posted
I respond amazingly (greater cognition/focus/concentration, less fatigue) to very low doses of nuvigil (even <10 mg) which makes me believe that I have impeded cerebral blood flow.
besides nuvigil and maybe ginko, what are good ways to try to resolve this symptom in the long term? Exercise? I'm also on a low-gluten/almost GF diet.
Thanks,
Stork
-------------------- long road since 2010 abx got me over the hump diet, detox, and herbs have got me to heal Posts: 174 | From CT | Registered: Jan 2010
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joalo
Frequent Contributor (1K+ posts)
Member # 12752
posted
Up.
-------------------- Sick since January 1985. Misdiagnosed for 20 years. Tested CDC positive October 2005. Treating since April 2006. Posts: 3228 | From Somewhere west of the Mississippi | Registered: Aug 2007
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posted
Looking back through messages about nuvigil - this is still the case for me. I think it's because of low dopamine levels resulting from lyme neurotoxins. Nuvigil is a dopamine reuptake inhibitor.
-------------------- long road since 2010 abx got me over the hump diet, detox, and herbs have got me to heal Posts: 174 | From CT | Registered: Jan 2010
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nonna05
Frequent Contributor (1K+ posts)
Member # 33557
posted
Hi! Is it script or other?
what does Plaquenil do for/with Bixain?
Never heard of Eleuthero, is it from your LLMD?
Trying to get list for Doc. cause so much gets spaced out//looked over at appts.I
I should try to keep diary of days and symptoms , but if I bring to much info/questions, I don't want to overwhelm him. I just want to be better.
This illness plays such tricks on you....
How well are you at this point?/
Posts: 2563 | From Denver,CO | Registered: Aug 2011
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posted
Do you not have a crash when you come off Nuvigil? I respond to it well at first, then I crash and it's terrible. Although, I think the pharmaceutical says it isn't a stimulant, maybe just "stimulantl-like" it feels like a stimulant to me so I wonder if it's good over the long term.... I wish it were a miracle pill but so far that has not been the case for me. I know some people who use it in emergencies when they need to get stuff done...
Posts: 87 | From NorCal | Registered: Feb 2008
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posted
Yeah, I've just noticed the crash this week. My thoughts are that maybe that's a result of the dopamine re-uptake aspect.
Do people experience a similar crash with Provigil? Or with Adderall?
Not as well as I'd like to be. Seems always to be two steps forward, one step back. I think Eleuthero might be the best stimulant I've tried - it's also anti-bacterial and natural. No real crash. Got this from Buhner's book which has been a relative god send.
-------------------- long road since 2010 abx got me over the hump diet, detox, and herbs have got me to heal Posts: 174 | From CT | Registered: Jan 2010
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