Topic: Now I have breast cancer - - UPDATE - so far so good!
tick battler
Frequent Contributor (1K+ posts)
Member # 21113
posted
Hi all,
I would love any advice on diet, treatment experiences, implant experiences, online or other support groups.
I recently learned that I have breast cancer. I noticed a lump and some pain shortly after I had surgery (and 6 chest Xrays!) for my collapsed lung a couple of months ago. Prior to surgery, I had it checked by my EDS practitioner, who told me there was a small amount of cancer so I chose to have it removed intact rather than have it biopsied. The biopsy result came back and it shows the 2.5 cm tumor was invasive ductal carcinoma and the margins also had ductal carcinoma in situ.
The report says it is grade 2, stage T2. It is estrogen and progesterone receptor positive and HER2 negative. I will need more surgery since cancer was in the margins around the tumor. And they need to do a sentinal node biopsy.
We are still waiting on genetic testing for the BRCA analysis to see if I am in the higher risk group for breast/ovarian cancer.
I am 46 years old and it is pretty shocking to hear that I may need a single (or double mascetomy if I have the bad cancer gene) and perhaps my ovaries removed. I am getting a second opinion on Tuesday.
I am worried that if I need a mascectomy that I will not tolerate an implant well. I never even thought I would be considering breast implants but I don't have any extra body fat to transfer it and the alternative of having nothing seems pretty bad too.
I am drinking carrot/cucumber/kale juice once daily (plan to do more) and am taking shark liver oil and wheat grass tablets along with proteolytic enzymes. These products were all tested through energetic testing and shown to be helpful. I was told Vit C IV's would be good too but haven't done that yet.
I will probably need surgery again in early June. So I need to decide how extensive that will be.
If you have any information or experiences to share, I would be grateful.
posted
I am just beginning this journey (sort of). I really don't have any advice...other than knowing what its like to feel like you keep crawling yourself out of one hole only to fall down another in the "health" dept.
I just wanted to offer support and concern and prayers. I hope you have a good support network and find compassionate health care professionals.
Keep us posted.
-------------------- Tick bite in 2006, bullseye rash, treated with 2 rounds of 2 weeks of doxy. (once in 2006, once in 2009) Dx with chronic Lyme May 2011. LLMD April 2012, Treating with omnicef/zith Lots of supplements! Posts: 640 | From Connecticut | Registered: Apr 2011
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Tammy N.
Frequent Contributor (1K+ posts)
Member # 26835
posted
I am so sorry to hear this news. Very upsetting. I don't know much about breast cancer and the various treatment options. I just had to send a note of encouragement and let you know I will be praying for you.
I do recall a very knowledgeable health food store owner telling me the importance of supplementing with iodine (liquid potassium iodide, I think). I'd research it first though.
Wishing you the best in healing, Tammy Posts: 2238 | From East Coast | Registered: Jul 2010
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lululymemom
Frequent Contributor (1K+ posts)
Member # 26405
posted
I am sorry to hear about your struggle. I have been very interested in your posts and found them to be very helpful.
I am not sure if you have tried this product, but I think it should be considered when treating cancer as well as lyme:
Curcumin kills cancer cells long before they can be detected; it induces cancer cell apoptosis (cell suicide). Epidemiological studies have linked the frequent use of turmeric to lower rates of breast, prostate, lung and colon cancer.
Curcumin can both prevent - and treat cancer. It suppresses LOX 2, NOS MMP 9 and COX (these are enzymes that make carcinogens much more active once they are in the body; they also allow cancerous cells to grow new blood vessels). The area of the kinase inhibitors is a hot area of oncology drug development. There are many of these protein kinases and they act as message lines into the DNA command center of the cells. Curcumin can effectively blocks a number of these lines. It has the ability to prevent skin cancer, is effective against colon cancer, it also enhances immunity and stops angiogenesis (ability to enable tumors to create an own blood supply). Xanthorrhizol (a sesquiterpenoid compound isolated from the rhizome), exerts anti-metastatic activity in vivo.
As such is has high promise to be used as a natural cancer treatment and prevention medicine.
My daughter and I use this product as I believe cancer may be related to lyme disease as well. I do believe it is treatable.
posted
I have read that LDN is helpful with breast cancer, maybe you should read about it and ask your doc.
Posts: 723 | From Montreal | Registered: Oct 2010
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jackie51
Frequent Contributor (1K+ posts)
Member # 14233
posted
I'm so sorry to hear this. They did pick it up early though, so you are fortunate in this regard.
A friend of mine had the full masectomy last summer. She just got her new nipples last week!
Here's hoping to a speedy recovery.
Posts: 1374 | From Crazy Town | Registered: Dec 2007
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ukcarry
Frequent Contributor (1K+ posts)
Member # 18147
posted
So sorry to hear this, Tick Battler: what a blow for you.
My friend believes that stopping dairy helped her with breast cancer [that is, if you are not already dairyfree].
The following link is to Bill Henderson's newsletter, which I get regularly. You can access all sorts of info from his site and for under $200 as a one-off payment, you can have unlimited access to his mentoring, I believe, once you have read his book.
Good luck, TB. The second part of your name must give a clue to your spirit of determination, which will serve you well. I hope you will let us know how you get on,
blinkie
Frequent Contributor (1K+ posts)
Member # 14470
posted
I read somewhere that sugar feeds cancer. I also know of a lady named Kris Karr. She stopped the growth of cancer tumors by going to a raw diet.
