LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » Meds-Who pulses, who takes non-stop?

 - UBBFriend: Email this page to someone!    
Author Topic: Meds-Who pulses, who takes non-stop?
beths
Frequent Contributor (1K+ posts)
Member # 18864

Icon 1 posted      Profile for beths     Send New Private Message       Edit/Delete Post   Reply With Quote 
i was thinking of going to Dr J for a 2nd opinion. I see his pts only take meds MWF, 3 out of 4 weeks.

How many of you pulse, and who takes their meds non-stop? I think high dose pulsing is becoming more popular

Posts: 1276 | From maryland | Registered: Jan 2009  |  IP: Logged | Report this post to a Moderator
desertwind
Frequent Contributor (1K+ posts)
Member # 25256

Icon 1 posted      Profile for desertwind     Send New Private Message       Edit/Delete Post   Reply With Quote 
Great question

I have done both. Early on I did full time and then went to pulse too soon and relapsed.

After about...6 years of off and on tx including IV with the paast year of full time low dose I am now on a pulse schedule and doing great.

4 days on and 3 days off. My body seems to be responding very well to pusling and my immune system seems to be waking up and doing some work on its own - which is one of the goals of pusling.

Another benefit for me has been a decrease in yeast issues doing pulse tx.

Posts: 1671 | From Tick Infested New Jersey | Registered: Apr 2010  |  IP: Logged | Report this post to a Moderator
triathletelymie
LymeNet Contributor
Member # 26456

Icon 1 posted      Profile for triathletelymie     Send New Private Message       Edit/Delete Post   Reply With Quote 
Nonstop eleven months straight for me...both IV and orals...but no real improvement...

--------------------
? date of bite/no rash
10/09 symptoms, 4/10 diagnosed, after 6 mos. ER visits, tons of docs/tests
CDC+ 23/39/41/45/58/66/93
currently on oral plaquenil, doryx, rifampin, pyrazinamide, nystatin, numerous supplements

Posts: 718 | From Pennsylvania | Registered: Jun 2010  |  IP: Logged | Report this post to a Moderator
baileypup
LymeNet Contributor
Member # 22824

Icon 1 posted      Profile for baileypup     Send New Private Message       Edit/Delete Post   Reply With Quote 
Non-stop for me, but that is mostly for babesia, and that shouldn't be pulsed (per Dr. B's guidelines).
Posts: 964 | From san diego | Registered: Oct 2009  |  IP: Logged | Report this post to a Moderator
beths
Frequent Contributor (1K+ posts)
Member # 18864

Icon 1 posted      Profile for beths     Send New Private Message       Edit/Delete Post   Reply With Quote 
Dr J pulses even for babesia

[ 03-18-2011, 03:29 PM: Message edited by: beths ]

Posts: 1276 | From maryland | Registered: Jan 2009  |  IP: Logged | Report this post to a Moderator
paulieinct
LymeNet Contributor
Member # 17514

Icon 1 posted      Profile for paulieinct     Send New Private Message       Edit/Delete Post   Reply With Quote 
After 2 1/2 years of continuous abx, I am now taking one day off every week. On that day I only take probiotics, LDN, some supplements. I will probably be increasing this to two days a week.

Furthermore, on my ON days, I pulse my antibiotics thusly: zith and penicilin on MTW, and zith, omnicef and fluconazole on TFS.

I am hoping to eventually get to taking abx three days/wk, with four days off.

--------------------
Sick since at least age 6, now 67. Decades of misdiagnosis. Numerous arthritic, neuro, psych, vision, cardiac symptoms. Been treating for 7 years, incl 8 mos on IV. Bart was missed so now treating that.

Posts: 765 | From nw ct | Registered: Sep 2008  |  IP: Logged | Report this post to a Moderator
RESOLVED.
LymeNet Contributor
Member # 24991

Icon 1 posted      Profile for RESOLVED.     Send New Private Message       Edit/Delete Post   Reply With Quote 
Been pulsing for the last two weeks with what appears to be continued improvement.....although very slow.
Posts: 246 | From south florida | Registered: Mar 2010  |  IP: Logged | Report this post to a Moderator
sbh93
LymeNet Contributor
Member # 30429

Icon 1 posted      Profile for sbh93     Send New Private Message       Edit/Delete Post   Reply With Quote 
Haven't started IV, but the plan is that when I do it will be two days a week... so I am also interested in more replies to this question and especially anyone on fewer days.

It seems like most who pulse do 3 or 4 days/week and I'm wondering if 2 days/week will have any benefit at all.

Also, when you pulse, do those days have to be in a row?

--------------------
------------
It took 20 years to find out I'm not crazy.
New bite in 2010 pushed my body over the edge. Positive for lyme, babs, bart, and myco.
I am not a doctor and happily offer only my own opinions.

Posts: 357 | From The Beach | Registered: Feb 2011  |  IP: Logged | Report this post to a Moderator
VB
LymeNet Contributor
Member # 16824

Icon 1 posted      Profile for VB     Send New Private Message       Edit/Delete Post   Reply With Quote 
up... who else pulses?
Posts: 453 | From TX | Registered: Aug 2008  |  IP: Logged | Report this post to a Moderator
nefferdun
Frequent Contributor (1K+ posts)
Member # 20157

Icon 1 posted      Profile for nefferdun     Send New Private Message       Edit/Delete Post   Reply With Quote 
I tried it last June on my own when I was feeling better. I was on Bactrim DS and zithro. I was taking three days off, four days on.

I plunged in one month and could not regain momentum. I went to an LLMD who put me on Mepron/zithro and have been on it continuously since late November.

--------------------
old joke: idiopathic means the patient is pathological and the the doctor is an idiot

Posts: 4676 | From western Montana | Registered: Apr 2009  |  IP: Logged | Report this post to a Moderator
beths
Frequent Contributor (1K+ posts)
Member # 18864

Icon 1 posted      Profile for beths     Send New Private Message       Edit/Delete Post   Reply With Quote 
^
Posts: 1276 | From maryland | Registered: Jan 2009  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.