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» LymeNet Flash » Questions and Discussion » Medical Questions » Been on Babs treatment for a little over a month with ZERO improvement of air hunger

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Author Topic: Been on Babs treatment for a little over a month with ZERO improvement of air hunger
BackinStOlaf
Frequent Contributor (1K+ posts)
Member # 23725

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symptoms. I am starting to really worry.

I know it takes a long time for treatment but shouldn't it have improved a little?

on Mepron, Zith and Artemesia

--------------------
First Symptom 9/09
Multiple docs, negative Labcorp test
LLMD: 1/10
Positive Igenex/CDC test
Treatment 2/10
2/10-8/10 Amox, ceftin, zith, flagyl
Currently: Bicillin, Minocycline, still dealing with severe breathing issues

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Posts: 1121 | From New York, New York | Registered: Dec 2009  |  IP: Logged | Report this post to a Moderator
t9im
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Took my daughter over 6 weeks for fevers to start to alleviate, over 4 months for breathing improvements, over 6 months for the night sweats to taper off.

We are at 10 months and its only in the last few weeks I think the BABs symptoms are gone and its only lyme.

Still on Mepron and Zith for another 2 months.

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Tim

Posts: 1111 | From Glastonbury, CT | Registered: Apr 2010  |  IP: Logged | Report this post to a Moderator
ahmet ozbek
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I have been on babesia treatment for 55 days. though i have been using bactrim and artemisinin and my air hunger didn t decresase, even increase when ı start pulse artemisin treatment while use bactrim (There isn t mepron in Turkey)
Posts: 182 | From turkey | Registered: Jan 2008  |  IP: Logged | Report this post to a Moderator
BackinStOlaf
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t9- so I guess I should give it more time.

Air hunger is my only babs symptom

seeing Pulmonologist to rule out anything else that could be causing it.

--------------------
First Symptom 9/09
Multiple docs, negative Labcorp test
LLMD: 1/10
Positive Igenex/CDC test
Treatment 2/10
2/10-8/10 Amox, ceftin, zith, flagyl
Currently: Bicillin, Minocycline, still dealing with severe breathing issues

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Posts: 1121 | From New York, New York | Registered: Dec 2009  |  IP: Logged | Report this post to a Moderator
Florence1
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What exactly does it feel like???

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Oct 09 Positive CDC Western Blot
Jan 10 Positive Babesia Duncani
Jan 10 Cd57 28
Mar 10 EBV, IgM, IgG
HHV-6 IgG

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Lymetoo
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Takes a long time.

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--Lymetutu--
Opinions, not medical advice!

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Lemon-Lyme
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Did you notice anything from the Mepron? Not as far as improvement in symptoms, but anything unusual? Fevers, sweating, flu-like symptoms, dizziness?

When I did Mepron, my situation wasn't that different. As after a month, my breathing wasn't better.

But I had mixed results though. First two weeks it felt like my breathing improved a little, but by the 3rd-4th week it was lousy again. But I also felt 'feverish' types symptoms with hot flashes that would come and go and got a little sweaty a couple of nights. And then I finally got all itchy with mild rashes, so we stopped. So I am guessing it may have been killing some Babesia, or was a side-effect of the med, but all I know is that I still can't breathe very well...

The longterm treatment thing confuses me a little with mepron. My ILADs doc says basically the opposite of what many here say... he says some improvement should be seen within 1-2 months and full treatment typically is 4-5 months or so (but it depends a lot on the patient).

Probably a good idea to take it at least another month and see how you do. And it's worth seeing the pulmonologist. If you have any asthma-stuff going on, you can do a trial of meds and see if it helps (expect to be offered steroid inhalers though).

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BackinStOlaf
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Lemon-Lyme, my llmd said the same thing- I wonder if we go to the same guy.

I tried the asthma inhalers with no improvement.

I never had asthma issues or allergies in my life.

I don't notice any change on Mepron. I had a mild rash under my arms for a few days, but that's it.

No flu-like, no sweats, nothing. :/

Who even knows if this is Babesia.

--------------------
First Symptom 9/09
Multiple docs, negative Labcorp test
LLMD: 1/10
Positive Igenex/CDC test
Treatment 2/10
2/10-8/10 Amox, ceftin, zith, flagyl
Currently: Bicillin, Minocycline, still dealing with severe breathing issues

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Posts: 1121 | From New York, New York | Registered: Dec 2009  |  IP: Logged | Report this post to a Moderator
Dekrator48
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Dr B says that "It has also been reported that Babesia infections can range in severity from mild subclinical infections, to fulminant, potentially life threatening illness."

Therefore I think that every case varies and some people require longer treatment to see results.

My LLMD said it took him a year of Babesia treatment to get better.

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The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.

"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11

Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008  |  IP: Logged | Report this post to a Moderator
   

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