LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » How long have you continuously taken Tindamax or Flagyl?

 - UBBFriend: Email this page to someone!    
Author Topic: How long have you continuously taken Tindamax or Flagyl?
bcb1200
Frequent Contributor (1K+ posts)
Member # 25745

Icon 1 posted      Profile for bcb1200     Send New Private Message       Edit/Delete Post   Reply With Quote 
I have heard some have taken it daily for weeks / months, while others pulse it a few days a week / month.

I was just curious how long people have taken it continuously on a daily basis?

Given the new research from Eva Sapi, I'd like to take it for a longer stretch.

--------------------
Bite date ?
2/10 symptoms began
5/10 dx'd, after 3 months numerous test and doctors

IgM Igenex +/CDC +
+ 23/25, 30, 31, 34, 41, 83/93

Currently on:

Currently at around 80% +/- most days.

Posts: 3110 | From Massachusetts | Registered: May 2010  |  IP: Logged | Report this post to a Moderator
baileypup
LymeNet Contributor
Member # 22824

Icon 1 posted      Profile for baileypup     Send New Private Message       Edit/Delete Post   Reply With Quote 
I've taken Tindamax for a year and a half straight. Just the last few months my LLMD has me skipping one week a month.
Posts: 964 | From san diego | Registered: Oct 2009  |  IP: Logged | Report this post to a Moderator
Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936

Icon 1 posted      Profile for Abxnomore     Send New Private Message       Edit/Delete Post   Reply With Quote 
Tinidazole for two years.
Posts: 5187 | From Lyme Zone | Registered: Jan 2009  |  IP: Logged | Report this post to a Moderator
bcb1200
Frequent Contributor (1K+ posts)
Member # 25745

Icon 1 posted      Profile for bcb1200     Send New Private Message       Edit/Delete Post   Reply With Quote 
quote:
Originally posted by Abxnomore:
Tinidazole for two years.

Every day?

--------------------
Bite date ?
2/10 symptoms began
5/10 dx'd, after 3 months numerous test and doctors

IgM Igenex +/CDC +
+ 23/25, 30, 31, 34, 41, 83/93

Currently on:

Currently at around 80% +/- most days.

Posts: 3110 | From Massachusetts | Registered: May 2010  |  IP: Logged | Report this post to a Moderator
Wonko
LymeNet Contributor
Member # 18318

Icon 1 posted      Profile for Wonko     Send New Private Message       Edit/Delete Post   Reply With Quote 
I've been on tindamax twice, first in winter '09 and then again recently. I felt very sick while on it and never lasted for more than a couple of weeks.
Posts: 455 | From Was in PA, then MD, now in the Midwest | Registered: Nov 2008  |  IP: Logged | Report this post to a Moderator
scorpiogirl
Frequent Contributor (1K+ posts)
Member # 31907

Icon 1 posted      Profile for scorpiogirl     Send New Private Message       Edit/Delete Post   Reply With Quote 
Tinidazole everyday for 15 months. I stopped in July and will pulse Flagyl IV one week per month starting this month.

--------------------
 -

Posts: 1391 | From Lyme Land | Registered: May 2011  |  IP: Logged | Report this post to a Moderator
TF
Frequent Contributor (5K+ posts)
Member # 14183

Icon 1 posted      Profile for TF     Send New Private Message       Edit/Delete Post   Reply With Quote 
Flagyl 3 times per day for 2 months.
Posts: 9931 | From Maryland | Registered: Dec 2007  |  IP: Logged | Report this post to a Moderator
Jason21
LymeNet Contributor
Member # 16393

Icon 1 posted      Profile for Jason21     Send New Private Message       Edit/Delete Post   Reply With Quote 
Flagyl for 6 months. Tindamax and cipro for 6 months. There is info out there that cipro helps to shuttle tindamax into the cells where it can attack all forms of LD.

Also, Dr. B mentions that taking a PPI with an abx like levaquin may make the abx be more effective in treating the infection.

