posted
Over the last two years my 12 yo son has had many strange complaints. I never really gave it much thought but the more complaints he has I'm wondering now if I should consider Lyme? He was with me several years ago when I was bit. Could be paranoia.
This winter he had to sit out of basketball, a sport he loves, due to severe heel pain. He was diagnosed with Severe's disease and has been going thru physical therapy.
Most recent he started complaining of lower back pain.
He has a flat red circle on his forbear similar to the peticia I have on my body since becoming ill.
He has small warts all over his back called mulluscum contagium or something like that. We've been battling for a year.
He's very emotional, had a hard time getting to sleep, and is anxious / nervous.
Does this all sound like a possible case of Lyme and we just didn't see the bite?
He also gets scabby spots on his scalp.
Your thoughts appreciated. Thank you!
Posts: 124 | From Indiana | Registered: Oct 2007
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posted
Please get him into a llmd right away. My youngest had heel pain that affected his tennis game. All of my kids had anxiety and nervous issues as well as trouble concentrating on school work. My older two kids started showing symptoms right around puberty. A lot of other mothers have noticed this too. Good luck...
Posts: 303 | From green bay, wi | Registered: Mar 2009
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bcb1200
Frequent Contributor (1K+ posts)
Member # 25745
posted
Sounds like Bart and / or lyme.
-------------------- Bite date ? 2/10 symptoms began 5/10 dx'd, after 3 months numerous test and doctors
IgM Igenex +/CDC + + 23/25, 30, 31, 34, 41, 83/93
Currently on:
Currently at around 80% +/- most days. Posts: 3131 | From Massachusetts | Registered: May 2010
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ktkdommer
Frequent Contributor (1K+ posts)
Member # 29020
posted
Yes, I would definitely consider Lyme. Wish I had known 3 years ago how Lyme affects the muscles and bones. I once had an athletic soccer player before Lyme. He is getting there slowly. Psyche issues were huge for him following a virus. It is amazing all that Lyme does to our bodies. Best of luck,
-------------------- Things are never dull. After 3 fighting Lyme, 2 are in remission. Youngest is still sick, age 22. He has new diagnosed Chiari Malformation and Ehlers Danlos Syndrome. Posts: 1366 | From Perrysburg, Ohio | Registered: Nov 2010
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You don't know that, those symptoms could very well be lyme-related. I think getting him into a doctor who can look at this objectively is the best answer.
I can't figure out what you mean by his "forbear", but Lyme and co-infections (especially Bartonella, I think) can cause odd rashes. You can probably google "Bartonella rash" for pictures.
Posts: 340 | From san francisco, ca | Registered: Nov 2010
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t9im
Frequent Contributor (1K+ posts)
Member # 25489
posted
I would not rule it out. This is part of the story with my daughter (now 11).
At the least I would run the tests via IgeneX or if you can't afford IGeneX make sure you request the band readings in advance.
-------------------- Tim Posts: 1111 | From Glastonbury, CT | Registered: Apr 2010
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tick battler
Frequent Contributor (1K+ posts)
Member # 21113
posted
YES - my 3 young children were infected and the emotional behavior is a huge sign. The other symptoms sounds like lyme as well. Be careful not to rely on blood tests...they are notoriously inaccurate. I would go to an experienced LLMD and keep researching...there are probably more symptoms that you don't even realize are symptoms.
nybasketball - why do you always steer people away from lyme? You should know by now that just because people don't have YOUR symptoms, doesn't mean they can't still have lyme. There are close to 100 symptoms. I suggest you read some symptom lists.
Exactly my point, there are over 100 symptoms. All non-specific. If you name literally any combination of symptoms you could say "oh that's lyme!"
Many people on here have what I've referred to before as "lyme goggles." Not every illness in the country is Lyme, contrary to what many believe on this site. Many people who are not getting better have something else that is also going on. But, they wrongfully attribute everything to Lyme, which is why many keep treating and treating and treating with not much results.
Thanks for your suggestion to "read more symptom lists," but I'm well aware of all the symptoms.
karenl
Frequent Contributor (1K+ posts)
Member # 17753
posted
Start with a good LLMD. The skin findings like warts can also be from parasites and red dots from cpn (cpnhelp.org). The LLMD should also test cpn antibodies. He definitely has something.
Posts: 1834 | From US | Registered: Oct 2008
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tick battler
Frequent Contributor (1K+ posts)
Member # 21113
posted
ny- do you have young children with lyme so you can speak from experience? Please share with me how you gained your wealth of knowledge and experience with this disease complex? How many years have you been researching?
To tell someone to go run a few tests to rule out lyme with no explanation of their inaccuracies is not good advice in my opinion. And unless you have children with this disease or are in the business of treating lyme, you frankly have no idea how children display lyme symptoms.
tickbattler
Posts: 1763 | From Malvern, PA | Registered: Jul 2009
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I have plenty of personal experience dealing with this disease, thanks. Could he/she have lyme? Maybe. Is it likely? Absolutely not.
The reason why health professionals don't take the Lyme controversy seriously has a lot to do with people like you who would treat everyone with a symptom.
Literally with almost ANY single doctor's appointment after the patient tells there symptoms you could say Lyme. What do you suggest? It's simply just not always lyme.
Especially with the people here who have been treating forever with not much improvement, put two and two together. If you're still ill after a year or years of treatment, you're obviously missing something. Could that something have been triggered by lyme? Absolutely, but persistent antibiotic treatment with no results is not the answer anymore for these people.
Posts: 306 | From NY | Registered: Sep 2010
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I thought I might sound a bit paranoid but we were all very happy, healthy and a very active until I got sick. Now it seems that we (me, my 12 yo son and my 10 yo daughter) are all having weird symptoms. They are so young and should be enjoying life.
I believe I will talk to their doctor and see if I can get some tests ran.
Thanks again and God Bless.
Posts: 124 | From Indiana | Registered: Oct 2007
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tick battler
Frequent Contributor (1K+ posts)
Member # 21113
posted
Michele, Sorry to hear this. I went through the same thing with my family of 5. All of us are infected. None had bulls eyes. I found ticks on myself and my children but my husband never saw one on himself.
It came on slowly and subtly and I had to figure it out myself because no mainstream doctor knew anything about lyme. My pediatrician would tell me that "kids sleep a lot with lyme." Well, mine had insomnia! And then my husband developed insomnia as well after never having a sleep problem in his life.
2 of my 3 children had negative Igenex tests prior to treatment. One only showed band 41 on Igenex. The other had lyme specific bands and then later, after antibiotic treatment, got a positive lyme test. My daughter never had a positive test but later had positives for babesia and bartonalla, so that was confirmation of lyme. They are all doing so much better now...we think the coinfections are gone and there may be a small bit of lyme left.
It is very common for entire families to get ill with lyme because you have similar genes which may be more susceptible to a chronic infection, and you are in the same environment.
I hope you get some answers soon.
Best,
tickbattler
Posts: 1763 | From Malvern, PA | Registered: Jul 2009
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jackie51
Frequent Contributor (1K+ posts)
Member # 14233
posted
Sounds like Bart too. Good luck.
No, not everything is lyme. Yet, if a parent's instinct says lyme, it must definitely be ruled out by a knowledgeable LLMD, IMHO.
Much too often children's symptoms are dismissed. There are LLMD psychiatrists that feel ALL adhd kids should be tested for lyme. I couldn't agree more.
Posts: 1374 | From Crazy Town | Registered: Dec 2007
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