report this post to a Moderator
   

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