LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » Will we be treating forever?

 - UBBFriend: Email this page to someone!    
Author Topic: Will we be treating forever?
BackinStOlaf
Frequent Contributor (1K+ posts)
Member # 23725

Icon 1 posted      Profile for BackinStOlaf     Send New Private Message       Edit/Delete Post   Reply With Quote 
Every thing I read says Lyme hides from your immune system, changes structure, replicates to look like your own white blood cells. This seems like a never ending battle that is impossible to win. I know some people get better but maybe their circumstances are just right.

I don't know anymore [Frown]

--------------------
First Symptom 9/09
Multiple docs, negative Labcorp test
LLMD: 1/10
Positive Igenex/CDC test
Treatment 2/10
2/10-8/10 Amox, ceftin, zith, flagyl
Currently: Bicillin, Minocycline, still dealing with severe breathing issues

 -

Posts: 1121 | From New York, New York | Registered: Dec 2009  |  IP: Logged | Report this post to a Moderator
joalo
Frequent Contributor (1K+ posts)
Member # 12752

Icon 1 posted      Profile for joalo     Send New Private Message       Edit/Delete Post   Reply With Quote 
Up.

--------------------
Sick since January 1985. Misdiagnosed for 20 years. Tested CDC positive October 2005. Treating since April 2006.

Posts: 3228 | From Somewhere west of the Mississippi | Registered: Aug 2007  |  IP: Logged | Report this post to a Moderator
momofthree
LymeNet Contributor
Member # 19490

Icon 1 posted      Profile for momofthree     Send New Private Message       Edit/Delete Post   Reply With Quote 
I feel this way too right now. It just seems like even if you get a little better any stress will knock you right back down. And I believe stress is just a part of life especially when you have kids...
Posts: 303 | From green bay, wi | Registered: Mar 2009  |  IP: Logged | Report this post to a Moderator
lululymemom
Frequent Contributor (1K+ posts)
Member # 26405

Icon 1 posted      Profile for lululymemom     Send New Private Message       Edit/Delete Post   Reply With Quote 
I think even after remission you will need to continue to support immune function as well as any other lingering issues. So, yes, in my opinion you will continue treating forever. Those who slack off after remission will subject themselves to a possible relapse.

--------------------
IGM 41 IND, 83-93+ IGG 31 IND,34 IND, 41++, 58+, 83-93 IND

31 Epitope test neg.

Bartonella henselae 1:100

Posts: 2027 | From British Columbia | Registered: Jun 2010  |  IP: Logged | Report this post to a Moderator
randibear
Honored Contributor (10K+ posts)
Member # 11290

Icon 1 posted      Profile for randibear     Send New Private Message       Edit/Delete Post   Reply With Quote 
i've heard of people being on abx for six and more years.

no way could i do that. sometimes it's just not worth it. my system could never tolerate that.

--------------------
do not look back when the only course is forward

Posts: 12262 | From texas | Registered: Mar 2007  |  IP: Logged | Report this post to a Moderator
scorpiogirl
Frequent Contributor (1K+ posts)
Member # 31907

Icon 1 posted      Profile for scorpiogirl     Send New Private Message       Edit/Delete Post   Reply With Quote 
I hope not!! But I also read many got better... so let's just plan on getting better shall we?

--------------------
 -

Posts: 1391 | From Lyme Land | Registered: May 2011  |  IP: Logged | Report this post to a Moderator
Razzle
Frequent Contributor (1K+ posts)
Member # 30398

Icon 1 posted      Profile for Razzle     Send New Private Message       Edit/Delete Post   Reply With Quote 
For me, no improvement after 2 years of IV abx pretty much says it all...basically, I don't have a chance of getting well without something miraculous happening.

--------------------
-Razzle
Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs.

Posts: 4166 | From WA | Registered: Feb 2011  |  IP: Logged | Report this post to a Moderator
RZR
Frequent Contributor (1K+ posts)
Member # 20953

Icon 1 posted      Profile for RZR     Send New Private Message       Edit/Delete Post   Reply With Quote 
I am losing all hope here. Seems like I just can't win the battle and so tired now.

--------------------
Tick bite May 2009
Diagnosed June 2009

Posts: 2329 | From SouthEast | Registered: Jun 2009  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code� is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.