I looked into a side business one time for matectomy patients. They make really good quality breast forms now.
I'm sorry to hear you are going through this.
Posts: 1104 | From N.California | Registered: Jan 2008
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GiGi
Frequent Contributor (5K+ posts)
Member # 259
posted
My thoughts and good wishes are with you. First thing negative about breast cancer are root canals, per Dr.K. I hope you have none.
posted
I am sorry to read about this and my support is with you, as is all of ours!
The website www.healthy.net has lots of good and very important info. This is highly trustworthy information, only well known naturopaths articles are found here.
The naturopaths whose articles I have read on this site, stress as a pattern and as a consensus, among other things (this is not medical advice, just info, read further and check with your holistic or integrative doctor):
a) Cancer cells are in every human body, it's only when immunity is weakened that it takes over. To support the immune system is part of the key to holding the cancer in check, and also to getting it back under control
b) Environmental toxins, metals, pesticides, preservatives in foods, and internal toxins all hold down the immune system. Cleansing is key (make sure all channels of elimination are open first, very very important! Do this under professional guidance with a naturopath who not only knows how to cleanse rid the body of toxins, but how to support the channels of elmination and to open up the detox pathways)
c) The naturopaths are of the opinion that chemotherapy and radiation therapy drop T cell levels which may ultimately be more dangerous than the disease itself, in certain cases (perhaps this does not apply across the board, but caution may be merited). (FYI I also have three friends who have done mainstream radiation/chemotherapy and they are doing well).
d) The good news: There are ways to support the T cell production during such therapy. I cannot advise and won't but will PM you with some sources and their contact info
Read more on the website above.
The NIH researcher-applauded book Herb, Nutrient and Drug Interactions has info about milk thistle in cancer therapy as support to reduce side effects from radiation exposure and chemotherapy et al. You can also research this on pubmed www.pubmed.gov but be sure to check with your doctor about this, I am only passing on info I have read but have zero medical background, this is for info only subject to further inquiry with your doctor and not for self treatment!
e) Dr Mercola writes that in his clinic, he has seen best results of all by having people eat according to their nutritional body type. He is not selling anything in so writing, you can google him and the body types, nutritional plans and see what your doctor thinks about it.
Eating hormone-free, pesticide-free, antibiotic-free and preservative-free foods would be key. I have read in several sources that aspartame is linked to brain cancer, avoid synthetic sweeteners in general they too have been linked to fibromyalgia and other forms of cancer.
F) Hormone balancing would be key too. The man who healed me of environmental illness (now passed on) stressed that to balance hormones is to aid the recovery of the immune system (among other things, as part of a greater strategy).Dr Shames writes about this too in his book Thyroid POwer www.thyroidpower.com Also I would think breast cancer would be hormone driven?
G) The tap water contains tons of chemicals and metals that would fuel cancer growth. This is not The Cure but as part of ongoing support, to reduce chemical impact, I would immediately invest in a really high quality water filter. I really believe in the multipure (am not selling for them) www.multipure.com see the performance data sheet, the list of chemicals and metals removed from the waters is long and impressive!
H) Plastics contain PVC's which leach into our foods and cling to fatty tissue, contributing to breast cancer, according to numerous physicians's articles I have read. It's important to remove plastic trays and shrinkwrap before microwaving foods, best yet to use the oven rather than the microwave, but know that PVCs in plastics are released particularly by heat. I would think long term storage of liquids in plastic bottles would also leach, cold or hot. I tend to avoid things in plastic bottles as much as I can. (Dear friends: I have written to Trader Joes and Whole Foods, please join me in that effort, ask them for glass bottles instead of plastic!)
Very important: Pesticides are lipophilic (cling to fatty tissue, including breast tissue and brain et al) and to eat pesticide-free, hormone-free and antibiotic-free foods would be really important!
I) Heavy metals can contribute to cancer, according to 35 years of research by Hal Huggins DDS MS and many naturopaths whose articles I have read. To reduce incoming heavy metals (this is not a complete list) use aluminum-free deodorant and baking powder (available in healthfood stores), stainless steel cookware or other non-toxic cookware (no aluminum, this leaches into the food).
M) Here is a company that makes non-toxic home building and paint materials, including a Clear Seal product that can be painted over existing paints, glues etc to seal off outgassing: http://www.afmsafecoat.com/index.php
N) Real Goods in CA specializes in green products for the home like water and air filters, non-toxic paints et al: www.realgoods.com
Never self treat, always ask your doctor about anything you do. Again none of this is medical advice, only info for further research and to ask your doctor about.
FYI if it is of any help, I know someone (a friend of a friend, but my friend has verified that this story is accurate, so this is according to my friend) who was told by the mainstream that she had two months to live and that "Science could not help her". In that condition she went to a certain MD and between homeopathy and guided fasting using vegetable water in specific blends for targeted nutrients, she not only was cured but didn't relapse for more than 20 years. This was not breast cancer but the point is, that with *highly competent* care, there really is hope. You need to see someone who knows what the heck they are doing though, no fooling around, and not just somebody who has treated a cancer case or two. Someone truly expert about the body, the products, who knows their science in depth and has tons of practicing experience. I will pm you.
posted
Hi Tick Battler. I too am sorry to hear of your struggles.
I've heard wonderful things about curcumin.
Also, There is a therapy called Decongestive Lymphatic Therapy.
