posted
Is there any oral formulation, or only an injection?
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MichaelTampa
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The place I bought it from just has an injection. I haven't heard of any oral forms being available.
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posted
Reticent to inject something into myself from an unknown source. Do people do their own injections or get a doctor?
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MichaelTampa
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Does sound a little brave when you put it that way. I have been doing the injections myself.
FYI, this is not IV or anything, just injecting under the skin in the leg (that's where my doc suggested doing it). My doc is on board with the treatment, he was actually the one who brought it to my attention, his office supplied me with the syringes. They are similar syringes as used by diabetics, extremely thin needle.
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tricia386
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Michael how long have you been doing treatment?
-------------------- Lyme activated in April 2010 by gardasil vaccine. DX: Lyme,Babs,Myco,Bart 11/10 Treatment Started: 3/28/11 Posts: 1752 | From Albany, NY | Registered: Dec 2010
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tricia386
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Michael how long have you been doing treatment?
-------------------- Lyme activated in April 2010 by gardasil vaccine. DX: Lyme,Babs,Myco,Bart 11/10 Treatment Started: 3/28/11 Posts: 1752 | From Albany, NY | Registered: Dec 2010
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MichaelTampa
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About a week and a half now. The injections are intended as weekly, and I have had 2 so far.
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tricia386
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Have you noticed anything yet?
-------------------- Lyme activated in April 2010 by gardasil vaccine. DX: Lyme,Babs,Myco,Bart 11/10 Treatment Started: 3/28/11 Posts: 1752 | From Albany, NY | Registered: Dec 2010
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MichaelTampa
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No, I have not noticed any effect at this point. I rely on energy testing and that says it is excellent for me, so I feel good about that, but nothing good or bad reaction-wise to report.
Editing this to point out that I do not really have much in the way of lyme-specific symptoms anymore. I do still have a failing CD57 score, and do still energetically test good for (and take) Byron White herbs for lyme, bart, babs, and fungus. Main symptoms are digestive, candida, and fatigue, which can be lyme related or not. I will not consider myself over the lyme until I get a passing CD57 and test for no longer needing lyme herbs. Since starting this treatment, I have reduced lyme herb dosage from twice a day to once a day, based on energetic testing. So, in that sense I would say progress has been made (whether from this therapy or other things I have been doing).
[ 11-30-2011, 09:18 AM: Message edited by: MichaelTampa ]
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SForsgren
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I consistently got that it was very good with energetic testing as well, but still had a very strong inflammatory response. I still think this is a good sign, but the inflammation can happen even with a good energetic test result.
20-30% of de Meileir's patients had the IRIS response. One common finding was that 7 of those people that had inflammation had Babesia.
I'm at about 10 weeks into therapy and having my second nagalase retest done next week. Sadly, the first one from six weeks ago is still not back. Reportedly, it will be available this week.
I do think it is important for people to understand that GcMAF is derived from another human's macrophages and that any treatment has potential risks.
-------------------- Be well, Scott Posts: 4617 | From San Jose, CA | Registered: Jul 2005
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Marnie
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GcMAF... p53...uPA and uPAR.
"independent of the macrophages"...
Figure out the connections, Scott.
Re: Doxy as first line treatment, but later/too late?
Ongoing inflammation...ONGOING...is a precancerous condition. NOT GOOD.
Scott...take a hard look at Rember.
What it is and how it works...dig deep...it works in *multiple* ways.
I think you know enough about Bb and our response to "get it".
Then there is Reishi...
Posts: 9439 | From Sunshine State | Registered: Mar 2001
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I've been following this thread closely and am interested, but don't understand what you're saying.
Thank you.
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GiGi
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I don't have a clue either what you are talking about, Marnie. Can you simplify things a bit?
Thanks.
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Marnie
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What IS the Rx called Rember? Just "Google" it.
How was that chemical used in the past?
What does it do, i.e., how does it work?
Was it tried as a lyme treatment? If so, why didn't it work?
Note: it can NOT be used/taken if one is on an SSRI (Prozac, etc.) or has a specific gene-type!!!
Dosage/timing OR a
*2nd factor missing*?
It may take two to tango.
Just answer the first 2 questions...let's get a dialog going...about blue chromophores.
I will then try to fill in some puzzle pieces.
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susank
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I'll bite. I googled Rember and nothing came up. Is it/was it - similar to Gcmaf?
