RZR
Frequent Contributor (1K+ posts)
Member # 20953
posted
I think I have all the symptoms of interstitial cystitis. I saw a urologist last year but was not diagnosed. Symtpoms went away for several months but are back...even worse.
I have upper abdominal burning and burning upon urination, unbearable pain with intercourse. Is this lyme or IC?
How can I get a diagnosis? Is there a successful treatment?
-------------------- Tick bite May 2009 Diagnosed June 2009 Posts: 2329 | From SouthEast | Registered: Jun 2009
| IP: Logged |
Burning upon urination sounds like an infection to me. I have IC and urinating was the only time I was pain free!
There are meds you can take to help with the pain, but first make sure you don't have an infection.
Lyme treatment made 90% of my IC pain go away. I only have occasional flares now and am prone to infections. I also still have frequent urination, but NOTHING like it was before.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
| IP: Logged |
posted
Yeah, I was diagnosed with IC but only had burning during urination when I had an infection set in. Sometimes, though, I would feel the pain first, go in and get tested for a UTI, it would turn out negative, then I would go back a day or two later and have them test again and it would be positive. I think, for me, something would cause the tissues to get sore and irritated first and then the infection would stick and grow from there. My significant other used to laugh that I was more sensitive than their tests were. heh
I'm hoping treating the Lyme will help. I'm not very far into treatment to tell right now, but I'm hopeful.
-------------------- IgM: [18++,31+++,34++,41++,83-93+] [39 IND] IgG: [41 IND] Positive according to IGeneX. Negative according to CDC. Negative for co-infections. Currently treating for Lyme, Bartonella, Babesia Posts: 225 | From Minnesota | Registered: May 2011
| IP: Logged |
mojo
Frequent Contributor (1K+ posts)
Member # 9309
posted
I think the IC and Vulvodynia are from either Bart or Babs. I think my "sensitive bladder" is probably Bart but since I've been treating Babs my Vulvar pain has gotten better - not gone but more tolerable.
Posts: 1761 | From USA | Registered: May 2006
| IP: Logged |
posted
I never had bart.... so mine was either babs or Lyme. I would say Lyme.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
| IP: Logged |
RZR
Frequent Contributor (1K+ posts)
Member # 20953
posted
So, abdominal pain and burning could be caused by a UTI? So, maybe I don't have IC?
This website lists Bactrim DS as a drug to treat UTI. I have been on this for many months...along with Mepron, and rotating Biaxin and Zith every couple months. Is a UTI still possible?
posted
I think it depends on whether the specific UTI bug you may have is affected by the medication or not. I don't know enough about the different kinds of antibiotics to give you any useful info, but I do know that you usually need to know what kind of bug it is to know which will work - thus those broad spectrum ones. You could take a broad spectrum antibiotic, but still not cure the problem until you know what the bug is. Sorry, I'm rambling today. Having a hard time explaining it. stupid brain.
-------------------- IgM: [18++,31+++,34++,41++,83-93+] [39 IND] IgG: [41 IND] Positive according to IGeneX. Negative according to CDC. Negative for co-infections. Currently treating for Lyme, Bartonella, Babesia Posts: 225 | From Minnesota | Registered: May 2011
| IP: Logged |
posted
Right... Bactrim will work on some bacteria and not others.
Get checked out!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
| IP: Logged |
RZR
Frequent Contributor (1K+ posts)
Member # 20953
posted
I highly suspect bart could be my problem, since I have not treated for it. I plan to stay on Mepron a couple more months, but going to add A-bart in another week.
-------------------- Tick bite May 2009 Diagnosed June 2009 Posts: 2329 | From SouthEast | Registered: Jun 2009
| IP: Logged |
posted
Just an update... I've been on antibiotics for about 7 weeks now and my abdominal pain has greatly decreased - yay! There IS a light at the end of the tunnel :-)
-------------------- IgM: [18++,31+++,34++,41++,83-93+] [39 IND] IgG: [41 IND] Positive according to IGeneX. Negative according to CDC. Negative for co-infections. Currently treating for Lyme, Bartonella, Babesia Posts: 225 | From Minnesota | Registered: May 2011
| IP: Logged |
Dogsandcats
Frequent Contributor (1K+ posts)
Member # 28544
posted
I have IC. My doc said it is kind of a "bucket" catch all for pelvic pain. Some symptoms match up, but then others like mine don't sound like others. Yet, the doctor doesn't know where else to put it except IC. I have had all tests, work ups, etc and IC is what they label my lower pelvic pain. It came on a few months before Lyme, so who knows. With all my Lyme treatment my IC and lower pelvic pain is not better.
I don't think I answered a question...just chimed in!
-------------------- God will prepare everything for our perfect happiness in heaven, and if it takes my dog being there, I believe he'll be there.
Billy Graham Posts: 1967 | From California | Registered: Oct 2010
| IP: Logged |
posted
I have mild IC and vulvodynia for about 8 yrs or so. Started during some recurrent bladder infections i was having that was caused by scar tissue narrowing my urethra.
Had a urethral meatotomy to open it up again, poof! Not 1 more infection! But still felt like I had a bad infection plus started having, in my whole vulvar area, burning, stabbing, pinching pains and itching like worms crawling thru my skin.
My gyn at that time didn't hav a clue- almost resorted to exploratory surgery.
Urologist sent me to a gyn he knew who said it was IC and vulvar vestibulitis but I had already researched it by then and knew it was vulvodynia. He put me on a low oxalate diet which got it to a bearable level.
I do pretty well unless I eat or drink something high in oxalates or if I try to take vit C, which is high in oxalates. This was very aggravating to my NP in treating my adrenal fatigue issues. But more so for me!
IC and vulvodynia are really awful- I have just sat (gingerly!) and cried with them so I feel for y'all that suffer too. I really hope that once I get a LLMD and a Lyme dx and start tx mine will go away.
Posts: 77 | From USA | Registered: Sep 2011
| IP: Logged |
posted
Foggy brain made me lose vital info: what helped my IC and vulvodynia the most was acupuncture. About 6 yrs ago started seeing a wonderful acupuncturist in Memphis for fibromyalgia pain (assumed IC and V was part of fibro since both involved nerve pain).
I cud eventually tell the nerves in my hip/sacral region seemed to be connected to that area.
Posts: 77 | From USA | Registered: Sep 2011
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic