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» LymeNet Flash » Questions and Discussion » Medical Questions » Need input on alternative treatments please

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Author Topic: Need input on alternative treatments please
Tincup
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I've been working on some projects and would like to know, so we can best layout future plans to help more patients... and because I am unable to handle some of these treatments myself and want others opinions who have done these things ...

If you were allowed to go for any ONE of the alternative treatments listed below (and only one) after having antibiotics for Lyme and TBD's, which would be the best choice in your opinion.

Your "alternative program" would consist of free help in these areas for 12 weeks, so which would you pick?

You can pick ONLY ONE item from the following categories.


Chiropractor

Yoga

Hypnotherapy

Biofeedback

Lymph drainage

Gem therapy

Fasting

Acupressure

Massage

Acupuncture

Dowsing

Omdamed

Pool therapy

Exercise training

Herbalist

Craniosacral Therapy

Spiritual healer

Music therapy

Ultrasound

Aromatherapy

Occupational therapy

Speech therapy

Reiki

Magnets

Colonics

Nutritional-based therapy

Dance therapy

Stress management

Rolfing

Color therapy

Organic only diet

Reflexology

Vitamins/Supplements

Thanks for helping out here. Your opinions will be used to help us help patients have more access to things that might assist them in healing.

[Big Grin]

--------------------
www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

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James1979
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Wow, that's a long list! I'm guessing the answer would be different for everybody. For example, if some people are having spiritual/psychological problems, then addressing those areas would be most important.

If I had to give just one answer for general use, I would say do the colonics, because it's good to get all those toxins out after taking so many antibiotics.

That's just my humble opinion.

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momindeep
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Biofeedback.
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dyna3495
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vitamins/supplements
Rebuilding the immune system and then modulating it were key to my recovery.

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seibertneurolyme
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Probably number one would be a herbalist with a preference for a real Chinese herbalist or an American Indian medicine man.

Number two would be vitamins/supplements.

Bea Seibert

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glm1111
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Have done most of the therapies listed above at one time or another to no avail. I would choose the herbalist, because the herbs can be antibacterial, antifungal, antiviral and antiparasitic. The herbs are what helped me the most along with salt/c.

Gael

--------------------
PARASITES/WORMS ARE NOW
RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS*

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Haley
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Low fat plant based diet and exercise with lots of oxygen intake. I know, I cheated, that's 2.
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sixgoofykids
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None of the above as stand alone. If I could only pick ONE alternative, it would be photon treatment.

--------------------
sixgoofykids.blogspot.com

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Robin123
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I don't think any one can do the trick, maybe like a 1st, 2nd, 3rd choice package?

If I had to choose the first, I'd go with the magnetic category, as in PEMF machine treatment - that's a pulsed electromagnetic machine, recommend 400-700 gauss strength -

I've seen what it can do - boosts the body's electromagnetic energy back up where it can start to function again re all cellular ion transport action, take down pain, etc. It stopped my tinnitus for six hours at a time, ie was healing to the nerves.

It was first used to get injured race horses back on the track faster.

You could also add these:

rifing
sauna, including FIR
oxygen treatment - HBOT, etc
stem cell injections
homeopathy
energy treatment category (light, color, electromagnetic - I guess I'd group this category, since there are many ways to tackle it)

and...watching Marx Brothers movies: Norman Cousins in "Anatomy of an Illness," cured himself of ankylosing spondylitis by watching their movies plus taking Vit C.

I kid you not! They had to move him out of the hospital ward where he was, because he was laughing too much. Maybe it could work for Lyme!

[ 06-17-2011, 10:18 AM: Message edited by: Robin123 ]

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hopeful4
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Very hard to pick just one, because one alone will not bring about the results desired.

I'd have to say that the vitamins/supplements are critical to returning to health.

But not without diet, exercise, spiritual healing, cleansing, etc.

Thanks for asking.

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sammy
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Acupuncture. It has not cured me but it does help significantly reduce my symptoms. Relief lasts a couple hours to a couple days.
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hammond
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My $.02 would be focus on the gut like naturopaths do. So if I had to choose...... Nutritional based therapy. The whole leaky gut, immune/liver function problem, and SIBO are what I think is important to focus on so that Bb loses the battle with your immune system. But every person has different "extra" problems from Lyme as exemplified in the responses.
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Garden
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A licensed nutrionist.

Not some dietician who is going to talk about the food pyramid.

Someone who will run stool tests, blood tests, look at my tongue, and tell me which nutrients are deficient for me and what type of supplements/foods will get me there. Like do I need the methyl form of B12 - that kind of thing.

Have you ever watched the BBC show "You Are What You Eat"? I want her for 12 weeks!

--------------------
Garden

"Fibromylagia" for 8+ years
Pos IgeneX WB per both Igenex and CDC
Pos Neuroscience MyLymeImmuneID
Started tx for Lyme in March 2011

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Tincup
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Great answers! And know... I do know it is hard to pick one. I am using your opinions to narrow down the field first. Then hope to have available several of the better options for patients.

