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» LymeNet Flash » Questions and Discussion » Medical Questions » Hesitant starting Tindemax for Child....advise

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Author Topic: Hesitant starting Tindemax for Child....advise
jenn
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Member # 21687

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Daughter 12 is on combo azithro and mino and doing great...llmd wants to start pulsing tindemax on the weekends.

My llmd gave me rx for tindemax also, but Not pulse therapy. Neither of us has started Tindemax yet.

Tindemax seems to have a link with Malignant Cancerous Tumors.

Can you share your knowledge and experience using this drug....

was thinking of trying Grapefruit seed extract as cyst buster.

I know Cyst buster is essential for Lyme treatment, but looking for safer alternitives if available.

Posts: 501 | From Hudson Ticky Valley, NY | Registered: Aug 2009  |  IP: Logged | Report this post to a Moderator
Garden
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I don't know - my 5 year old did 3 weeks of Tindamax after a tick bite (tick was on for 2 days before I found it - daughter has seen it, but did not know what it was).

That said, Alinia is also a great cyst-buster.

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Garden

"Fibromylagia" for 8+ years
Pos IgeneX WB per both Igenex and CDC
Pos Neuroscience MyLymeImmuneID
Started tx for Lyme in March 2011

Posts: 245 | From East Coast | Registered: May 2011  |  IP: Logged | Report this post to a Moderator
norcal
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Garden where did you get the info about alinia? I took this drug early on and I never was told this.
Posts: 342 | From northern california | Registered: Dec 2010  |  IP: Logged | Report this post to a Moderator
ktkdommer
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The three of us are on tindamax two days a week. No side effects. I am also doing grapefruit seed extract. My kids are 15 and 18. It has been a year of taking it.

We did herx a bit in the beginning on day 2.

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Things are never dull. After 3 fighting Lyme, 2 are in remission. Youngest is still sick, age 22. He has new diagnosed Chiari Malformation and Ehlers Danlos Syndrome.

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sickmate
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after all i have experienced with tindamax i wouldnt give it to a child.
Posts: 214 | From Home | Registered: Apr 2011  |  IP: Logged | Report this post to a Moderator
Garden
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quote:
Originally posted by norcal:
Garden where did you get the info about alinia? I took this drug early on and I never was told this.

My practioner told me. She seems to know her stuff pretty well, but who knows.

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Garden

"Fibromylagia" for 8+ years
Pos IgeneX WB per both Igenex and CDC
Pos Neuroscience MyLymeImmuneID
Started tx for Lyme in March 2011

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sickofthis
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My 14 yo dd has been pulsing Tindamax for 5.5 months. It does cause significant herxes for her but she is finally improving and herxing less when she takes it.
Posts: 41 | From Somewhere over the rainbow | Registered: Apr 2011  |  IP: Logged | Report this post to a Moderator
JunkYardWily
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ive been on it for a few months and it is an easy drug for me, flagyl was much harder.

i didnt know it caused cancer tho...

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sick since 9-09
igg, 18,23,41 reactive
igm, 41 reactive

Posts: 436 | From Kansas City | Registered: Jan 2010  |  IP: Logged | Report this post to a Moderator
   

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