LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » Minocycline

 - UBBFriend: Email this page to someone!    
Author Topic: Minocycline
dian
LymeNet Contributor
Member # 14335

Icon 1 posted      Profile for dian     Send New Private Message       Edit/Delete Post   Reply With Quote 
My llmd put me on mino 200 mg daily, I started with 100 mg first to see how I do. Has anyone been on this drug for lyme and what was your experience. I have heard it can cause alot of dizziness which is my main symptom to begin with. I will be pulsiing flagyl in every other week. Any success with this drug?

thanks
Diana

Posts: 256 | From Boston, mass | Registered: Jan 2008  |  IP: Logged | Report this post to a Moderator
Jane2904
Frequent Contributor (1K+ posts)
Member # 15917

Icon 1 posted      Profile for Jane2904     Send New Private Message       Edit/Delete Post   Reply With Quote 
Daughter started with Mino in the beginning. She started with 50mg and worked up to 100mg.

She was never able to take more than 50mg twice a day. I would say it did help.

Good luck, I hope it works for you.

Posts: 1357 | From Massachusetts | Registered: Jun 2008  |  IP: Logged | Report this post to a Moderator
bcb1200
Frequent Contributor (1K+ posts)
Member # 25745

Icon 1 posted      Profile for bcb1200     Send New Private Message       Edit/Delete Post   Reply With Quote 
I'm on 400mg per day. First week was tough with dizziness and increased tinnitus. But turbot got better.

--------------------
Bite date ?
2/10 symptoms began
5/10 dx'd, after 3 months numerous test and doctors

IgM Igenex +/CDC +
+ 23/25, 30, 31, 34, 41, 83/93

Currently on:

Currently at around 80% +/- most days.

Posts: 3127 | From Massachusetts | Registered: May 2010  |  IP: Logged | Report this post to a Moderator
tdtid
Frequent Contributor (1K+ posts)
Member # 10276

Icon 1 posted      Profile for tdtid     Send New Private Message       Edit/Delete Post   Reply With Quote 
I too had good luck with this med overall. I believe it is one that crosses the brain barrier which makes it a good choice.

It's all about "finding the right drug for the right bug". Good luck and keep us posted.

--------------------
"To Dream The Impossible Dream" Man of La Mancha

Posts: 2638 | From New Hampshire | Registered: Oct 2006  |  IP: Logged | Report this post to a Moderator
penguingirl
Frequent Contributor (1K+ posts)
Member # 28688

Icon 1 posted      Profile for penguingirl     Send New Private Message       Edit/Delete Post   Reply With Quote 
I hope it works well for you - I could not tolerate it - 20 x to bathrooom daily and not even on the full dose (like 200 mg)

--------------------
 -

Posts: 1204 | From USA | Registered: Oct 2010  |  IP: Logged | Report this post to a Moderator
pepperspeck
LymeNet Contributor
Member # 18837

Icon 1 posted      Profile for pepperspeck     Send New Private Message       Edit/Delete Post   Reply With Quote 
My daughter was put and this and I was nervous because she has vestibular damage and vertigo. However, it was this medication, IMO, that helped with cognitive symptoms and a decrease in vertigo overall. Was not the end-all to her symptoms but it was important in her road to recovery. I believe it is better at crossing the blood brain barrier than some other meds.

--------------------
I found my original identity! It has been a bit over 12 years...can't blame me for forgetting my password, right?!!

Member red (Member # 1886)
Registered: 26 November, 2001
70 posts

Posts: 164 | From NJ | Registered: Jan 2009  |  IP: Logged | Report this post to a Moderator
Mariski
Member
Member # 24942

Icon 1 posted      Profile for Mariski     Send New Private Message       Edit/Delete Post   Reply With Quote 
Minocycline worked very well for me. I was having terrible headaches due to swelling in my brain and, while the doxy helped at first, I really felt much better when I switched to mino. Reportedly it crosses the blood brain barrier better than doxy. I also added in a cyst buster shortly after I went on mino, and that really helped as well, which is consistent with Eva Sapi's research.
Posts: 40 | From New York | Registered: Mar 2010  |  IP: Logged | Report this post to a Moderator
Starfall
LymeNet Contributor
Member # 26795

Icon 1 posted      Profile for Starfall     Send New Private Message       Edit/Delete Post   Reply With Quote 
I just read these posts, trying to find some help or comfort or somethng.