I was taught by Cory Carter. www.lymphinfo.com. He also teaches EDS screening so he uses that in conjunction with this therapy to pin down where there is lymph congestion possibly causing problems.
His wife had breast cancer (not lyme added on top though). He was able to use this therapy on her pretty regularly and he attributes the halting of dying breast tissue from the cancer to the use of this therapy. He told us his wife was in so much pain from the cancer they took her to the ER and had her breast drained of almost 28 oz of fluid (maybe a little less that sounds like a lot!) The doctor's were amazed at the fact she had very little dead breast tissue, there was already some regenerating.
I have lumps in my breasts as well and lung issues arise often for me. When the heart is congested with toxins in the lymph (which often happens with lyme, heart palps, things like that) the lungs take on the burden, when the lungs are overwhelmed with congestion, the breasts take on what they can. Pretty soon you have lumps and who knows what kind of toxins are hanging out in that area. I'm no doctor but it can't be good!
I know his wife is not you, but may be worth checking to see if there are any decongestive lymphatic technicians in your area. If you would like I could do some checking if you give me your location in an email, or on here, whatever is most comfortable for you.
It is always a little tricky if you are on chemo for cancer, as that therapy gets your lymph liquefied and movable it can also make chemo go places maybe it shouldn't go. Just thought I'd throw the knowledge out there in case you think it sounds like something you might be interested in.
Best wishes to you and I hope you get the support and treatments you need.
gwb
Frequent Contributor (1K+ posts)
Member # 7273
posted
tick battler, so sorry to hear this. You will be in our prayers.
My wife's best friend just found out that she has breast cancer too. They're giving her some chemo pills and the doctor has her taking Jarrow BroccoMax with it. BroccoMax is a Phase II detoxifier.
You can read up about some studies that have been done by John Hopkins. Seems promising.
Glucosinolate- Dr. Stengler pointed to research from Johns Hopkins identifying glucosinolate, an extract from broccoli and broccoli sprouts, as a powerful detoxifier and antioxidant. It works by blocking the action of free radicals, which are activated oxygen molecules that damage cells and precipitate cancer.
While eating cruciferous vegetables of all kinds, including broccoli, bok choy, cabbage, kale, cauliflower and Brussels sprouts, is a smart dietary strategy, taking glucosinolate as a supplement adds further protection.
Dr. Stengler�s approach: He often prescribes BroccoMax, made by Jarrow (800-726-0886, www.Jarrow.com). A typical dose is one or two 250-mg capsules per day.
A lot more good information on this website that I believe you'll find helpful.
We are standing with you in your fight against this disease!
Gary
[ 05-15-2011, 05:48 PM: Message edited by: gwb ]
Posts: 1349 | From OK | Registered: May 2005
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Also, in my opinion, you may want to give Dr. Vincent Gammill a call. Vincent is a frequent poster at the cancercured group. He also runs the "The Center for the Study of Natural Oncology". If you want his phone number then I'll be glad to send it to you. Just let me know if you need it. The number is a 1-800 number. Plus Vincent will talk with you at length for free.
I personally know, Vincent and he is an honest man and as far as I am concerned he is the MOST knowledgeable person on the planet when it comes to cancer and cancer treatments. Vincent will more than likely be able to tell you what the best treatments are for your particular type of cancer.
He can also help people gain access to cancer treatments that most people don't have access to e.g., methylglyoxal, 2-Deoxy-D-glucose, sodium phenylbutyrate, benzaldehyde and etc.
Posts: 1223 | From U.S.A | Registered: Jul 2007
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payne
Frequent Contributor (1K+ posts)
Member # 26248
posted
how much can the body endure ? feel like yelling ... will just try to maintain a quiet approach. May you find blessings in your life, and to your family and friends that stay near and dear to you through all things wayne,
-------------------- TULAREMIA/rabbit fever ? Posts: 1931 | From mid-michigan | Registered: Jun 2010
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Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
I am so sorry to hear this news.
I will keep you in my prayers daily.
Huge hugs to you!
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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feelfit
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Member # 12770
posted
tickbattler,
To let you know that you are in my thoughts....I know plenty of women who have been down this path, detected early and they are living long, healthy lives..some 30+ years down the road...
I've no doubt this will be your experience as well.
Posts: 3975 | From usa | Registered: Aug 2007
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merrygirl
Frequent Contributor (1K+ posts)
Member # 12041
posted
Sorry to hear this news.
I have a prostate cancer patient in my support group. His cancer is supposedly the most agressive form with bad margins. He only had his prostate removed. No further treatment in about 2 years. He swears by flax seed. He seems pretty good. I would not want to do nothing, but he doesnt seem to be interested in agressive treatments.
I hope they can remove it al and that your nodes are clean. Thinking of you.
Posts: 3905 | From USA | Registered: May 2007
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sammy
Frequent Contributor (5K+ posts)
Member # 13952
posted
Hugs tickbattler, please know that I care and I'll be praying for you.
I have a good friend who recently battled cancer. She had stage IIIB inflammatory breast cancer. It appeared suddenly, just a couple months after her 2nd child was born. She was not even 30yrs old. We were all so scared for her (this kind of stuff isn't supposed to happen to your friend or loved one...). She completed treatment in less than a year. And now she's doing really well.
I only tell you her story because her prognosis was not good and yet everything turned out well in the end. You are strong tickbattler, even your name shows that you are a fighter. I believe that you are going to get through this and be well.