-------------------- Pos.Bb culture 2012 Labcorp - no bands ever Igenex - Neg. 4 times With overall bands: IGM 18,28,41,66 IND: 23-25,34,39 IGG 41,58 IND: 39 Bart H IGG 40 Posts: 1613 | From Texas | Registered: Aug 2009
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SForsgren
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My original nagalase was 2.9. After less than one month of GcMAF therapy, I had the rest done on 10/19 which just came back today at 2.1. I will be restesting again next week since I have had 6 more injections since the last test. The first test was after only 6 injections. So hopefully the retest will be at 1.5 or below with a target of 0.4 to 0.6. It's helpful to see some documented progress.
-------------------- Be well, Scott Posts: 4617 | From San Jose, CA | Registered: Jul 2005
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Marnie
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I Googled Rember (you may not have spelled it correctly) and
Rember - Wikipedia, the free encyclopedia
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MichaelTampa
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Here is a link discussing Rember as methylene blue, which apparently was thought to help Alzheimer's. Can't imagine what this has to do with gcMAF.
posted
Scott, that is great that the GcMAF is working! Bummer about all the inflammation though.
I will continue to keep an eye on this thread, thanks for sharing and everything else you do for us all. You are awesome! R
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Tammy N.
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I wonder if elevated nagalase is the ONLY thing that prevents the Vit D receptors from being activated on our macrophages. This treatment works on lowering nagalase only right?
Scott, your nagalase has been coming down. But how are you feeling? (I guess it's hard to tell with the inflammation though.)
I haven't had time to search more on my own. Would like to hear more from people who have completed the treatment to see how much it impacted their health.
Let's keep this thread going. I will reach out to some of my friends who recently started this treatment and see how they are doing. I'll report back when I can.
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SForsgren
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Feeling worse overall; in the midst of a die-off from the GcMAF macrophage activation. I wouldn't expect to be feeling anything positive given the inflammation response but at least there is provable progress with the nagalase results.
-------------------- Be well, Scott Posts: 4617 | From San Jose, CA | Registered: Jul 2005
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Marnie
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"Finally, DBP-maf was shown to cause a
***reduction in urokinase plasminogen activator receptor (uPAR) expression***
in prostate tumor cells. There is evidence that activation of this receptor correlates with tumor metastasis.
Conclusions
These studies show strong inhibitory activity of DBP-maf on prostate tumor cells
In a modified enzyme-linked immunosorbent assay using immobilized, soluble ECM components,
***plasmin-coated B. burgdorferi***
degraded fibronectin, laminin, and vitronectin but not collagen.
Incubation of plasmin-coated organisms with biosynthetically radiolabeled native ECM resulted in breakdown of insoluble glycoprotein, other noncollagenous proteins, and collagen, as measured by release of solubilized radioactivity.
Radioactive release did not occur with untreated spirochetes or spirochetes treated with uPA or PLG alone.
Kinetic and inhibition studies suggested that the breakdown of collagen was indirect and due to prior disruption of supportive ECM proteins.
B. burgdorferi is an invasive bacterial pathogen that may benefit by use of the host�s plasminogen activation system.
The results of this study have identified mechanisms in which the spirochete can use this borrowed proteolytic activity to enhance invasiveness.
B. burgdorferi has also been shown to possess receptors for PLG.
Bb has receptors for PLG (plasminogen) which converts to plasmin which Bb uses to coat "himself" thus triggering the breakdown of fibronectin, laminin (glue that holds our cells together) and vitronectin.
Collagen breakdown is an indirect result.
*******
See abstract (first section of this link) - important:
Note in the above link the level of C5AR in neutrophils...which secrete *elastase* which is supposed to destroy Bb (but in vitro can be quite different than in vivo!)
posted
Tammy, I would love to hear back about your friends who have started GcMaf.
Scott, Does your inflammatory reaction seem like a typical herx like you've had in the past, or something different?
Still wish I knew what Marnie is talking about. I guess I'm not smart enough to figure it out.
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MichaelTampa
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Just got my nagalase test back. The score was 1.40 which is elevated, suggesting GcMAF could help. Blood was drawn November 2, my doctor got the results December 2.
I just took my third injection yesterday, needed a nap a few hours later (related or not, but unusual), and have been energy testing good for "Nrf2 Activator", a product supposed to be good at combating inflamation (could be from injection therapy on shoulder or related to this).
Posts: 1927 | From se usa | Registered: Mar 2010
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quote:Originally posted by Tammy N.: I wonder if elevated nagalase is the ONLY thing that prevents the Vit D receptors from being activated on our macrophages. This treatment works on lowering nagalase only right?