--------------------
Igenex WB IgM 28+, 31IND, 34IND, 41+
WB IgG 30+, 31IND,39 IND, 41++++, 58+, 83-93IND
CD57 = 56
Prob infected since 2000
Doxy, Zith, Biaxin, Flagyl, Levaquin, Tindamax, Cipro
Highly Recommended: Trigger Point Therapy Workbook by Clair Davies

Posts: 137 | From South Carolina | Registered: Jul 2008  |  IP: Logged | Report this post to a Moderator
Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936

Icon 1 posted      Profile for Abxnomore     Send New Private Message       Edit/Delete Post   Reply With Quote 
Yes, 3x a day.

[ 08-17-2011, 12:12 PM: Message edited by: Abxnomore ]

Posts: 5187 | From Lyme Zone | Registered: Jan 2009  |  IP: Logged | Report this post to a Moderator
sbh93
LymeNet Contributor
Member # 30429

Icon 1 posted      Profile for sbh93     Send New Private Message       Edit/Delete Post   Reply With Quote 
Man, all this long-term tindamax use without people being in remission is not a good selling point for it, despite Sapi's research...

--------------------
------------
It took 20 years to find out I'm not crazy.
New bite in 2010 pushed my body over the edge. Positive for lyme, babs, bart, and myco.
I am not a doctor and happily offer only my own opinions.

Posts: 357 | From The Beach | Registered: Feb 2011  |  IP: Logged | Report this post to a Moderator
joysie
LymeNet Contributor
Member # 11063

Icon 1 posted      Profile for joysie     Send New Private Message       Edit/Delete Post   Reply With Quote 
Tindamax, 9 months, twice a day.
Posts: 520 | From Maryland | Registered: Jan 2007  |  IP: Logged | Report this post to a Moderator
mr al
LymeNet Contributor
Member # 18191

Icon 1 posted      Profile for mr al     Send New Private Message       Edit/Delete Post   Reply With Quote 
twice a day for a long time.

Can you explain why you are asking? Is it bad. I can't understand all the med talk like most of you can. [Frown]

Posts: 105 | From east | Registered: Nov 2008  |  IP: Logged | Report this post to a Moderator
ktkdommer
Frequent Contributor (1K+ posts)
Member # 29020

Icon 1 posted      Profile for ktkdommer     Send New Private Message       Edit/Delete Post   Reply With Quote 
All 3 of us take tindamax two days a week, two a day. It has been a year at least.

--------------------
Things are never dull. After 3 fighting Lyme, 2 are in remission. Youngest is still sick, age 22. He has new diagnosed Chiari Malformation and Ehlers Danlos Syndrome.

Posts: 1366 | From Perrysburg, Ohio | Registered: Nov 2010  |  IP: Logged | Report this post to a Moderator
Rumigirl
Frequent Contributor (1K+ posts)
Member # 15091

Icon 1 posted      Profile for Rumigirl     Send New Private Message       Edit/Delete Post   Reply With Quote 
In spite of on and off treatment for years (off only due to treatment issues and dr changes), I have yet to have a dr rx a cyst buster, other than GSE!!! I've certainly asked. Frustrating.

One of my drs, who is well known, said he only gives it at the end of treatment!! And he is usually considered aggressive!

But right now I've been off all tx, due to gallbladder/liver/pancreas problems, so . . .
This is not an answer to your question, only a comment of frustration.

Posts: 3669 | From around | Registered: Mar 2008  |  IP: Logged | Report this post to a Moderator
CD57
Frequent Contributor (1K+ posts)
Member # 11749

Icon 1 posted      Profile for CD57     Send New Private Message       Edit/Delete Post   Reply With Quote 
I was curious about this too. Does Flagyl or Tindamax hit other infections like bart?
Posts: 3528 | From US | Registered: Apr 2007  |  IP: Logged | Report this post to a Moderator
thehause
LymeNet Contributor
Member # 21237

Icon 1 posted      Profile for thehause     Send New Private Message       Edit/Delete Post   Reply With Quote 
Where do you all get Tindamax from?
Posts: 372 | From west of the mississitty | Registered: Jul 2009  |  IP: Logged | Report this post to a Moderator
Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936

Icon 1 posted      Profile for Abxnomore     Send New Private Message       Edit/Delete Post   Reply With Quote 
With a script from the pharmacy. Tinidazole has to be gotten from a compounding pharmacy with a script.