Posts: 5237 | From here | Registered: Nov 2007
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lululymemom
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Member # 26405
posted
I also have to second the flax seed.. It worked wonders for me as well..
Bartonella henselae 1:100 Posts: 2027 | From British Columbia | Registered: Jun 2010
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Tammy N.
Frequent Contributor (1K+ posts)
Member # 26835
posted
I didn't mention it in my post above, but yes, I do remember my friend mentioning flax seed also. Certainly worth looking into. This is probably something all of us women should add to our daily regimens.
There was a period of time when I was taking it regularly and when I went for my yearly gyno appointment, my doctor mentioned that my breasts were less lumpy. She said 'whatever you are doing, keep doing it'.
Posts: 2238 | From East Coast | Registered: Jul 2010
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CherylSue
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Member # 13077
posted
Oh, dear, I'm sorry to hear this burden has been added to you. Find a good doctor and a good hospital and take their advice. Breast Cancer medicine has come a long way, and I know so many decades survivors.
The ones who fared the worst didn't follow their doctors advice and were afraid of surgery and or chemo and avoided agressive treatment.
Follow your doctors advice.
Hugs, CherylSue
Posts: 1954 | From Illinois | Registered: Aug 2007
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Lauralyme
Frequent Contributor (1K+ posts)
Member # 15021
posted
So incredibly sorry to hear this
I have heard of people doing Vit C IV's. I would think FIR saunas could be helpful too (but I think they could be dangerous with silicone implants...something to consider) With regards to implants, I think they have to be replaced every ten years. Surgery in ten years might not be appealing.
Sending lots of healing thoughts your way
-------------------- Fall down seven times, get up eight ~Japanese proverb Posts: 1146 | From west coast | Registered: Mar 2008
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glm1111
Frequent Contributor (5K+ posts)
Member # 16556
posted
Just logged in and saw your post. I am so sorry that you have to deal with this.
The first thought that came to mind was Hulda Clarks book "The Cure For All Cancer" I have to say that just from doing the antiparasitic herbs and salt/c, I have had infection come out of my breasts and from under them.
The stuff coming out from under my breasts was in the form of a red sticky rash. What came out of my breast were parasitic scabs.
I am not saying this is the answer for breast cancer, but maybe as an adjunct.
The women that I used to go to for colonics told me that she had a patient who had breast cancer and that after working on her for a while with colonics, massage, and hot detox with towels, she had infection coming out of her breasts.
OTOH,
If it is advanced, the double mastectomy might be the wisest. I am hoping and praying for the best for you.
P. S. Sending soup
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
tickbattler, I have no experience personally with breast cancer but something that came to my mind reading these posts is:
Find yourself the best Lymph Drainage trained person in your city or surrounding cities. Find someone that has worked with cancer patients.
Find someone with healing hands before you have your surgery. Afterwards you will have too much other things to do like resting and making sure you give your body time and rest to heal.
Find a friend or family member that can take you to have this body work done weekly. Keep those lymphs flowing.
Maybe there is other body work that would be of benefit after surgery. Lymph is just the body work that made the greatest difference in my body detoxing.
Detoxing is going to be key for you. Good thoughts and strength coming your way by prayers.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6454 | From Louisville, Ky | Registered: Jan 2002
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MichaelTampa
Frequent Contributor (1K+ posts)
Member # 24868
posted
As everyone else, so sorry to hear the news!
Just one thought regarding treatment that might help -- parasites play a big role in lyme and cancer, so this may point you in the direction of treating those aggressively.
Wishing you the best!
Michael
Posts: 1927 | From se usa | Registered: Mar 2010
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karenl
Frequent Contributor (1K+ posts)
Member # 17753
posted
1.I would listen to Gael and start parasite treatment.
2.Also start immediately LDN up to 4.5 and work with [email protected] - there are many breast cancer survivers in this group who did no surgery - post for help
3.Rub Lugols iodine on your breast twice a day, start slowly with some drops and use as much as you tolerate, my doc said 9 but I did more.Pm me if you do not find where to buy.
I am sure you can get better, but please get the LDN immediately.Every day counts. You can call a pharmacy to send it to you, they also have contacts for docs. Pm me for tel.numbers.
Posts: 1834 | From US | Registered: Oct 2008
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GiGi
Frequent Contributor (5K+ posts)
Member # 259
Selma is unable to post so asked that this be posted for her
Could someone post the following message to tick battler? The poor lady is now having to fight breast cancer on TOP of lyme disease.
Her thread in lymenet is:
Now I have breast cancer - any advice appreciated
I'm learning about oriental food therapy with one of Korea's best practioners. He said that the best thing for breast cancer (food) is raw corn powder. (the same flour that the italians use to make polenta). It's GOT to be organic, non sprayed, and NOT COOKED. And of course, non-GMO.
You can solve it in water, warm water but NOT hot water and take about 5 soupspoons 3 x a day. You can add honey or something to sweeten (the practioner said).
This is for normal people, of course. As a lyme sufferer, it's better to start slow, and NOT add sugar if possible. Or add stevia, if it tests energetically. If there's a chance for leaky gut, start slow too.
Stevia: just make stevia tea, let it cool, and use the tea to sweeten.(my recipy, not the practioner).
Corn powder is a very potent detoxifier for many organs, so expect strange reactions. Specially thyroide, liver and joints. I know people that suffer to the point of almost crying, so much pain they get from joints after taking corn powder.
