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» LymeNet Flash » Questions and Discussion » Medical Questions » New test for Lyme?

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Author Topic: New test for Lyme?
JenInMa
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Member # 31544

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Hello,
Is anyone familiar with this test?

https://www.neurorelief.com/index.php?p=cms&cid=46

My LLMD is recommending it after a IGeneX test came back indeterminate.
I'm wondering if their combination of test types mirror what we can get through IGeneX and quest.

Thanks,
Jen

--------------------
IGG 41++, 58+
IGM 31 IND, 41 IND, 83-93 IND

Son (most chronically ill)
IGG 41+
IGM 39 IND, 41+++
Bartonella positive

Daughter
IGG 39 IND, 41++, 58+
IGM 31+, 41 IND, 83-93+

Posts: 39 | From Boston, Ma. | Registered: Apr 2011  |  IP: Logged | Report this post to a Moderator
steve1906
Frequent Contributor (1K+ posts)
Member # 16206

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Hi Jen,

I've never had this test myself but, I've heard most insurance Co. won't cover this new test.

I've also read it cost about $1,000.

Do a search on the name of the test, lots of info out there!!!

Good luck...

--------------------
Everything I say is just my opinion!

Posts: 3529 | From Massachusetts Boston Area | Registered: Jul 2008  |  IP: Logged | Report this post to a Moderator
jeffinca11
LymeNet Contributor
Member # 25584

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There are some good labs out there besides Igenex that actually take insurance.

Medical Diagnostic Labs tests for both lyme and co-infections. http://www.mdlab.com

They also show the entire Western Blot strip. Call and ask them to ship you a patient test kit for tick born diseases.

Stony Brook University has a famous Lyme testing Lab. They will ship the test kit to your doctor only.

http://www.path.sunysb.edu/labsvs/ticklab.htm

Ask your doctor to have the lab "report all bands"

Imugen tests for Babesia, Ehrlichia and Lyme.

http://www.imugen.com

Clongen is a very good lab. Call and ask them to send you a test kit. They do not take any insurance. They test for lyme and co-infections.

http://www.clongen.com

Good luck.

Posts: 165 | From lymeland | Registered: Apr 2010  |  IP: Logged | Report this post to a Moderator
Jason21
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I am not familiar with that test. I thought preliminary studies showed that LIPS testing for LD looked very promising.

There were several web articles last year regarding how the National Institutes of Health thought LIPS testing for LD was going to be very accurate. I believe there was also a positive reference to LIPS testing in the winter issue of the Lyme Times, but it was still in the research phase in the USA.

Anybody have any new info on LIPS?

--------------------
Igenex WB IgM 28+, 31IND, 34IND, 41+
WB IgG 30+, 31IND,39 IND, 41++++, 58+, 83-93IND
CD57 = 56
Prob infected since 2000
Doxy, Zith, Biaxin, Flagyl, Levaquin, Tindamax, Cipro
Highly Recommended: Trigger Point Therapy Workbook by Clair Davies

Posts: 137 | From South Carolina | Registered: Jul 2008  |  IP: Logged | Report this post to a Moderator
Beagle
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Member # 29698

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Jen, I had the test and recently received results.
It's done at Pharmasan Labs thru Neuro Science.

It was $450.00 without the WEstern Blot. This price only lasts thru July 31st. They are having a promotion to get their new test name out there.

I think it is definately worth it., if you have a good LLMD.


Beagle

Posts: 348 | From MA | Registered: Dec 2010  |  IP: Logged | Report this post to a Moderator
Beagle
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Jen, also I see you are from MA, would you be willing to PM to me who your doctor is that ordered the test? I need a new LLMD, as mine seems to have backed off when my PCP and Infectious Desease Doctor called the Neuro Science new Lyme ID test fraudulent. Mind, you these are the same doctors who said that if I had any lab results from Igenex that they don't want to see it, as Igenix is junk Lab!! I have positive results again on the Neuro Science test, but currently at a stand still and really need an LLMD.

thanks in advance if you can PM me.


Beagle

Posts: 348 | From MA | Registered: Dec 2010  |  IP: Logged | Report this post to a Moderator
   

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