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» LymeNet Flash » Questions and Discussion » Medical Questions » ladies, lichen sclerosis?

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Author Topic: ladies, lichen sclerosis?
Catgirl
Frequent Contributor (5K+ posts)
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Has anyone here been diagnosed with this? My ob thinks I have this.

I just found a link that said it could be caused by infection of a spriochette (no kidding--below).

She wants me to use steroid cream, and I am not sure if I'm supposed to be using anything with steroids.

http://www.righthealth.com/topic/What_Is_Lichen_Sclerosis/overview/uc_kosmixarticles?fdid=uniquecontent1_169a12a725106c4e37ee1e3057b6dbdb

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--Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together).

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sammy
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Yes, I've had this too. Not fun. The steroid cream was absolutely necessary during symptom flares. I couldn't tolerate the sharp burning pain.

My doctor explained that using a small amount of steroid cream seemed to help reduce the amount of scarring and tissue damage that might otherwise occur without treatment. I think she was right.

I got this diagnosis a couple months before I new I had Lyme. When I started seeing my LLMD I asked for his opinion about the steroid cream. He was actually very understanding, said this was a common problem for women with Lyme. He agreed that it was best to treat this to prevent tissue damage.

Thankfully this symptom has resolved for me. Maybe it will get better for you too once you've treated Lyme for awhile.

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cleo
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I have several abstracts stating that it is caused by lyme. Ceftin 2000 daily flared it then took it away. I just went for my annual gyn check and it is gone.

I used steriod cream at its worst.
As long as you are on abx the steriod cream should be okay. I think the problem is when you are not on abx and use steriods is what makes it worse.

Posts: 433 | From new york | Registered: Dec 2004  |  IP: Logged | Report this post to a Moderator
sickandtiredofbeingsandt
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I had it. It was one of the last symptoms of Lyme to arrive before treatment. It took a few months on antibiotics but it was the first symptom to resolve. I haven't gotten it back since I've been off antibiotics.

I still have symptoms of Lyme and am doing an herbal protocol now. If the Lichen Schlerosis comes back, I know I will have backslid and would probably have to go back to antibiotics.

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Sick and Tired of Being Sick and Tired

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lpkayak
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How are you ladies doing with this

I was searching something else and fiund this

I was dx a few weeks ago-my sx are mild as far as pain or itching but i have had unexplained bleeding-very small amount for yearsand at least 4 gyns who missed it

Imnot good at using the steroids-i wonder if i cc oukd get ceftin fir this...it never occured to me it was lyme related

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Lyme? Its complicated. Educate yourself.

Posts: 13710 | From new england | Registered: Feb 2004  |  IP: Logged | Report this post to a Moderator
lpkayak
Honored Contributor (10K+ posts)
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How are you ladies doing with this

I was searching something else and fiund this

I was dx a few weeks ago-my sx are mild as far as pain or itching but i have had unexplained bleeding-very small amount for yearsand at least 4 gyns who missed it

Imnot good at using the steroids-i wonder if i cc oukd get ceftin fir this...it never occured to me it was lyme related

--------------------
Lyme? Its complicated. Educate yourself.

Posts: 13710 | From new england | Registered: Feb 2004  |  IP: Logged | Report this post to a Moderator
canadianmama
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Ug,

Sorry to hear you are dealing with this Ipkayak. I'm following as I have a dear friend who has struggled with this.

She also had bells palsy a few years back, so now I am really thinking I need to get her to look into lyme. No fun, but better then not knowing.

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Dogsandcats
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I have been dianosed with vulvodynia, which sounded close to

Lichen Sclerosis. I guess the biggest difference is the white paperlike tissue....

They still sound close...fyi for all:

http://www.obgmanagement.com/home/article/vulvar-pain-syndromes-making-the-correct-diagnosis/adf17677de6f3aea99bcae752247f87c.html

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God will prepare everything for our perfect happiness in heaven, and if it takes my dog being there, I believe he'll be there.

Billy Graham

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sammy
Frequent Contributor (5K+ posts)
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My symptoms have resolved with Lyme antibiotic treatment.

I'm also on the Nuva Ring to regulate monthly cycles and help reduce Lyme period flares so I think the small amount of estrogen may help with the condition too.

Whatever it is, I'm glad the symptoms are under control, Lichen sclerosis is a very painful and unpleasant condition.

Posts: 5237 | From here | Registered: Nov 2007  |  IP: Logged | Report this post to a Moderator
   

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