I was TOTALLY unaware of medicinal properties of corn until I did this course and tried corn powder (or corn flour) myself.
If Tickbattler would like to try, tell her to try tapping all the 9 MFT points (similar to EFT points) about 12 times AFTER ingestion of the powder.
I don't know if she'll follow, but that is a cheap and easy method, so if someone could tell her, please do it for me, as I can't post in lymenet from Korea.
Thank you!
Selma
-------------------- I am not a Doctor and I never played one on TV, I'm just a lab rat with Lyme trying to rid myself of this horrible disease. Posts: 88 | From Florida | Registered: Apr 2010
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merrygirl
Frequent Contributor (1K+ posts)
Member # 12041
posted
I dont know, but i dont know if getting lymph thetapy is the greatest idea. If there were isolated cancer cells in one are, wouldnt getting the fluid moving spread the bad cells around? I dont think i.like that idea, but idk...
Posts: 3905 | From USA | Registered: May 2007
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tick battler
Frequent Contributor (1K+ posts)
Member # 21113
posted
Wow - thank you all SO MUCH for your kind words and helpful advice. There is so much great information here. I hope to have time to go through it thoroughly very soon. I am so busy now trying to research good surgeons and cancer centers for second and third opinions!
Best,
tickbattler
Posts: 1763 | From Malvern, PA | Registered: Jul 2009
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sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270
posted
So sorry to hear about this. Its good that you are seeking second and third opinions.
I am sending prayers your way.
Posts: 4035 | From Mississippi | Registered: Jul 2008
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philly78
Frequent Contributor (1K+ posts)
Member # 31069
posted
Oh I'm sorry you have to go through this. Looks like you have been given some wonderful suggestions and some things to think about.
Thoughts and prayers going out to you. I wish you the best.
-------------------- When faced with pain you have two choices....either quit and accept the circumstances, OR make the decision to fight with all the resources you have at your disposal. Posts: 1000 | From PA | Registered: Mar 2011
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
merrygirl, like all info provided above...I would cover all alternative care with my cancer doctor first.
If cancer cells are clogged up in a lymph node not moving along, I'd think it would be best to get all lymphatic system flowing.
Remember majority of lymphatic system is in the GI area. Lymph work starts at the head and moves down the body and out the disposal end.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6454 | From Louisville, Ky | Registered: Jan 2002
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posted
My prayer would be that you get the best care possible and God would give you wisdom to choose the best path for treatment.
I pray God fully heals you.
-------------------- Bart Henslea 1976 Fibro/CFS/arthritis 2004 Lyme diagnosed 2007 3 1/2 years treatment with oral combos, Cowden, IV roc. BW herbs. Off all abx in 12/10. Feeling good. Posts: 647 | From NY | Registered: Dec 2007
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chiquita incognita
Unregistered
posted
Shiitake mushrooms, oyster mushrooms in the diet
Keep strong tick battler, I KNOW you�ll beat this!!! *
-------------------- Everything I say is just my opinion! Posts: 3529 | From Massachusetts Boston Area | Registered: Jul 2008
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chiquita incognita
Unregistered
posted
More articles to strengthen the body alongside mainstream treatment. Make sure your doctor approves this and rules out any drug-herb interactions, etc. this is not medical advice, only information. Ask your doctor about this.
Article: Herbs and diet for cancer by world-top phytotherapist:
posted
I will pray for peace and all decisions made by you and care givers are the right decisions. This isn't holistic route, but have heard of women who have lyme and had to go through chemo for breast cancer, that the chemo put lyme in remission. Didn't talk to these people directly just knew someone who knew them. Hang in there.
Posts: 211 | From In my house | Registered: May 2007
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posted
I am sorry to hear this and I said a prayer for you.
There is a product called Fred Eichorn Cellect that is apparently unbelievable. Its a combination of vitamins that apparently can boost your immune system in incomprehensible ways.
It was developed for cancer patients. Someone mentioned it to me to try for Lyme but I haven't needed to. It might be worth checking out the website.
I know Fred Eichorn has been on Fox news for this amazing product for cancer.
-------------------- unsure445 Posts: 824 | From northeast | Registered: Jun 2008
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posted
CI I assume the Compound Q Hobbs mentions in his cancer protocol is the same Compound Q which was used as an HIV drug some 20 years ago?
Posts: 357 | From California | Registered: Jun 2010
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There;s so much that people can do now to help with healing from cancer. I want to send you bouquets of encouragement and hope.
I was diagnosed with BC in 2003, 3 years into being very sick from undiagnosed lyme disease (they thought it was �CFS� and �FM�). I was 53 yrs young.
I was fortunate that the hospital where I was treated had a program that included a Naturopathic doctor. She helped me enormously with nutrition and supplements.
I�d like to recommend to you a book called �How to Prevent and Treat Cancer with Natural Medicine� by Dr. Michael Murray. His book contains much of what my ND had me do. You can order it on Amazon. If there is a Naturopathic doctor near you who is very knowledgeable about breast cancer, that is also an option.
Following my ND�s guidelines and her special kind support, and other complementary approaches, played such an important part of my healing process. Things like yoga, qigong, acupuncture, reiki, massage therapy, visualization and meditation CDs, were invaluable in helping me maintain the ability to take the cancer journey. I encourage you to try some of these complementary things, you may already be doing some.