Scott, your nagalase has been coming down. But how are you feeling? (I guess it's hard to tell with the inflammation though.)
I haven't had time to search more on my own. Would like to hear more from people who have completed the treatment to see how much it impacted their health.
Let's keep this thread going. I will reach out to some of my friends who recently started this treatment and see how they are doing. I'll report back when I can.
This is a very good question about the vitamin D receptors.
If scores of people start getting better, I would consider this. But until then, I would definitely take a wait and see approach here.
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SForsgren
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It is much more intense than a normal herx reaction.
Nrf2 Activator is a good option for inflammation and cytokines.
-------------------- Be well, Scott Posts: 4617 | From San Jose, CA | Registered: Jul 2005
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posted
Scott -- Congrats on hearing back that your nagalase levels went down! That's awesome! And, I imagine with all the inflammation you are dealing with, it was a really good thing to hear that there was an objective improvement from it all. So glad for you.
I really hope that the intense symptoms you've been dealing with calm down as things regulate. Hearing that this has been much more intense than a normal herx reaction just shows how much it's been. Herxing over here is often pretty intense
MichaelTampa-- Good luck! I hope this really helps!
As for me, I'll be seeing Dr. K this coming week, so I assume I'll hear for certain whether it's worth it for me to treat even with my reported normal nagalase levels. Looking forward to hearing.
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CD57
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Has anyone heard of the Marshall Protocol, now modified and called Inflammation Therapy? The premise I believe is the cell wall deficient bacteria are responsible for many chronic illnesses.....and the main medication Benicar, has something to do with Vit D receptors......
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CD57
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I just remembered. The cell wall deficient bacteria, per the MP, cause Vit D dysregulation and block Vit D receptors on cells, thus "turning off" the innnate immune system. (Hope I have that right.).
So Tammy, maybe it's more than just nagalase that can do block receptors.
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MichaelTampa
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I think things are progressing well for me here on this gcmaf. Before treatment, I used Byron White herbals for lyme, bart, and babs (all 3 formulas), twice a day. Soon after starting, I started energy testing for only once per day for each of them. Took my 4th injection recently and now no longer test for the babs formula the last few days, and today did not test for the lyme formula. Sounds very positive to me.
I have been fatigued a good bit, typically a first couple/few days following each injection.
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MichaelTampa
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As an FYI, for those considering this, my doc today told me that biopure europe (austria?) is now or will soon be offering a homeopathic GcMAF remedy. It sounded like they were closed for a few weeks until early January, so it may not be possible to get right now, but perhaps soon. Sounds like this would be a lot cheaper, effectiveness of both versions I guess would remain to be seen.
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Tammy N.
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Very cool, Michael, thanks for the update!
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CD57
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anything new here
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Tammy N.
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Any updates from our friends using GcMAF?
Scott, how are you doing?
Best to all, Tammy
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posted
I wanted just to update that I am on the GcMaf Homeopathic. I've only been on it for two weeks and haven't noticed anything yet. As soon as I notice any change I'll post. I do think it is important we keep this post going as I do think it is promising.
I want to add doing the Homeopathic because I'm afraid of the full injection reaction.
-------------------- Misdiagnosed for many years. Treated for many things besides the real issue. Lyme diagnosed April 2008. Parasites diagnosed recently. Past to both my sons. Trying to remain hopeful and thankful. Posts: 144 | From Ohio Valley | Registered: Mar 2009
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MichaelTampa
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I have been on it about 2 months now, cycling on and off as the pendulum says so. I am off now for the last week. About half way through when I got off through pendulum testing, we took nagalase test again, just got results at that point the nagalase level had gone down from 1.40 to 1.00, the "normal" range is something like 0.35 to 0.95, with 0.60 supposedly a good result. I could be at about optimal level now, and am feeling much better.
I'm getting CD57 test this coming week, which I use as a monitoring tool as well. Just got 3 fire ant bites yesterday, ugggh, hope that doesn't screw things up.
FYI I have been using injections, just ordered the homeopathic in case that ends up being better, just to test it out with the pendulum, but my results are from the injections.
I heard at a conference just last weekend that the homeopathic can cause the inflamation reactions just like the injection can, which at least speaks to it's potential power.
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Thanks.
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MichaelTampa
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Dan
The test is actually done in europe, but there is one place in the U.S., Vitamin Diagnostics in New Jersey, that will send it to europe for processing. So you need a doc to get some account/arrangement with them and their test kit to mail to V.D. in NJ.
