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» LymeNet Flash » Questions and Discussion » Medical Questions » Porphyrin test help?

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Author Topic: Porphyrin test help?
Truesun
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Dr. K recommended my son have the urine porphyrin test done in France. My question is do I need to freeze it before it is maile???

Thanks, Truesun

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Misdiagnosed for many years. Treated for many things besides the real issue. Lyme diagnosed April 2008. Parasites diagnosed recently. Past to both my sons. Trying to remain hopeful and thankful.

Posts: 144 | From Ohio Valley | Registered: Mar 2009  |  IP: Logged | Report this post to a Moderator
Keebler
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I hope you can contact the testing lab itself and confirm "official" shipping instructions. Even if someone here did ship overseas to them in the past, sometimes procedures are updated and even a slight change in shipping could make a huge difference in results.

If you can't connect with the lab (they probably have an English language email option, at least), then I'd call Dr. K's office back and ask them.

I'd like to learn more about this lab just for reference and to add to my Porphyria study notes.

Do you have the name for the lab? A website?

I appreciate any details you can offer.
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Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
Keebler
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Is this it?

If so, As the fee for the Porphyrin test is given in US dollars on this English language site, my guess is that they'd have English language email response.
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http://www.labbio.net/

Phillip Auguste Laboratoire in Paris, France

119 Avenue Philippe Auguste
75011 Paris
Tel : (33)1 43 67 57 00
Fax : (33)1.43.79.00.27

Email: [email protected]


http://www.labbio.net/index.php?page=order

First Morning Urine Tests

(first on list) Porphyrins (toxicity biological marker
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Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
lymie tony z
Frequent Contributor (1K+ posts)
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My question first would be why go for a probable

expensive test of such an obscure hereditary

condition. Especially if no one else in the

family genetic lines manifest this or these

tendancies?

Is this Dr K searching for any particular

reasons for your sons symptoms other than TBD's?

If so, why?

Has your son gone undiagnosed clinically or

otherwise by any reputable llmd?

If this Dr K has anything to do with kinesiology

then I'll withdraw my queries and let you go on

your way.

However, given the symptomology of porphyria as

defined in the Collins dictionary of medicine...

you may want to investigate Dr K's reasons for

such a test request. Sounds to me that this Dr k

is drumming up business for an extremely located

laboratory when I'm sure the test could be done

locally.


zman

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I am not a doctor...opinions expressed are from personal experiences only and should never be viewed as coming from a healthcare provider. zman

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karenl
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Tests locally are used by good doctors and do show good results. There is also a porph group and they work with professors.

But if he ordered it, just do it.

Posts: 1834 | From US | Registered: Oct 2008  |  IP: Logged | Report this post to a Moderator
Truesun
LymeNet Contributor
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Dr. K is very particular about which labs run his tests.. I'm not concerned about the price. It would cost at least that much anywhere. I just thought this test always needed frozen and there are no instructions for that anywhere.

Keebler, it is labbio which it is my understanding Dr. K uses regularly. I'm going to call the office in the morning. I don't want to mess it up.

Thanks all, Truesun

--------------------
Misdiagnosed for many years. Treated for many things besides the real issue. Lyme diagnosed April 2008. Parasites diagnosed recently. Past to both my sons. Trying to remain hopeful and thankful.

Posts: 144 | From Ohio Valley | Registered: Mar 2009  |  IP: Logged | Report this post to a Moderator
   

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