WPinVA
Frequent Contributor (1K+ posts)
Member # 33581
posted
I finally got my lab test results back this week and I'm kind of freaked out by how LOW my CD 57 count is. It's 14.
Any idea why it could be so low? I got sick in mid-July, suddenly and severely. (WB positive for bands 41 and 23.) But I read online that it takes a year of having Lyme for the count to get that low. So, if that's true, it doesn't add up.
Could the low count be caused in part by a co-infection, or something else, like a virus, along with the Lyme?
Or, I did take a short course of prednisone before the Lyme dx. Could that do it?
On the labs, I also tested positive for Babesia Duncani. Negative for Bart and Erlichia, although I do have a few symptoms that I wonder about for Bart.
thanks!
Posts: 1737 | From Virginia | Registered: Aug 2011
| IP: Logged |
posted
I can't help you as to why, bur my cd 57 last time it was drawn was 10. Talk about frustrating!
I think for me, there may be viruses involved, but I think that I have overall immune dysfunction...so far in the 2 years I've treated for lyme, my cd 57 has never been higher than 40.
Believe me, I'm sure you don't feel well, I don't either...I have been cdc neg for lyme PRIOR treatment only pos 41 and 31 ind. But did get a pos. for ehrlichia and RMSF.
Maybe the key for us, is building the immune system, so that we have half a chance to fight off all these bugs.
No great answers for ya, but wanted to let you know you are not alone.
Stinks doesn't it?!! mookie
Posts: 151 | From south east | Registered: May 2010
| IP: Logged |
MichaelTampa
Frequent Contributor (1K+ posts)
Member # 24868
posted
Well, maybe a fast drop and maybe the steroids had something to do with it. Another idea would be that you had lyme for a much longer time than you realize.
Posts: 1927 | From se usa | Registered: Mar 2010
| IP: Logged |
posted
Which lab? If it's something other than LabCorp, you can't compare them to each other.
Does the test have a 'reference range?'
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96237 | From Texas | Registered: Feb 2001
| IP: Logged |
WPinVA
Frequent Contributor (1K+ posts)
Member # 33581
posted
Lyme too - It was from LabCorp.
Michael - I was wondering about these things - will ask my doctor.
Mookie - So sorry you have been feeling like this for so long. Thank you for writing. It is good to know I'm not alone.
Posts: 1737 | From Virginia | Registered: Aug 2011
| IP: Logged |
posted
WP- I had mine done at Lab Corp too, and remember-as we treat we should improve. I am always hoping.
mookie
Posts: 151 | From south east | Registered: May 2010
| IP: Logged |
blinkie
Frequent Contributor (1K+ posts)
Member # 14470
posted
Dont read too much into this test. It is an immune system marker. It shows the level of damage to the immune system. You need to also build the immune system up while treating infections.
In Nov 2007, at diagnosis, mine was 26. In Aug. 2010 after three years of treatment it was only 38. Then, I started supplementing things to support immune health, vitamin c, D, and other things. In 2 months my CD57 jumped to 74.
Posts: 1104 | From N.California | Registered: Jan 2008
| IP: Logged |
posted
Low CD-57 indicates active infection usually associated with Lyme and all the other garbage that comes with it. (viruses, parasites,fungi, etc.)
My teenage son, who had active Lyme for a few years, had a low count when he was on long term antibiotics.
He completed the Allergie-Immun holistic therapy last year and his CD-57 count is now normal. He has no Lyme symptoms.
Posts: 163 | From New Jersey | Registered: Oct 2009
| IP: Logged |
Catgirl
Frequent Contributor (5K+ posts)
Member # 31149
posted
Vitamin C, D and magnesium really help. I think it's important to take a two pronged approach to lyme: killing it with abx (if you can), and building up the immune system at the same time.
I've had lyme for years and just had my first cd-57 (lab corp), it was 178. I think it's because I have been on 5000ius of vit D (daily) and 500 vit c, and lots of magnesium, plus some random herbs.
I was on 800ius of vit D (prior to getting diagnosed with lyme) and my vit D level was below normal. I couldn't understand how that could be when I was taking 800 mg a day(lyme eats it)! So I switched to 5000ius (for the past 5 mos), and now it's almost doubled.
Starting to feel better.
-------- bart ,babs, myco, RMSF, CDC pos lyme,
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/