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» LymeNet Flash » Questions and Discussion » Medical Questions » Current State of Lyme Union?

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Author Topic: Current State of Lyme Union?
migs
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Member # 16496

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Primarily, what is the current standard of care?

I've been in this mess for almost a few years now and have learned a lot and got a lot better but still hear information ranging from hopeful to interesting to straight up crazy and/or ridiculous.

Since I've been sick we've seen Tigecycline become an alternative, cycling become far more common, Cure Unknown turn some onto high dose Ceftin, Telithromycin all but disappear (even after Burrascanno wrote about it's benefits in his 2008 Guidelines). LDN has basically come and gone. We've also again seen the massively respected Dr. D in Mass call his treatment "curative". We also have 2 "above ground" Dr. Js fight legal battles and still treating long term but VERY differently.

I'm on the West Coast and have little contact with other Lyme victims. To those of you in the Lyme hotbeds with you fingers really on the pulse, what are people doing and what is working and what is not??

Posts: 410 | From Victoria BC, Canada | Registered: Jul 2008  |  IP: Logged | Report this post to a Moderator
stork
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Member # 24167

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Schardt protocol/Diflucan has seen some interesting exposure to mixed results

--------------------
long road since 2010
abx got me over the hump
diet, detox, and herbs have got me to heal

Posts: 174 | From CT | Registered: Jan 2010  |  IP: Logged | Report this post to a Moderator
Al
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Member # 9420

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I posted this yesterday !


I am sending this information about two "big news" from our UNH Lyme
Disease Research Group.

1. The first one is that our "big paper" got published this week and it
had already received a lot of very positive feedbacks. The main
message from the paper is that antibiotics do not kill all forms of
Borrelia, the Lyme Disease bacteria. The previous studies only looked
at one form and when we looked at all 3 different forms of this
bacterium we have found that main antibiotics used in Lyme disease
are capable eliminating all the forms.
Here is the paper http://www.dovepress.com/articles.php?article_id=7341

2. The second big announcement is that we have our UNH conference on
May 21st 2011. It will be a half day program dedicated to present the
latest findings of our research group. We have 2 guests: two very
famous Lyme Disease Physicians: Drs. Charles R Jones and Joseph
Burrascano

The program free to the public and of course we would like to see
you!!! bests Eva

Here is the program announcement:

SAVE THE DATE
"Breakthroughs in Lyme Disease Research"
Join us to hear our news --- the latest findings of the
Lyme Disease Research Group at the University of New Haven

Saturday May 21, 1PM ~ 8PM
University of New Haven ~ Dodds Theatre
300 Boston Post Road, West Haven, CT 06516
~ Free and Open to the Public ~

Speakers to include:
Dr Charles Ray Jones- Keynote speaker
Dr Joseph Burrascano - "Recent Research Breakthroughs in Lyme Disease"
Dr Eva Sapi - "Evaluation of in vitro antibiotic susceptibility of
different morphological forms of Borrelia burgdorferi"
Graduate Thesis Research Projects:
David Luecke - "Unraveling Unique Features of Borrelia burgdorferi Biofilm"
Amy Rattelle - "Evaluation of Matrix Requirement for Borrelia
burgdorferi Biofilm Form"
Yram Foli - "Antimicrobial Effects of Medicinal Aromatic Oils on the
Different Morphological Forms of Borrelia burgdorferi"
Namrata Pabbati MS - "Novel filarial Nematode Infection in Ixodes
Scapularis ticks Collected in Southern Connecticut"

A panel discussion and networking reception will follow the presentations.


Further information: http://www.newhaven.edu/lyme

Posts: 789 | From CT, | Registered: Jun 2006  |  IP: Logged | Report this post to a Moderator
migs
LymeNet Contributor
Member # 16496

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Missed that post but that is great.

Have to say I am impressed that it is FREE. I would love to attend stuff like that but quite a distance for me.

Hopefully we'll get a recap thread post 21st.

Posts: 410 | From Victoria BC, Canada | Registered: Jul 2008  |  IP: Logged | Report this post to a Moderator
   

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