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» LymeNet Flash » Questions and Discussion » Medical Questions » What do you tell your PCP?

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Author Topic: What do you tell your PCP?
Member # 20119

Icon 1 posted      Profile for miles2go   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
When you go to see your PCP or another doctor, they begin by asking what medicines and/or supplements you are currently taking. What do you tell them? Do you tell them what abx you are taking from your LLMD but that you can't tell the name of the LLMD? And, can't they call the state capitol and find out what scrips you've had filled as well as the name of the treating doctor anyway? I told my PCP what meds I'm on when I went there for something else and now I'm wondering if I put my LLMD at risk.
Posts: 75 | From Va. | Registered: Apr 2009  |  IP: Logged | Report this post to a Moderator
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My pcp knows my situation and meds. He just helps me with my non-lyme related issues.
I try not see any other docs, but when I need to I just usually give them Rx's and don't mention supplements unless they specifically ask.
Oh and my Gyno doc, he knows about my situation and doesn't say much about it, just does the yearly exam and moves on.

When I've been to ER, I try not and indulge lyme, but I did on one occasion, and they specifically told me several times "We are only treating your headache, not lyme, you will need to call your physican on Mon. and let him know what's going on so he can advise you. We take no responsibility for the lyme or it's treatment."

One day at a time

Posts: 409 | From TX | Registered: Mar 2004  |  IP: Logged | Report this post to a Moderator
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Member # 13952

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My LLMD sends a consult note to my PCP every month. He is fully aware of my current treatment.

If I need to see another specialist or go to urgent care, then I will bring a copy of my med list. They should know what you are taking so that they can make appropriate testing and treatment decisions.

What information you share about your LLMD is up to you. If you are concerned about this, then maybe you should ask your LLMD what they would recommend.

Posts: 5237 | From here | Registered: Nov 2007  |  IP: Logged | Report this post to a Moderator
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I don't have a PCP. My LLMD is my PCP... I'm done seeing other Drs where I have to justify and defend my treatment. My LLMD can pretty do everything for me so I have not had a need for a PCP.


Posts: 1391 | From Lyme Land | Registered: May 2011  |  IP: Logged | Report this post to a Moderator
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My PCP knows everything I m on and that I'm treating lyme. He is a new doc for me as my old one was really a jerk.

When I first met him and told him about the lyme, he basically said he took a very conservative approach when it came to lyme disease and that he probably wouldn't agree with a lot of the things my other doc was doing.

But he also said it was my choice and he wouldn't interfere.

When faced with pain you have two choices....either quit and accept the circumstances, OR make the decision to fight with all the resources you have at your disposal.

Posts: 1000 | From PA | Registered: Mar 2011  |  IP: Logged | Report this post to a Moderator
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I usually only go to the PCP for an annual well woman exam and to get HRT. I only mention Lyme if I have to.

I went to her once for an EKG at the request of my LLMD, so now she knows I am treating Lyme. I only mention one of the abx I am on.

She feels obligated to tell me her concerns and I tell her why I am doing it anyway. I am hoping she will see that Lyme treatment can be beneficial and not especially dangerous.

It is all very civil and I don't really mind what little discussion we have about it. I would switch if she had a different attitude about it. I don't tell her about all the abx I am on, just because I really don't want to have that conversation with her.

Since she doesn't write any prescriptions for me, other than HRT, I don't think she really needs to know all the details.

Posts: 984 | From US | Registered: Dec 2007  |  IP: Logged | Report this post to a Moderator
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My PCP is my Lyme doc. If I see another MD or go to the ER, I tell them everything I'm taking to avoid potential interactions. When asked why I'm on these things, I give them the diagnosis list minus the Lyme...I have enough other diagnoses to more than explain why I'm taking the things that I am...

Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs.

Posts: 4165 | From WA | Registered: Feb 2011  |  IP: Logged | Report this post to a Moderator
Member # 9197

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I had to leave my former PCP and find one that was ok with the fact I had Lyme and had a Lyme doctor. That's one solution, if you can do it, to find one you can talk with.
Posts: 13041 | From San Francisco | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
Igor's mom
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Member # 29191

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My PCP ran the Ingenex test and when the results came back positive she refused to treat me-saying at first I don't seem like I have lyme and then she didn't know how to treat me and didn't know who to send me to. When I went back to demand doxy, she said some pediatricians told her she should treat me so she gave me a months course of doxy which I couldn't tolerate after ten days too much nausea.. Then I found another LLMD who started me on mino and plaq butnever ran co-infectin tests other than bart. He never told me what infections I had. After a few months of that I found this website and some wonderful help that led me to my new LLMD. who is also an internist. She copies my PCP on all my monthly blood work but I haven't been back for months. Tired of fighting her about the diagnosis. In the meanwhile I got c diff and when I talked to those doctors at Hopkins and St. Joseph's hosp in BAlt. about the lyme they didn't judge me or question it, only told me I had to stay off the ABX until the c diff cleared, that certain ABX can make c diff recurr. I just don't think there are any LL PCPs around here in VA or DC. Mine was a holistic PCP used both traditional and accupuncture etc, still not willing to accept the lyme diagnosis. So when I go on Monday for my procedure I will tell them about the mepron I took this morning but I didn't tell them about A-L and A-BArt, A-BAbs, not sure what use it is for them. I just will stop taking them today so they don't interfere with the anaesthesia. Its a tough call who to tell and how much.

Igenenex + IGM 18, 23-25, 31, 41, 66, FL 1953, bart, babs, erlich, c diff. Dox 10/10,11/10-5/11 Mino, Buluoke,plaq (2/10) zith (3/11-5/11), Paragone, Flagyl, Ivermectin, Paromomycin, Ceftin, Nystatin(4/11) mepron (4/11-)BW A-L , A-Bart, A-Bab.

Posts: 254 | From Virginia | Registered: Nov 2010  |  IP: Logged | Report this post to a Moderator

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