tricia386
Frequent Contributor (1K+ posts)
Member # 29623
posted
I am SOOO SCARED TO start this drug OMGGGG ( I am goin to start out slow I cut the pills into 3's and going to take 1/3 of it this morning and do this for a few days...then work my way up to a half...then a full....etc...
-------------------- Lyme activated in April 2010 by gardasil vaccine. DX: Lyme,Babs,Myco,Bart 11/10 Treatment Started: 3/28/11 Posts: 1752 | From Albany, NY | Registered: Dec 2010
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Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
I've been taking Bactrim DS for 3 weeks.
No real problems so far, but I started herxing 2 1/2 weeks after starting it (last Sat).
At least it must be killing something, and that's good news, since sometimes I don't have much of a herx on some abx.
I started at the full dose.
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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Jamers
Frequent Contributor (1K+ posts)
Member # 28016
posted
I started 5 days ago at 1/2 dose and had what I thought was herxing right away. It wasn't bad but now Im wondering if its herxing or side effects of the pill.
Check out the complete side effects and you can see they resemble lyme disease, especially Bartonella symptoms for me. Its so hard to tell what is normal for herxing and a side effect. I have a very sensitive system and I was okay on the 1/2 pill. I wouldn't worry as much, I put off taking it for 2 Months, and its not that bad.
Just be aware of any side effects.
-------------------- Diagnosed Pos. Lyme Nov. 17, 2010, Igx. Pos. Babesia Duncani March 2011, Igx. Clinical diagnosis for Bartonella Posts: 1127 | From North Carolina | Registered: Sep 2010
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philly78
Frequent Contributor (1K+ posts)
Member # 31069
posted
I've been on it since April with no major problems.
-------------------- When faced with pain you have two choices....either quit and accept the circumstances, OR make the decision to fight with all the resources you have at your disposal. Posts: 1000 | From PA | Registered: Mar 2011
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tricia386
Frequent Contributor (1K+ posts)
Member # 29623
posted
I toook like a quarter of a pill, I did read all the side effects thats why I am soo nervous (
-------------------- Lyme activated in April 2010 by gardasil vaccine. DX: Lyme,Babs,Myco,Bart 11/10 Treatment Started: 3/28/11 Posts: 1752 | From Albany, NY | Registered: Dec 2010
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TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
I took Bactrim DS for nearly a year. It got rid of babesiosis for me.
As soon as I started it, I started with horrible weekly babs flares. The flare was like clockwork--every Friday evening at about 7 p.m. it would start and it would end at about 7 p.m. on Sunday evening.
The rest of the week, I felt great. Normal.
The flare was the worst thing you could imagine. It made me totally non-functional. I just lay there. No moving, no talking, no eating, no drinking, no going to the bathroom, etc. I floated in and out of consciousness.
And, I had this horrible feeling of doom the entire time--like this is how I would feel for the rest of my life. Couldn't reason with my mind about this. Horrible!
When, it lifted, I went back to normal! Strange.
When I reported it to my lyme doc, he said that babs had a 7 day cycle and a 14 day cycle and I was experiencing the 7 day cycle. (So, this was NOT a side effect of the Bactrim.) He had me add artemisinin to encompass the flare (took it Friday through Sunday of each week). It worked like a miracle. First weekend, flare lasted just 6 hours and was very mild--just had to go to sleep. Every weekend less. Then, got the flares every 14 days, and finally, no more flares. That's how I knew I was done.
So, Bactrim was great for me. In April it was 6 years since I completed my treatment and I am still symptom free, enjoying my life.
Posts: 9931 | From Maryland | Registered: Dec 2007
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posted
I am very interested in adding bactrim to my routine as it seems to really treat coinfections. However i have heard different stories about how it treats bartonella but not babesia and vice versa...does anyone have a link to any information on what exactly it treats best? Basically just wondering how much it hits either babs or bart.
Posts: 113 | From south dakota | Registered: May 2011
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My lyme doctor used Bactrim to get rid of my babs, but he also said it hits bart. So, I believe I can give the Bactrim credit for getting rid of my bart too.
The only other bart treatment I had was 30 days of Levaquin right before starting the Bactrim. So, I got rid of bart on Levaquin and Bactrim DS.
Posts: 9931 | From Maryland | Registered: Dec 2007
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Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
I have to say that I am happy that I am herxing on Bactrim DS.
I believe that this means that this abx will help me in the end.
The only other big herx I had was on doxy.
I have wondered to myself if it might be killing babesia since I experienced chills and sweats along with fatigue, lethargy and increased pain.
Can't say for sure...my babs test was neg.
My bart was positive so maybe it's hitting that too.
The good news: I had more energy this afternoon and my chills have not returned since my last dose of ibuprofen at 1:40 pm today....they were returning like clockwork in 6.5-7 hrs since Sat eve...it's a little early to say the chills are done, but I am hopeful.
Don't be too afraid..take it one day at a time.
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
I was very worried at first too because I actually broke out in hives when I was young and took a sulfa drug. I expected to have a reaction so I started with a very low dose. I read it helps your body de-sensitize to it. I had no trouble and it was one of the best meds I ever used.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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( I am goin to start out slow I cut the pills into 3's and going to take 1/3 of it this morning and do this for a few days...then work my way up to a half...then a full....etc...
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