My LLMD started me on Mino and Rifampin last week. Over the weekend, I developed the worst migraine-like headache I have ever had.

I had pain in one temple, pain in that eye socket, watery eye, runny nose, horrible ringing in both ears, dizziness and nausea.

It got so bad by the end of the weekend that I couldn't eat anything and could barely get out of bed.

THis morning I'm up and around but feel on the verge of collapse.

Called my LLMD, and he's not in today. [Frown] SO I have to wait another day to get any kindo f advice on how to proceed.

I am NOT taking any abx today! I refuse!

Posts: 303 | From Pennsylvania | Registered: Jul 2010  |  IP: Logged | Report this post to a Moderator
kelmo
Frequent Contributor (1K+ posts)
Member # 8797

Icon 1 posted      Profile for kelmo     Send New Private Message       Edit/Delete Post   Reply With Quote 
My daughter had to ramp up from ONE 50mg per WEEK!

She was able to get up to 200mg/daily for about two years.

It really helped her.

Posts: 2903 | From AZ | Registered: Feb 2006  |  IP: Logged | Report this post to a Moderator
chootik
LymeNet Contributor
Member # 11221

Icon 1 posted      Profile for chootik     Send New Private Message       Edit/Delete Post   Reply With Quote 
Hi Diana

I did the same, if you take 50mg and increase by 50mg every 7 days your body will probably adjust.

I had terrible dizziness too at first.

Mariski- What cyst buster did you use? I'm not familiar with Eva Sapi... who is she? I'll google her.

Chootik

Posts: 247 | From Ca | Registered: Feb 2007  |  IP: Logged | Report this post to a Moderator
ktkdommer
Frequent Contributor (1K+ posts)
Member # 29020

Icon 1 posted      Profile for ktkdommer     Send New Private Message       Edit/Delete Post   Reply With Quote 
I started full dose right away as I didn't know any better and have done fine. Three months now.

--------------------
Things are never dull. After 3 fighting Lyme, 2 are in remission. Youngest is still sick, age 22. He has new diagnosed Chiari Malformation and Ehlers Danlos Syndrome.

Posts: 1366 | From Perrysburg, Ohio | Registered: Nov 2010  |  IP: Logged | Report this post to a Moderator
Starfall
LymeNet Contributor
Member # 26795

Icon 1 posted      Profile for Starfall     Send New Private Message       Edit/Delete Post   Reply With Quote 
I just restarted my Mino, half a dose today (100mg), and already I am having ringing in my ears and dizziness and somewhat feeling like a headache in my temple.

I wonder if I should try doing the half dose every other day for this week to see if I can tolerate it, then ramp up from there.

Sometimes I wonder what's making me more sick--the lyme and co or the meds....

Posts: 303 | From Pennsylvania | Registered: Jul 2010  |  IP: Logged | Report this post to a Moderator
IckyTicky
Frequent Contributor (1K+ posts)
Member # 21466

Icon 1 posted      Profile for IckyTicky     Send New Private Message       Edit/Delete Post   Reply With Quote 
It doesn't cause me to get dizzy. I do notice my ears ringing off and on but nothing too bad.

Im on 200 mg 2X day

--------------------
IGM: 18+, 23+, 30+, 31+++, 34+, 39IND, 41++, 58+++, 66+, 83-93IND
IGG: 31+, 39IND, 41+
Also positive for Mycoplasma Pneumoniae and RMSF.
Whole family of 5 dx with Lyme.

Posts: 1014 | From Texas | Registered: Jul 2009  |  IP: Logged | Report this post to a Moderator
Mathias
Frequent Contributor (1K+ posts)
Member # 5298

Icon 1 posted      Profile for Mathias     Send New Private Message       Edit/Delete Post   Reply With Quote 
I has a good experience with Minocycline. It made me herx quite a bit though. 200 mg/d maximum dosage. Watch out for sun exposure.

--------------------
Mathias

Posts: 1242 | From New Jersey | Registered: Feb 2004  |  IP: Logged | Report this post to a Moderator
twicebitten
LymeNet Contributor
Member # 5412

Icon 1 posted      Profile for twicebitten     Send New Private Message       Edit/Delete Post   Reply With Quote 
I had what they call "staining" with it, so I had to discontinue and go on doxy. It looked like black small bruises on my skin, lots of them. I'm not sure why or if it hurts anything, but my doc stopped it and they eventually went away. FYI

--------------------
One day at a time

Posts: 409 | From TX | Registered: Mar 2004  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.