That reminds me of a video tape I ordered �Medical Qigong for Understanding, Preventing, and Treating Breast Cancer� by Dr. Jerry Alan Johnson. www.qigongmedicine.com
I also had to be tested for the BRCA 1 and 2 genetic mutations. I had to fight my insurance company for pre-authorization, but it did come through, and I was negative. I had the lumpectomy, sentinel node biopsy, and radiation therapy for a Stage 1, estrogen and progesterone positive, HER2 negative cancer.
When it came to the chemotherapy decision, I was very concerned about being able to handle it due to my already excessive fatigue. In my situation, the oncologist agreed that I did not have to have chemo. I did have nearly five years of tamoxifen, and tolerated it pretty well.
Due to other family history I was at high risk for ovarian cancer, even without the BRCA gene. So I did have a BSO hysterectomy (that�s tubes, ovaries, and uterus) in �08. And to think�I�m still here!
Maybe there�s a great support group in your area, that would really help, too.
Prayers are with you for healing in body, mind and spirit.
Posts: 873 | From WA | Registered: Dec 2005
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dmc
Frequent Contributor (1K+ posts)
Member # 5102
posted
Sending prayers. my mom has stage 4 BC and has been surviving 5 yrs. Hers was in lymph nodes 17 of 20 removed were cancerous plus in the thyroid bed.
She's on a maintenance dose of chemo and even had 8 month break to have partial knee replacements on both legs.
My mother is not a health conscience person. She still smokes. ugggh
Just "one day at a time".
Posts: 2675 | From ct, usa | Registered: Jan 2004
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tick battler
Frequent Contributor (1K+ posts)
Member # 21113
posted
Thank you all again so much for taking the time to write all of your posts and private messages. I am going to look into all of the information. I haven't had much time yet to do research with all of the consultations and testing I've been having. Today I had a Vit C/EDTA IV in the morning and an MRI in the afternoon!
Thankfully, I do have two alternative practitioners who already have me on a lot of anti-cancer supplements. This (and the fact that the lump is out) gives me some confidence to take the time to find the best surgeon and what will be the best approach for me.
I am hoping that I can kill what's left in there with the diet and supplements before my next surgery so that when they go in and take more out (along with the sentinal node biopsy), it will be cancer-free. Probably wishful thinking, but that's my goal! I am visiting my EDS practitioner on Tuesday, so I should get an idea of how much is left in there then.
And we got good news this week - I don't have the bad cancer gene.
Thanks again for your help - it REALLY means a lot. Sorry I haven't had time to respond to any pm's yet, but I am very grateful for all of the information!
Best, tickbattler
Posts: 1763 | From Malvern, PA | Registered: Jul 2009
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karenl
Frequent Contributor (1K+ posts)
Member # 17753
posted
Please google
sabal snake grass
there is a lot of discussion about it on other pages. No idea if you can buy it or you need to plant.
Posts: 1834 | From US | Registered: Oct 2008
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posted
Glad to know you don't have the BRCA genes. Having that piece of information certainly plays a critical role in your decisions about treatment.
Working with your alternative practitioners gives you so much support and hope. And also an important factor: empowerment. You are able to do specific things, such as diet and supplements, that will help your body fight the cancer and get back in balance.
Sending good thoughts and prayers. Please let us know how things are going for you.
Posts: 873 | From WA | Registered: Dec 2005
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When I was researching Artemisinin for my son's Babesia, I came across quite a few references to it being used for cancer. You might want to do some research on it.
Posts: 57 | From VA | Registered: Feb 2010
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Lauralyme
Frequent Contributor (1K+ posts)
Member # 15021
posted
Hi TickBattler I can imagine you are completely overwhelmed with information overload
Sometime if you have the time it is very inspiring to read about this breast cancer survivor that cured herself on diet alone - no radiation or chemo
posted
Hi, sorry to hear about your diagnosis. I was diagnosed a year ago with breast cancer almost the same as yours except I was also her2 positive. I had chemo, radiation and one year of herceptin. I am now on aromasin(estrogen blocker). I had surgery first though. My LLMD says Lyme and Bartonella is immuno-suppressive. I have been following a diet that is mainly vegetarian. I eat no beef, chicken or turkey,only some wild salmon from Vital choice ( lab tested). All veggies are raw and all food is organic. I eat some beans and limited grains. Exercise is important and I make sure to get 30 min a day or at least 3 hours a week. Brisk walking is good for breast cancer. I have been taking low dose natlrexone for about 6 months along with alpha lipoic acid. ALso, I just started on turkey tail medicinal mushrooms caps. A study from the NIH showed a lot of promise for breast cancer. Look this up at fungi dot com. OH, i put my fruits and veggies in a vita mix blender. It's easier to ingest more of them this way and easier to digest. It's difficult dealing with lyme and cancer but it can be done. I actually am feeling pretty good so far. You have to try and stay positive and do the things you love. I wish you all the best, and if you have any questions please feel free to ask me. Jessielee
Posts: 11 | From va | Registered: Jun 2008
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tick battler
Frequent Contributor (1K+ posts)
Member # 21113
posted
Hi all,
I just wanted to post an update related to this thread. Thank you all for the great links and advice...I looked at everything and used much of it.
I think my latest update was that I was going to have a second surgery in late July (moved from late June) to remove the cancer that they saw was in the margins surrounding my tumor. Well, prior to that, I started an intense protocol of about 50 pills per day and juicing once daily. I also had vitamin C IV's once per week. I eliminated most meat except for turkey and fish and visited my EDS practitioner every two weeks to see if the cancer was responding to the treatments. I also purchased about 5 books on natural cancer treatments, which were very helpful.
For the past two months, my EDS screening has shown that my cancer is GONE. I think I actually cleared it prior to my scheduled second surgery date at the end of July and then opted to wait on the surgery and instead try less invasive testing to confirm that it is gone. After I got a clear EDS screen from my practitioner, I had a thermogram done in late July which was NORMAL and showed no evidence of cancer. I am planning to have a second MRI next month to compare to my suspicious one done in May when my cancer was still there. I had planned on having my MRI this month but I (and my three children) have been battling a very bad case of giardia and blastocystis hominus from the only vacation we took this summer (the well water at the cabin was contaminated!). We are still sick from it but are improving.
I was concerned with my latest parasitic infection that my cancer would come back but the testing two weeks ago showed I was still clear.
We think my hormones have also normalized from taking Calicum D Glucarate. I only need to take it once a week or every two weeks now.
Here is the list of books that were very helpful in case anyone is interested:
"Knockout" by Suzanne Somers: this book interviews doctors who are treating cancer naturally and who are having much success.
Natural Strategies for Cancer Patients, by Russell Blaylock. This former mainstream oncologist is really smart and gives great advice.
How to Prevent and Treat Cancer with Natural Medicine by Michael Murray. This gives good protocols for cancer treatments, depending on your type of cancer.
Cancer Free: Your Guide to Non-toxic Healing by Bill Henderson. This man is not a doctor but this book has a lot of good info in it.
In terms of my treatment, here are some of the things that I took:
One of the best products for me was V Statin. It is a tumor scavenger that eats up your cancer tumors and even the cells that turn into tumors. Once the cancer was gone, my practitioner found some abnormal cells called histeocytoma. The V statin got rid of those too within 3 weeks.
Another thing I took was called Stress Release, which is wheat grass tablets. I also took Nutrazyme, which are proteolytic enzymes. Ecomer, which is shark liver oil also was good.
With food, I took DIM, which has curcumin in it. I also took IMM Power, which is an immune booster with mushrooms in it. And selenium.
I also took calcium D glucarate to normalize my hormones instead of tamoxifen.
I think that covers most of my protocol from what I remember.
I am staying on top of this and am very hopeful that my MRI will be normal. I am still taking some immune boosting products.
One reason I opted not to have a second surgery was that I noticed through EDS screening that my cancer in my body TRIPLED after my lump was removed. I later read this commonly happens because of the inflammation and rapid cell division from the surgery. My scariest point was was after having that lump removed. I was having major night sweats like never before. But gradually the supplements worked and I felt better and better. It was pretty much 2 1/2 months after that surgery that the EDS screening showed my cancer was gone.
I know I am not out of the woods yet and am sticking to a good diet and taking supplements. I know to many my approach sounds crazy and even reckless...I would have thought so too prior to learning more about it. I would not have thought it was possible to do this if I had not done so much research. But I have read numerous accounts of others doing the same thing. And these doctors who are healing cancer naturally (Gonzalas in NYC, Burzinski in Texas) are brilliant people...first in their med school classes with numerous awards....they are the real deal.
I never imagined it was the case, but the cancer world is much like the lyme world. Closed minded doctors who can't think outside the box! I had a terrible experience with the chief breast surgeon at Sloan Kettering. She became defensive with my questions and basically told me I was bargaining with my health by not having a masectomy and that if my cancer came back I would die. When I asked her if there was a special diet she recommended, she quickly said NO. I just can't respect a cancer specialist who doesn't recognize diet as a factor with this disease.
I'm not saying mainstream treatments can't work, but for me, I feel my current approach is working and I'm going to stick with it as long as it continues to work! I would consider mainstream treatment if I have to, but I am hopeful that will not be the case.
Thanks again for all of your kind messages and useful info. It really helped me through this tough ordeal.
Best,
tickbattler
Posts: 1763 | From Malvern, PA | Registered: Jul 2009
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scorpiogirl
Frequent Contributor (1K+ posts)
Member # 31907
posted
I PM'd you. I will add you to my prayer list. Hugs!
-------------------- Posts: 1391 | From Lyme Land | Registered: May 2011
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BoxerMom
Frequent Contributor (1K+ posts)
Member # 25251
posted
Amazing news. I am just thrilled for you.
I'm glad your research and commitment paid off. I've always been suspicious of mainstream cancer therapy, which, as you pointed out, does not offer any options other than radical and potentially harmful treatments.
Just more dismissing of natural options and infantalizing of patients who are capable of educating themselves! So disempowering. No wonder it feels like Lyme!
Again, congratulations on your success. You'll beat this latest round of infections, too.
pamoisondelune
Frequent Contributor (1K+ posts)
Member # 11846
posted
Did you take Graviola, Indole-3-carbinol, and Broccoli Sprouts pills?
I had breast aches in one breast, and the above, as well as Iodoral, made the aches go away.
Posts: 1226 | From USA | Registered: May 2007
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momlyme
Frequent Contributor (1K+ posts)
Member # 27775
posted
So happy for you tickbattler! You did the right thing by treating yourself. Doctors who "treat" cancer patients are barbarians! The natural route is the way to go.
Glad you are doing better!
-------------------- May health be with you!
Toxic mold was suppressing our immune systems, causing extreme pain, brain fog and magnifying symptoms. Four days after moving out, the healing began. Posts: 2007 | From NY/VT Border | Registered: Aug 2010
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posted
tickbattler, first let me say how happy I am for you that you found healing.
