posted
I was advised to watch it on PBS last night, but didn't get the PM in time. My daughter who knows what I am now going through texted me about it, but it was almost over by the time I got the text. I went online to see some clips, and then I took a shot to see if the DVD was available form Netflix.
Bingo!
Not only the DVD, but is is presently available on "instant view". It was already very late (insomnia), but I stayed up until 3 AM, then woke up and watched the rest of it this morning. Mind-boggling. Holy cow, I have a bunch of investigating to do now.
I don't want to comment until I have seen it at least two more times, but I wanted those who haven't yet seen it to know that it is available to view this minute if you are a Netflix subscriber.
Posts: 50 | From Saratoga Springs, NY | Registered: Jun 2011
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quote:Originally posted by sandyk: Check out what the American Lyme Disease Foundation said about the film!!! Unbelievable. http://www.aldf.com/Under_Our_Skin.shtml
quote .. "A partisan film such as this can only undermine public health by encouraging naïve individuals to seek unproven remedies from LLMDs to relieve symptoms that, though deserving of appropriate medical treatment and care, may well have nothing to do with Lyme disease."
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 95672 | From Texas | Registered: Feb 2001
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posted
I did. I bought a copy then lent it to family, then gave it to my LLMD to lend out. The girl that got it right after giving it to my LLMD thanked me profusely. I am glad it's now available to rent and on tv.
Two things bothered me about the movie. 1st, the ranger, at the end he and his kids were in weeds. 2nd, finding out that many supported B's legal funding and he won, and then retired. People must've been terribly disappointed and hurt.
posted
Sandy .. click on the quote thing and then remove the [qb] and the /qb]
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 95672 | From Texas | Registered: Feb 2001
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t9im
Frequent Contributor (1K+ posts)
Member # 25489
posted
They ignore the evidence. Notice Steere has been blocking Dr. M's cyst work for years. Now Dr. S has confirmed it with the atomic microscope. Hopefully her papers will be published.
-------------------- Tim Posts: 1111 | From Glastonbury, CT | Registered: Apr 2010
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quote:Originally posted by sandyk: Check out what the American Lyme Disease Foundation said about the film!!! Unbelievable. http://www.aldf.com/Under_Our_Skin.shtml
quote .. "A partisan film such as this can only undermine public health by encouraging naïve individuals to seek unproven remedies from LLMDs to relieve symptoms that, though deserving of appropriate medical treatment and care, may well have nothing to do with Lyme disease."
Oh yes, let's see.. my husband was VERY NAIVE to have gone to 40 lyme-illiterate doctors that could not diagnose his condition causing them not to be able to give him the appropriate medical treatment and care that he freakin DESERVED more than anything in the world over the course of 3 years.
So, this then ENCOURAGED us very NAIVE people who finally through much research of our own had a suspicion of Lyme diseas and seeked out an LLMD who gave us the appropriate treatment that we deserve and we actually began to feel better and it put us on track to get our lives back!
Imagine that? How stupid we all are..
I can remember that day very well, I'm looking at the Lyme symptoms and I turned to my husband and said "Oh my god.. I think this may be lyme disease!!" NAIVE move I guess..
OH THIS MAKES ME SOO MAD!
Posts: 159 | From Toms River, NJ | Registered: Nov 2008
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scorpiogirl
Frequent Contributor (1K+ posts)
Member # 31907
posted
I have two copies one is my Lyme bible the other is on loan for friends and family.
-------------------- Posts: 1391 | From Lyme Land | Registered: May 2011
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philly78
Frequent Contributor (1K+ posts)
Member # 31069
posted
I watched it with my hubby. It made him cry.
I had told my mom I wanted her to watch it but I knew she would forget. That's why when I was over there last week, I set the recording on her TV and recorded it when it aired on PBS.
I called her today and reminded her again to watch it.
-------------------- When faced with pain you have two choices....either quit and accept the circumstances, OR make the decision to fight with all the resources you have at your disposal. Posts: 1000 | From PA | Registered: Mar 2011
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nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
I ordered it about 6 months ago. It makes me cry every time I see it. When members of my family watched it they were stunned - complete silence - and then very apologetic that they did not realize what was happening to me.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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Razzle
Frequent Contributor (1K+ posts)
Member # 30398
posted
Yup. I have the DVD and have watched it several times. Excellent movie. I don't understand how the ALDF can deny the existance of spirochete biofilm, when dentists have been scraping spirochete biofilm from our teeth for decades... Oh well, I guess they're the ones who are nieve enough to believe their own BS...