Keep your suggestions coming, PLEASE!

I appreciate each and every one!!!

--------------------
www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

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daisys
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I guess I put herbalist, nutrition, diet, supplements all in one ball, and my nutritionist is a Chinese doctor.

I've found going gluten free, low carb, and no chemicals has made a lot of difference to my healing. Also, cilantro and chlorella, among other supplements, help in detox.

What we eat are hopefully tools our body can use in our fight against illness.

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AZURE WISH
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Honestly i think the one I would choose would be dependent on how my symptoms were presenting.

For someone like me with severe mcs, avoiding chemicals is important, (plus i react badly to herbs and many other supplements)if i could only pick one so i would say organic....

But i would combine it with a nutritionist by Garden's definition. (i have not seen one yet but intend to )

but for the next person this may not be a signifigant piece to their particular puzzle. And the herbs and supplements that have dug a deeper hole for me, might be the rope dangling down they need to climb out.

somethings one does not need a professional for. their are many yoga dvds, one's may be able to figure outown stress management with time, etc.

I also think keeping your gut healthy, or restoring its health may be critical for some people (i am suspecting it is a big problem of mine) so whether you have a llmd, nutritionist, whatever kind of health professional adress it, if it is a problem

--------------------
multiple chemical sensitvity group:
http://www.lymefriends.com/group/multiplechemicalsensitivities

Group for artists. All media welcome:
http://www.lymefriends.com/group/creativecorner


http://groups.yahoo.com/group/Lyme_Artist

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RC1
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Yoga is definitely helping me get my health back, there is gentle yoga if a person is out of shape, then can graduate to more of a strengthening type. I also think that yoga helps to release toxins that are deep. It's a really great form of exercise regardless of a persons physical shape, also really helps with the head too. It is all good!
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Catgirl
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Acupuncture really helped me (I didn't even know I had lyme at the time). Yoga helped too though.

--------------------
--Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together).

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onlyflippin
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Hypnotherapy, to make me forget about the ducks out there, and to get my mind off of the fact that the testing is so lousy. Also to get rid of my concern that my friends and family may get and suffer for years because of mis-diagnosis. To relieve the stress caused because I am having to learn things that I never wanted to know. Thats why I have insurance. I could go on All I can say is I am glad there are llmd's to help people. Oh yeah and to forget that ducks cant look past a computer to diagnose and treat people. To forget that my pcp is now a psychologist because everything is in my head. I am sure theres more but now my head hurts. I need psychotherapy.

--------------------
Help I am being forced against my will to learn medicine!!!

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Tincup
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Interesting answers. Appreciate ALL comments.

Keep 'em coming if you will. And thanks!

[Big Grin]

--------------------
www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

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kidsgotlyme
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herbalist would be first on my list.

--------------------
symptoms since 1993 that I can remember. 9/2018 diagnosed with Borellia, Babesia Duncani, and Bartonella Hensalae thru DNA Connections.

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AlanaSuzanne
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I haven't even heard of Gem therapy, Dowsing, Rolfing or Color Therapy to begin with, much less being used to treat TBD in any capacity.

I wouldn't even put those in the same category as the other things on your list.

The rest of what's listed can be helpful depending on each person's particular situation and symptoms.

For instance, if someone is almost fully recovered, the best option might be exercise training. For someone who has exhausted antibiotic remedies or who cannot tolerate antibiotics, the best option might be an Herbalist. And for both those scenarios, Vitamins/Supplements would be especially helpful.

I don't think it's possible to pick just one thing from your list. One size doesn't fit all.

An antibiotic regimen that works for those 24 people won't work for those other 17 people. It's the same way with those alternative treatments you list.

--------------------
You gain strength, courage, and confidence by every experience in which you really stop to look fear in the face. You are able to say to yourself, 'I lived through this horror. I can take the next thing that comes along.'

---Eleanor Roosevelt

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Robin123
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Chocolate mint ice cream - it helps take my mind off of everything else.

After that, listening to the last four Beethoven piano sonatas.

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AlanaSuzanne
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Oh yes Robin. That ice cream. I call it mint chocolate chip lol. It's good for what ails you.

Beethoven is where we part ways. I'm sure I'd recognize the Beethoven sonatas if I heard them, but I'm a rock 'n roll girl.

--------------------
You gain strength, courage, and confidence by every experience in which you really stop to look fear in the face. You are able to say to yourself, 'I lived through this horror. I can take the next thing that comes along.'

---Eleanor Roosevelt

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HopesAlive
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I would love to say massage, because I know that Buhner recommends Swedish massage, once per week, for Lyme, and I have never (and always wanted) a professional massage.

1. Herbalist
2. Cleaning up diet (getting rid of gluten/sugar)
3. Vitamins/supplements

I can't pick just one, either. Impossible. [Wink]
Sorry.

--------------------
Best Wishes,

Hope

"Hope is a good thing, maybe the best of things, and no good thing ever dies."

~~The Shawshank Redemption~~

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