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» LymeNet Flash » Questions and Discussion » Medical Questions » How Many Have Seen "Under Our Skin"?

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Author Topic: How Many Have Seen "Under Our Skin"?
Fogged
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I was advised to watch it on PBS last night, but didn't get the PM in time. My daughter who knows what I am now going through texted me about it, but it was almost over by the time I got the text. I went online to see some clips, and then I took a shot to see if the DVD was available form Netflix.

Bingo!

Not only the DVD, but is is presently available on "instant view". It was already very late (insomnia), but I stayed up until 3 AM, then woke up and watched the rest of it this morning. Mind-boggling. Holy cow, I have a bunch of investigating to do now.

I don't want to comment until I have seen it at least two more times, but I wanted those who haven't yet seen it to know that it is available to view this minute if you are a Netflix subscriber.

Posts: 50 | From Saratoga Springs, NY | Registered: Jun 2011  |  IP: Logged | Report this post to a Moderator
sandyk
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Yes, we watched it twice already.

It is an eye opener for sure. Great documentary!

I have had all of my closest family and friends watch it also so that they can really understand what my husband has been going through for 5 years!

It is also going to air on NJN Public Television Monday night at 9pm.

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Lymetoo
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[hi] Me. I have my own copy. You may want to consider that for yourself.

--------------------
--Lymetutu--
Opinions, not medical advice!

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sandyk
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Check out what the American Lyme Disease Foundation said about the film!!! Unbelievable.
http://www.aldf.com/Under_Our_Skin.shtml

Posts: 159 | From Toms River, NJ | Registered: Nov 2008  |  IP: Logged | Report this post to a Moderator
Cockapoo1996
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Phillip J. Baker is the one who is years out of date.

http://www.youtube.com/watch?v=a4uNDWdChM8

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Lymetoo
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quote:
Originally posted by sandyk:
Check out what the American Lyme Disease Foundation said about the film!!! Unbelievable.
http://www.aldf.com/Under_Our_Skin.shtml

quote .. "A partisan film such as this can only undermine public health by encouraging nave individuals to seek unproven remedies from LLMDs to relieve symptoms that, though deserving of appropriate medical treatment and care, may well have nothing to do with Lyme disease."

--------------------
--Lymetutu--
Opinions, not medical advice!

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Lymetoo
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Indeed. They suck.

--------------------
--Lymetutu--
Opinions, not medical advice!

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James1979
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Isn't it interesting that the ALDF is centered in Lyme, CT? I'm surprised no-one has burned their building down already...
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James1979
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...or maybe that's where Steere is hiding out all this time. They probably have tight security there! [Big Grin]
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j_liz
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I did. I bought a copy then lent it to family, then gave it to my LLMD to lend out. The girl that got it right after giving it to my LLMD thanked me profusely. I am glad it's now available to rent and on tv.

Two things bothered me about the movie. 1st, the ranger, at the end he and his kids were in weeds. 2nd, finding out that many supported B's legal funding and he won, and then retired. People must've been terribly disappointed and hurt.

liz

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Abxnomore
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Simply nauseating to read!
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sandyk
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ok so I can't figure out how to do that quote thing right!
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Lymetoo
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Sandy .. click on the quote thing and then remove the [qb] and the /qb]

--------------------
--Lymetutu--
Opinions, not medical advice!

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t9im
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They ignore the evidence. Notice Steere has been blocking Dr. M's cyst work for years. Now Dr. S has confirmed it with the atomic microscope. Hopefully her papers will be published.

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Tim

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sandyk
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quote:
Originally posted by Lymetoo:
quote:
Originally posted by sandyk:
Check out what the American Lyme Disease Foundation said about the film!!! Unbelievable.
http://www.aldf.com/Under_Our_Skin.shtml

quote .. "A partisan film such as this can only undermine public health by encouraging nave individuals to seek unproven remedies from LLMDs to relieve symptoms that, though deserving of appropriate medical treatment and care, may well have nothing to do with Lyme disease."
Oh yes, let's see.. my husband was VERY NAIVE to have gone to 40 lyme-illiterate doctors that could not diagnose his condition causing them not to be able to give him the appropriate medical treatment and care that he freakin DESERVED more than anything in the world over the course of 3 years.

So, this then ENCOURAGED us very NAIVE people who finally through much research of our own had a suspicion of Lyme diseas and seeked out an LLMD who gave us the appropriate treatment that we deserve and we actually began to feel better and it put us on track to get our lives back!

Imagine that? How stupid we all are..

I can remember that day very well, I'm looking at the Lyme symptoms and I turned to my husband and said "Oh my god.. I think this may be lyme disease!!" NAIVE move I guess..

OH THIS MAKES ME SOO MAD!

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scorpiogirl
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I have two copies one is my Lyme bible the other is on loan for friends and family.

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philly78
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I watched it with my hubby. It made him cry.

I had told my mom I wanted her to watch it but I knew she would forget. That's why when I was over there last week, I set the recording on her TV and recorded it when it aired on PBS. [Smile]

I called her today and reminded her again to watch it.

--------------------
When faced with pain you have two choices....either quit and accept the circumstances, OR make the decision to fight with all the resources you have at your disposal.

