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» LymeNet Flash » Questions and Discussion » Medical Questions » Please Help! LDN now I feel like I am dying

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Author Topic: Please Help! LDN now I feel like I am dying
tricia386
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Hi-

I have been taking LDN for a while and I stopped taking it forgot to get my script filled my LLMD upped me to 4.5

I took it last night now I am jitterey and I feel like I Am dying and I cant stop crying. I dont know what to do....
Please help

--------------------
Lyme activated in April 2010 by gardasil vaccine.
DX: Lyme,Babs,Myco,Bart 11/10
Treatment Started: 3/28/11

Posts: 1752 | From Albany, NY | Registered: Dec 2010  |  IP: Logged | Report this post to a Moderator
tricia386
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up

--------------------
Lyme activated in April 2010 by gardasil vaccine.
DX: Lyme,Babs,Myco,Bart 11/10
Treatment Started: 3/28/11

Posts: 1752 | From Albany, NY | Registered: Dec 2010  |  IP: Logged | Report this post to a Moderator
Carol in PA
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You posted before about having "too many thoughts."
Now jittery and crying.

Do you get premenstrual syndrome?
An antidepressant can help this, will calm the thoughts, reduce the jitters, and stop the crying.

Are you taking magnesium?

Posts: 6947 | From Lancaster, PA | Registered: Feb 2004  |  IP: Logged | Report this post to a Moderator
tricia386
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No I dont have premestural syndrome. I just took LDN last night

--------------------
Lyme activated in April 2010 by gardasil vaccine.
DX: Lyme,Babs,Myco,Bart 11/10
Treatment Started: 3/28/11

Posts: 1752 | From Albany, NY | Registered: Dec 2010  |  IP: Logged | Report this post to a Moderator
lululymemom
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Try upping your detox to clear it out of your system. If you have burbur or pekana that would be great otherwise lots of lemon water or dandelion tea. For me magnesium citrate usually calms down that jittery out of control feeling..

--------------------
IGM 41 IND, 83-93+ IGG 31 IND,34 IND, 41++, 58+, 83-93 IND

31 Epitope test neg.

Bartonella henselae 1:100

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tricia386
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Would LDN cause this at dosage 4.5?

--------------------
Lyme activated in April 2010 by gardasil vaccine.
DX: Lyme,Babs,Myco,Bart 11/10
Treatment Started: 3/28/11

Posts: 1752 | From Albany, NY | Registered: Dec 2010  |  IP: Logged | Report this post to a Moderator
tricia386
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?

--------------------
Lyme activated in April 2010 by gardasil vaccine.
DX: Lyme,Babs,Myco,Bart 11/10
Treatment Started: 3/28/11

Posts: 1752 | From Albany, NY | Registered: Dec 2010  |  IP: Logged | Report this post to a Moderator
lululymemom
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I think that is a high dose to start. I found this information on LDN:

Because LDN tends to initially worsen MS symptoms (especially spasticity), Dr. L. a pharmacist who takes LDN prophylactically, recommends a nightly dose of 1.5 mg the first month, 3 mg the next month, and 4.5 mg thereafter.

For life-threatening conditions such as cancer, the recommended dose is 4.5 mg from the outset. To quote Dr. L.:
The reason we suggest a stepwise titration [for MS patients especially] is to AVOID SIDE-EFFECTS. Three years ago, we found that EVERY PATIENT WHO STOPPED TAKING LDN BECAUSE OF SIDE-EFFECTS STARTED AT 3.0 MG OR HIGHER! There was only one patient who started at 1.5 mg who stopped because of side effects.

Our efforts here should be to help the greater population. Now, there are some tough guys who can go straight to 4.5 mg and have no problems, but I betcha someone with a headache would feel differently or someone whose legs are screwed up in knots or someone who has had the bejeebers scared out of them with nightmares (me).

http://www.webspawner.com/users/sideeffectsofldn/index.html

--------------------
IGM 41 IND, 83-93+ IGG 31 IND,34 IND, 41++, 58+, 83-93 IND

31 Epitope test neg.

Bartonella henselae 1:100

Posts: 2027 | From British Columbia | Registered: Jun 2010  |  IP: Logged | Report this post to a Moderator
tricia386
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Thank you for the info. I hope this feeling passes soon. I am not taking it tonight. I am feeling a lil better i mean a lil not much

--------------------
Lyme activated in April 2010 by gardasil vaccine.
DX: Lyme,Babs,Myco,Bart 11/10
Treatment Started: 3/28/11

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smckibben
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Are you currently taking any pain medication? If you are that might be your problem.
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tricia386
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nope no pain medication, think it was just to high of a dose for me.
my stomach is still a mess but anxiety and that feeling is gone

--------------------
Lyme activated in April 2010 by gardasil vaccine.
DX: Lyme,Babs,Myco,Bart 11/10
Treatment Started: 3/28/11

Posts: 1752 | From Albany, NY | Registered: Dec 2010  |  IP: Logged | Report this post to a Moderator
   

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