Or you can get it from a foreign country, most often without a script. That would most likely be Tinidazole, as it it manufactured by Pfizer as fasigyn but never marketed in the U.S. If you are on the west coast Mexico would be your closest bet.

Posts: 5187 | From Lyme Zone | Registered: Jan 2009  |  IP: Logged | Report this post to a Moderator
Jamers
Frequent Contributor (1K+ posts)
Member # 28016

Icon 1 posted      Profile for Jamers     Send New Private Message       Edit/Delete Post   Reply With Quote 
So which one's more effective, Flagyl or Tindamax? Taking it that long seems crazy!! That doesn't make any sense to me unless you started with it at the very beginning, but still seems like too long.

--------------------
Diagnosed Pos. Lyme Nov. 17, 2010, Igx.
Pos. Babesia Duncani March 2011, Igx.
Clinical diagnosis for Bartonella

Posts: 1127 | From North Carolina | Registered: Sep 2010  |  IP: Logged | Report this post to a Moderator
jkmom
LymeNet Contributor
Member # 14004

Icon 1 posted      Profile for jkmom     Send New Private Message       Edit/Delete Post   Reply With Quote 
I take Flagyl every day. I started in January with a few days a week and worked up to daily.

Last summer, I took Tindamax for a month every day. My LLMD switched me to Mepron to go after babesia when I tested positive.

I felt like I was herxing more on the Tindamax and am going to ask to switch back to that at my next appointment.

Posts: 984 | From US | Registered: Dec 2007  |  IP: Logged | Report this post to a Moderator
DolphinLady
LymeNet Contributor
Member # 6275

Icon 1 posted      Profile for DolphinLady     Send New Private Message       Edit/Delete Post   Reply With Quote 
I took Flagyl for 9 months, no ramping up or pulsing.
Posts: 925 | From California | Registered: Sep 2004  |  IP: Logged | Report this post to a Moderator
AnnaOD20
LymeNet Contributor
Member # 29942

Icon 1 posted      Profile for AnnaOD20     Send New Private Message       Edit/Delete Post   Reply With Quote 
I took Flagyl for 5 months...every day...pretty high dose. Believe it was the culprit behind me developing yeast issues.
Posts: 376 | From New York | Registered: Jan 2011  |  IP: Logged | Report this post to a Moderator
Kramberry
LymeNet Contributor
Member # 34032

Icon 1 posted      Profile for Kramberry     Send New Private Message       Edit/Delete Post   Reply With Quote 
Whats the basis of when you should stop it aside from having side effects.

--------------------
 -

Posts: 215 | From California | Registered: Sep 2011  |  IP: Logged | Report this post to a Moderator
Razzle
Frequent Contributor (1K+ posts)
Member # 30398

Icon 1 posted      Profile for Razzle     Send New Private Message       Edit/Delete Post   Reply With Quote 
I've been on Flagyl daily for a while now (about 2 months) and still haven't reached the target dose...every dose increase hits me hard with herxing, so I know it is still doing something...

I think the reason people aren't better from taking Tindamax/Flagyl is coinfections that aren't susceptible to this type of antibiotic.

Just my $.02...

--------------------
-Razzle
Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs.

Posts: 4165 | From WA | Registered: Feb 2011  |  IP: Logged | Report this post to a Moderator
blinkie
Frequent Contributor (1K+ posts)
Member # 14470

Icon 1 posted      Profile for blinkie     Send New Private Message       Edit/Delete Post   Reply With Quote 
I got tinidazole from my pharmacy no problem. Why do you say it has to come from a compounding pharmacy?
Posts: 1104 | From N.California | Registered: Jan 2008  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.