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» LymeNet Flash » Questions and Discussion » Medical Questions » needing positive experiences with IV Rocephin

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Author Topic: needing positive experiences with IV Rocephin
searching4truth
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I was just told by my LLMD that he wants me to start IV Rocephin. I have been on antibiotics since December, but I have had to switch a couple of time because my tummy is sensitive.

I have been on Bicillin and Rifampin since April. I was starting to see improvements, but have relapsed the past month and can hardly get out of bed most days. I have children, so I cannot keep up with their needs when I am like this. My husband is working a lot, and I do not have the daily support I so desperately need.

I amscared about doing the IV thing. Not only is it incredibly expensive and risky to my health, I have heard of it not working for many people. I trust my doctor, he is a brilliant physician, but I cannot help but second guess. So I guess I need some people's experiences with this medication, please.

Thanks in advance!

Posts: 427 | From Pacific Northwest | Registered: Oct 2010  |  IP: Logged | Report this post to a Moderator
searching4truth
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anyone?
Posts: 427 | From Pacific Northwest | Registered: Oct 2010  |  IP: Logged | Report this post to a Moderator
beths
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I did IV early on-no problems. It helped put the lyme on the back burner while I started treatment for bart
Posts: 1276 | From maryland | Registered: Jan 2009  |  IP: Logged | Report this post to a Moderator
narrowpath
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Hi - I did the Rocephin thing for 6 weeks 3 years ago. It was really no big deal in regard to administration - took about a 1/2 hour or so each night. I was HAPPY to have it. I was mis-dx with MS, etc. so the abx needed to cross the blood brain barrier. I was a MESS. Have 3 kids... No I'm completely fine. You would never know what I went through. My only lingering issue? Very minor left side neuropathy which flares when I eat sugar or caffeine. Oh, and I was on abx (a variety) for 11 months total. Best wishes to you!
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ktkdommer
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My son just finished 10 months of IV antibiotics this summer and it took him from bedbound back to school. It made a huge difference. No issues with rocephin at all. He is 16 now and will continue on with oral treatment.

My sister is on IV's righ now and has a 5 year old. She is getting better.

--------------------
Things are never dull. After 3 fighting Lyme, 2 are in remission. Youngest is still sick, age 22. He has new diagnosed Chiari Malformation and Ehlers Danlos Syndrome.

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searching4truth
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Thank you all for sharing. It is reassuring to say the least.
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lpkayak
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searching-i am one who often tells ppl NOT to do IV---or at least to really try to make orals work first

IV is important for those who cannot do orals because of gi issues

it is true there can be infections with IV but if you have gi problems that is serious too

trust your llmd. you are the one who does need the iv

and many do fine on it...the thinking is-try orals first cuz they are less dangerous...if they dont work then you go to iv

your doc sounds like he (or she) knows exactly what they are doing. good luck.

--------------------
Lyme? Its complicated. Educate yourself.

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faithful777
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I wouldn't suggest to anyone which specific type of antibiotic treatment to do. The LLMD should make that decision based on each individuals symptoms, tests, etc.

The longer you have had undiagnosed lyme, the more likely IV antibiotics are going to be suggested.

Having a fatal infection is more dangerous than the complications of IV treatments.

--------------------
Faithful

Just sharing my experience, I am not a doctor.

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Bugg
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I absolutely loved IV Rocephin and did great on it...totally brought back my cognitive functioning where oral abx didn't (I had encephalopathy from lyme)...
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TerryK
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I used IM (intra muscular -given by shots) Cefttriaxone (generic rocephin) for 6+ months and 70% of my pain left. I did get lumps (scar tissue) from the shots but it was worth it.

It's been 2 years and the pain has not returned but then I continue on orals. I hope to go on IV early next year.

Landau says she is in remission but still has symptoms. She also used a hyperbaric oxygen chamber.

http://www.rochester.edu/pr/Review/V70N3/gazette04.html
Finally Landaus doctor, afraid that her life was in danger, took drastic measures. He gave Landau an experimental treatment: intravenous antibiotics administered through an artery leading to her heart and 30 days in a hyperbaric oxygen chamber. She was the first patient ever to receive the unapproved treatment.

It saved my life, Landau says of the treatment, but it didnt cure me.

I really think IV may be necessary for some ppl but getting into remission may require other treatments as well (parasites, biotoxins, co-infections, heavy metals, dealing with genetic detox issues etc..)

Terry

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samsy
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Rocephin saved my life
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Lymetoo
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Be sure to do cyst busters as well!

--------------------
--Lymetutu--
Opinions, not medical advice!

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desertlily
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I'll second that, samsy. But Lymtoo's right, I couldn't tolerate anything but the Rocephin for a long time, but now that I'm doing better, we're adding in the cyst busters, so important!

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Susan

Posts: 80 | From Queen Creek, AZ | Registered: Nov 2007  |  IP: Logged | Report this post to a Moderator
   

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