Second, I must say that your post today was Providential for me. In a few hours, I am going for a stereotactic guided biopsy of a suspicious area on my mammogram. They tell me I will have the results in 5 business days, so sometime next week.
I have just been diagnosed with TBD a week ago, and just starting antibiotics. It was easy for me to neglect myself because I am caring for my 21-year-old son, who has been critically ill with multiple TBD for years. Even though I had two operations for spinal arthritis, and have grown increasingly fatigued, brain-foggy, and in pain, I just chalked it up to the stresses of my life.
No matter what the biopsy says, my deepest intuition tells me it is time for me to tap deeply into healing modes, including many of the things you mentioned. I can't tell you how much I appreciate your sharing your story.
One question: can you share where you were on your Lyme treatment when you got the cancer diagnosis?
Right now, I feel so sick I can't imagine undertaking any other kind of treatment. Were you on antibiotics when you were diagnosed? Or doing completely natural treatments?
Thank you, Susie
Posts: 234 | From albany, ny | Registered: Mar 2011
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kidsgotlyme
Frequent Contributor (1K+ posts)
Member # 23691
posted
Im so happy you posted, Tickbattler! I have been thinking about you and wondering how your treatment was going.
Please keep us posted. You could potentially help many people with your story.
-------------------- symptoms since 1993 that I can remember. 9/2018 diagnosed with Borellia, Babesia Duncani, and Bartonella Hensalae thru DNA Connections. Posts: 1470 | From Tennessee | Registered: Dec 2009
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posted
I'm so proud of you, tick battler - this is great news!!
-------------------- Increasingly ill over past 10 yrs; treating since October '08. Posts: 180 | From Philadelphia, PA | Registered: Oct 2008
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Tammy N.
Frequent Contributor (1K+ posts)
Member # 26835
posted
Tickbattler, This is the best news I've heard in a long time. I can't tell you how happy I am for you. You have been in my thoughts and prayers. Warm, happy congratulations for this wonderful progress you are making. You are on the right path! Keep going!!
Wishing you a total and complete healing. God bless.
My best, Tammy
Posts: 2238 | From East Coast | Registered: Jul 2010
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Jane2904
Frequent Contributor (1K+ posts)
Member # 15917
posted
Great News, TB.
Way to Go!!!
Posts: 1357 | From Massachusetts | Registered: Jun 2008
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posted
That's so awesome!! So you've done all natural methods?? That's terrific! A relative of a relative is being treated at Burzinski's clinic right now. I pray it works!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96109 | From Texas | Registered: Feb 2001
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posted
Hi TB, found this info for you. It connects to the info in the seleniumthread.
http://www.ncbi.nlm.nih.gov/pubmed/21892571 Pubmed: Factors associated with oxidative stress in women with breast cancer. Vieira FG, Pietro PF, Boaventura BC, Ambrosi C, Rockenbach G, Fausto MA, Crippa CG, Silva EL.
Source: Post-Graduate Program in Nutrition, Santa Catarina Federal Universiy, Florianopolis, SC, Brazil.
Abstract:
Objective: To assess the association between physiological, physical, lifestyle and nutritional variables and oxidative stress biomarkers in women with breast cancer.
Methods: This cross-sectional study was conducted on 55 women newly diagnosed with breast cancer. The extent of oxidative stress was analyzed by the measurement of plasma lipid hydroperoxides (LH), thiobarbituric acid reactive substances (TBARS), protein carbonyl, whole blood reduced glutathione (GSH) and serum antioxidant capacity (AC). Diet data were obtained from food frequency questionnaire. Linear regression was used to determine the association between the variables studied and oxidative stress biomarkers. The protein carbonyl data was not included in the linear regression analyses since the data did not show a normal distribution, even after logarithmic and other transformations.
Results: After adjusting for energy intake, the intake of chicken and high-fat dairy products was associated with increased levels of LH, while vitamin E intake was associated with decreased LH levels (R� = 23.8%). Intake of oils was associated with increased levels of TBARS (R� = 6.82%). Positive axillary lymph node status was associated with decreased levels of GSH (= Glutathione) (R� = 9.31%). Increasing age was directly associated with levels of AC, while animal fat, dairy product, and sweet food intakes were associated with low levels of AC (R� = 41.42%).
Conclusion: Intake of chicken, vitamin E, dairy products (particularly high-fat dairy products), oils, animal fat, and sweet foods, along with axillary lymph node status and age, may be important determinants of oxidative stress in women with breast cancer.
Nutr Hosp. 2011 Jun;26(3):528-36.
I hope it can serve you well. Courage, and good recovery.
-------------------- "They that are whole have no need for the physician, but they that are sick: I came not to call the righteous but sinners to repentance"(Mark 2.17) Posts: 149 | From Amsterdam | Registered: Jul 2011
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MichaelTampa
Frequent Contributor (1K+ posts)
Member # 24868
posted
Congratulations!!! How wonderful!
Posts: 1927 | From se usa | Registered: Mar 2010
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posted
Just saw this thread and so glad to see your update. Awesome news!!
I thought I would throw this book out there for everyone. I just completed it. It focuses on cancer but it really can be for any touch/chronic illness. I bought it to help me cope with lyme, bart and babs.
I found it a really inspiring read and have sent copies to 2 of my friends with cancer.
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
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