The homeopathic is called "Homeo K MAF" and is available from Biopure--their Europe website, which will ship to the U.S.
The injectable can be purchased at the website you listed.
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posted
There is a possible alternative to injections and homeopathic remedies. I've recently gone into SuperSupplements inquiring about hcg for weight loss, something that was discussed on this forum. They said that the drops with no hcg in them (homeopathic drops) did not work but the stuff that had some in them (sublingual drops) did work well.
They now have people making their own sublingual drops from injectable hcg. Wonder whether that same thing would work with GcMaf. I don't know how to make the sublingual drops but maybe that would be similar to the hcg procedure. I have that and can post it but it is a lengthy post, about a page. If anyone is interested in trying, and if it's okay to post a page, I'll put it up. Otherwise a search for mixing hcg for subliminal drops or something similar might do the job.
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Tammy N.
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I ordered the homeo K MAF last week, per one of my docs in Dr. K's clinic. I will be starting soon.
Didn't realize it could have the same inflammatory response as the injections. I will be sure to start slowly.
I, too, did not feel comfortable about the injections.
I hope this is a home run for us.
Best to all....
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posted
Hi, Just an update. Had all over body pain today with other nasty symptoms. This is new to me and I am assuming it is coming from GcMaf. I am going to slow down to one drop. Was taking five twice a day. Bad, Bad, Day
-------------------- Misdiagnosed for many years. Treated for many things besides the real issue. Lyme diagnosed April 2008. Parasites diagnosed recently. Past to both my sons. Trying to remain hopeful and thankful. Posts: 144 | From Ohio Valley | Registered: Mar 2009
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MichaelTampa
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Just wanted to report, I ordered the homeopathic version (Homeo K MAF) but still have the real stuff for the injections. Although a couple of the Homeo K products are testing as good for me, the Homeo K MAF is not, even during the last couple days where I have tested for large amounts of the injections.
So, sounds like while the homeopathic is powerful for some (sounds like Truesun may be one such example), for me, looks like it's just the injections...
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CD57
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Anything new here?
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Tammy N.
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I spoke with betterhealthguy recently. He said this was the toughest treatment he's done so far. Crazy inflammation took a long while to subside. Now it is much more manageable. It seems the most notable difference he has seen is that his nagalase level is much lower, for which he is happy about.... he said at least now he has likely decreased his chances of getting cancer.
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MichaelTampa
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I'm getting requests for updates. I don't know that there's a lot new that's going to answer people's nature question of whether this is the magic cure or not, but here is where things are at this point.
I am still on this some. I have taken 9 vials now, each vial is 600 euros plus expensive shipping, so it certainly is not a cheap treatment. Actually, as of today, 600 euros is only $731. Not too long ago it was about $1000, so the price has gone down a bit in that sense (at least for now).
I took it for a few months, got a lot better, then stopped as I stopped energy testing for it. I did start up again, and have been using it with homeopathic lyme nosodes. At times I have tested to take a lot of it, immediately following the lyme nosode. So I think I am targeting the usage against lyme and coinfections.
I haven't run into any of the inflammation problems that betterhealthguy is reporting. My main symptom from this is extreme fatigue, immediately following taking it. In the beginning, within an hour of the dose, I would love to take a nap, even if that wasn't always possible. All the other powerful treatments I have taken have had similar results in terms of fatigue.
I had at a point gotten a good bit of increased energy. Lately, I am fatigued all the time. My nagalase levels are certainly down, but I don't have a recent result. I got it retested 6 weeks ago but haven't got those results yet. It may be with lowered nagalase levels and use of the lyme nosodes, I have my own GcMAF constantly fighting the lyme, causing the consstant fatigue. Or, of course, there are many other possible explanations (perhaps mold in home, thyroid function, yada yada), but I'll note I've had more energy in the past than these days, including one week about a month or so ago.
I do think it is a very powerful treatment. It does not appear to be some magic thing and take some of this for a couple months and magically you're all better no matter what your issues were. It seems possible it could be an important part of getting well. I am not across any such finish line at this point.
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MichaelTampa
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Just got nagalase results today from late June blood draw. It showed 0.85, the lowest yet for me, although very near 0.91 from a couple/few months before. Must say I was surprised with the amount I had taken in that time, that it just went down that much.
It is now in the normal range, per the lab report, although the people making the GcMAF do say if you don't get it down to 0.62, and stop taking it, then it just goes back up. From the conversations I had with them, I do expect them to be very surprised to hear this latest report regarding how little it had gone down.
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