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nefferdun
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I ordered it about 6 months ago. It makes me cry every time I see it. When members of my family watched it they were stunned - complete silence - and then very apologetic that they did not realize what was happening to me.

--------------------
old joke: idiopathic means the patient is pathological and the the doctor is an idiot

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Razzle
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Yup. I have the DVD and have watched it several times. Excellent movie. I don't understand how the ALDF can deny the existance of spirochete biofilm, when dentists have been scraping spirochete biofilm from our teeth for decades... Oh well, I guess they're the ones who are nieve enough to believe their own BS...

--------------------
-Razzle
Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs.

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HopesAlive
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Same old repeat list of names on this page (Steere, Shapiro, Baker, Wormser, Krause and on and on):

http://www.aldf.com/about.shtml

And this is laughable (from same page):

"About ALDF

The information on Lyme disease presented on this web site has been reviewed and approved by one or more members of our Board of Directors or Scientific Advisory Board.
Mission Statement

The American Lyme Disease Foundation, Inc. is dedicated to the prevention, diagnosis and treatment of Lyme disease and other tick-borne infections.

The Foundation plays a key role in providing reliable and scientifically accurate information to the public, medical community and government agencies about tick-borne diseases and their effects on human health and quality of life."

What the heck do ANY of them know about "quality of life?" Or for that matter, "reliable and scientifically accurate information?" NOTHING!

--------------------
Best Wishes,

Hope

"Hope is a good thing, maybe the best of things, and no good thing ever dies."

~~The Shawshank Redemption~~

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pooldog71
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With the film on Netflix Instant View, I find it a great way to educate and tell people about Lyme.

Please pass it on to your friends, neighbors, relatives, health care providers, bookies, dealers (as in blackjack), ex-bartenders, preachers, and definitely the lady that cuts your hair.

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Razzle
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Some public libraries also have the DVD available...and this way it doesn't cost anything to view...

--------------------
-Razzle
Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs.

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sickofthis
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I've seen it. So moving...made me cry...for my daughter, for myself, for the people in the video. [Frown]
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RZR
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I have my own copy.

It is very sad. I also cry each time I watch it.

--------------------
Tick bite May 2009
Diagnosed June 2009

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scorpiogirl
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Funny, every time people come to visit I serve them food and then I put in the DVD. Yes I actually held my family/friends hostage!

I watch it when I feel lonely and isolated. It makes me feel better to know I'm not alone in fighting this and that people DO get better!

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lymeboy
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I only watched it once. It was excellent, but i get too upset watching it. I would like to see a documentary by the same folks on the science of Lyme disease and the way some people are getting to remission.

"Naive" ....hoo boy that's rich

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hammond
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Thank you Stillwater for posting about the Allen Steere connection. I was just composing an e-mail to them when I read your comment. Look what I was writing to them about. I didn't even get the connection to Steere. LOL!!!

Dear Dr. Phillip Baker,

I think that Under Our skin is an unbalanced documentary that does not objectively look at the issues involved in treating Lyme . But the biological mechanisms that allow Burgdorferi spirochetes to evade the host immune system AND the standard antibiotic treatment course recommended by the IDSA is well understood. I was diagnosed by Allen Steere in 1985, treated with tetracyline for three weeks in 1985 and had a CDC confirmed Western Blot in 2009 after living in Chicago for 20 years. Do you think I was bitten in Chicago? I am one of hundreds of thousands in America who are just beginning their journey with Lyme. Mountains of more data is in the pipeline. I , in fact, 'am the beginning of the wave of people who will repeatedly test positive with Lyme antibodies for years to come. Now we have PCR tests. Truth may well be that Lyme can be chronic. Science demands objectivity, and your hypothesis is still subject to future data. The number of societies and international organizations that choose one side or the other is irrelevant. In the end, the data is king. Are you still so sure of your stance on chronic Lyme in light of the shear volume of new patients and the potential inertia of their raw data?


Guess I won't get a reply.

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hammond
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Sorry Stillwater......... In regards to the connection between the American Lyme Disease Foundation "them" and Allen Steer.
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Robin123
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I've seen it several times, including at well-attended events with great Q&A afterwards, including with the filmmakers.

It also showed here for a week and I met the audiences after each showing - well, I live nearby and this was my week's project!

I handed out info, but the most important part was that many people went to see the film who were symptomatic and I was able to steer them to Lyme-literate physicians afterwards.

My dentist saw it was on Netflix and asked if it was a horror film! I persuaded him that he would be able to watch it without needing a gag basin too often, and he reported back to me that he was glad he had watched it!

Note that the early Steere et al papers acknowledged that it was a relapsing illness...

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Abxnomore
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Yes, I saw it twice.
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ukcarry
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Yes, I too have my own copy and several of us in UK have bought 2 copies in order to give one to the local GP surgery in the hope that at least one of the doctors might watch it.

It is very powerful. My American sister-in-law won't watch it because she doesn't want to be put off the countryside.

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katiebobatie
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i've seen it several times...

i wish all my friends and family would watch it.

i've asked several of my friends to watch it, but none of them have bothered [Frown]

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