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» LymeNet Flash » Questions and Discussion » Medical Questions » Convulsions in my sleep?

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Author Topic: Convulsions in my sleep?
LymeNet Contributor
Member # 25116

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My husband works third shift, so it has been a very long time since we have shared a bed at night. He was off last night and decided to join me, but when I woke up this morning he told me I had been having convulsions during my sleep. He even woke me up during the night at one point because it was scaring him so much, and he said they resumed as soon as I fell back to sleep. He said they were occurring every 30 seconds or so, and described them as a convulsion of sorts, though I have no recollection of doing so at all.

Does this sound familiar to anyone? I did a google search just now and all I could come up with is a myoclonic jerk which is definitely not what is happening to me (as you are falling asleep, the feeling that you are falling and you jerk awake suddenly.)

Now I'm wondering how often this has been happening, since I always sleep alone...

Untreated Lyme for 25+ years.
Two kids, too much pain & fatigue, no hope of ever being able to treat.

Posts: 310 | From Northeast | Registered: Mar 2010  |  IP: Logged | Report this post to a Moderator
Member # 31426

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I just recently realized I have been having siezures.....In the middle of the night I started shaking and thought I was dreaming....I was thinking to myself im dying...then I thought no im having a siezure...I told myself to relax...then I woke up...

I didnt no if it was a dream or really happened it was so weird....

I told my husband and friend who is a nurse and we all dismissed it....
why would I be having a siezure?? it must have been a bad dream....

but I had been having some strong face and head sensations for a while and after that night they became even more intense....

my speech started being affected and I was becoming tounge tied alot and forgetting my thoughts....

I told my husband something is wrong...I think maybe I did have a siezure that night...

the next mourning I called my neurologist who talked to me on the phone...he squeezed me in
for an EEG that day....

as I was checking out the nurse came to me and said the doc wants to see you....

he read my EEG on the spot and he said you were not dreaming you did have a siezure and in fact you are having them every 3 minutes or so.

He called them focal siezures....
and put me on Vimpat..

at this point he feels they are lyme related since
the mri showed no brain tumor etc....

the vimpat has helped soooo much....
all those face and head sensations and tingeling has gone away....

now I know they were actually the siezures I was having....but didnt realize they were siezures..

anyway....try to get and EEG if you can....

Posts: 27 | From NJ | Registered: Apr 2011  |  IP: Logged | Report this post to a Moderator

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