-------------------- -Razzle Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs. Posts: 4166 | From WA | Registered: Feb 2011
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What the heck do ANY of them know about "quality of life?" Or for that matter, "reliable and scientifically accurate information?" NOTHING!
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Hope
"Hope is a good thing, maybe the best of things, and no good thing ever dies."
~~The Shawshank Redemption~~ Posts: 234 | From Minnesota | Registered: Dec 2010
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posted
With the film on Netflix Instant View, I find it a great way to educate and tell people about Lyme.
Please pass it on to your friends, neighbors, relatives, health care providers, bookies, dealers (as in blackjack), ex-bartenders, preachers, and definitely the lady that cuts your hair.
Posts: 164 | From California | Registered: Aug 2009
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Razzle
Frequent Contributor (1K+ posts)
Member # 30398
posted
Some public libraries also have the DVD available...and this way it doesn't cost anything to view...
-------------------- -Razzle Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs. Posts: 4166 | From WA | Registered: Feb 2011
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posted
I've seen it. So moving...made me cry...for my daughter, for myself, for the people in the video. Posts: 41 | From Somewhere over the rainbow | Registered: Apr 2011
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RZR
Frequent Contributor (1K+ posts)
Member # 20953
posted
I have my own copy.
It is very sad. I also cry each time I watch it.
-------------------- Tick bite May 2009 Diagnosed June 2009 Posts: 2329 | From SouthEast | Registered: Jun 2009
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scorpiogirl
Frequent Contributor (1K+ posts)
Member # 31907
posted
Funny, every time people come to visit I serve them food and then I put in the DVD. Yes I actually held my family/friends hostage!
I watch it when I feel lonely and isolated. It makes me feel better to know I'm not alone in fighting this and that people DO get better!
-------------------- Posts: 1391 | From Lyme Land | Registered: May 2011
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lymeboy
Unregistered
posted
I only watched it once. It was excellent, but i get too upset watching it. I would like to see a documentary by the same folks on the science of Lyme disease and the way some people are getting to remission.
posted
Thank you Stillwater for posting about the Allen Steere connection. I was just composing an e-mail to them when I read your comment. Look what I was writing to them about. I didn't even get the connection to Steere. LOL!!!
Dear Dr. Phillip Baker,
I think that Under Our skin is an unbalanced documentary that does not objectively look at the issues involved in treating Lyme . But the biological mechanisms that allow Burgdorferi spirochetes to evade the host immune system AND the standard antibiotic treatment course recommended by the IDSA is well understood. I was diagnosed by Allen Steere in 1985, treated with tetracyline for three weeks in 1985 and had a CDC confirmed Western Blot in 2009 after living in Chicago for 20 years. Do you think I was bitten in Chicago? I am one of hundreds of thousands in America who are just beginning their journey with Lyme. Mountains of more data is in the pipeline. I , in fact, 'am the beginning of the wave of people who will repeatedly test positive with Lyme antibodies for years to come. Now we have PCR tests. Truth may well be that Lyme can be chronic. Science demands objectivity, and your hypothesis is still subject to future data. The number of societies and international organizations that choose one side or the other is irrelevant. In the end, the data is king. Are you still so sure of your stance on chronic Lyme in light of the shear volume of new patients and the potential inertia of their raw data?
Guess I won't get a reply.
Posts: 65 | From oregon | Registered: Jun 2011
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posted
Sorry Stillwater......... In regards to the connection between the American Lyme Disease Foundation "them" and Allen Steer.
Posts: 65 | From oregon | Registered: Jun 2011
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posted
I've seen it several times, including at well-attended events with great Q&A afterwards, including with the filmmakers.
It also showed here for a week and I met the audiences after each showing - well, I live nearby and this was my week's project!
I handed out info, but the most important part was that many people went to see the film who were symptomatic and I was able to steer them to Lyme-literate physicians afterwards.
My dentist saw it was on Netflix and asked if it was a horror film! I persuaded him that he would be able to watch it without needing a gag basin too often, and he reported back to me that he was glad he had watched it!
Note that the early Steere et al papers acknowledged that it was a relapsing illness...
Posts: 13069 | From San Francisco | Registered: May 2006
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Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
Yes, I saw it twice.
Posts: 5187 | From Lyme Zone | Registered: Jan 2009
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ukcarry
Frequent Contributor (1K+ posts)
Member # 18147
posted
Yes, I too have my own copy and several of us in UK have bought 2 copies in order to give one to the local GP surgery in the hope that at least one of the doctors might watch it.
It is very powerful. My American sister-in-law won't watch it because she doesn't want to be put off the countryside.
Posts: 1647 | From UK | Registered: Nov 2008
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