LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » got my cd 57 test results

 - UBBFriend: Email this page to someone!    
Author Topic: got my cd 57 test results
Beth22
LymeNet Contributor
Member # 30232

Icon 1 posted      Profile for Beth22     Send New Private Message       Edit/Delete Post   Reply With Quote 
kinda bummed, as it was 65.
not enough over the magic # of 60 to make me happy. quit abx 3 wks ago, feeling good.
supposed to call the doctor monday to talk about immune support. any thoughts?

Posts: 236 | From Zionsville IN | Registered: Jan 2011  |  IP: Logged | Report this post to a Moderator
kitts
Member
Member # 20542

Icon 1 posted      Profile for kitts     Send New Private Message       Edit/Delete Post   Reply With Quote 
My cd 57 is 65 and I feel good. But I still go up and down with terrible fatigue. I am taking CoQ 10, WHey protein powder, Brocoli sprouts, and more to address immune support. Also B12 injections or sublingual tablets, vitaminC in large amounts. What is a good CD 57 number--I am curious what to shoot for.

--------------------
Kitty
Lyme, Babesia, XMRV virus Diagnosed 2008
Mepron, Zithro, Cepaflexin, Fluconozol, Vitamin, Herb therapy

Posts: 65 | From Kansas | Registered: May 2009  |  IP: Logged | Report this post to a Moderator
Marcie
LymeNet Contributor
Member # 10070

Icon 1 posted      Profile for Marcie     Send New Private Message       Edit/Delete Post   Reply With Quote 
my llmd says over 150.... Does anyone know how accurate this # is? Is it a true indicator of active lyme?
Posts: 323 | From Michigan | Registered: Sep 2006  |  IP: Logged | Report this post to a Moderator
MichaelTampa
Frequent Contributor (1K+ posts)
Member # 24868

Icon 1 posted      Profile for MichaelTampa     Send New Private Message       Edit/Delete Post   Reply With Quote 
I've stopped abx around that score a couple times. It went up for a month or so after, then plummeted down the next month or so. It's not enough, you have more work to do, more than just an herb or two for immune support.
Posts: 1927 | From se usa | Registered: Mar 2010  |  IP: Logged | Report this post to a Moderator
lost11
LymeNet Contributor
Member # 34607

Icon 1 posted      Profile for lost11     Send New Private Message       Edit/Delete Post   Reply With Quote 
Mines normal plus 200. Apparently still have Lyme and company.
Posts: 267 | From South | Registered: Oct 2011  |  IP: Logged | Report this post to a Moderator
thehause
LymeNet Contributor
Member # 21237

Icon 1 posted      Profile for thehause     Send New Private Message       Edit/Delete Post   Reply With Quote 
I just got mine back, after doing 3 months of Rocephin and being on orals for 2 years. It was 47.

I don't know if I still have Lyme or if all the meds I've been on have just cleared out my immune system.

Apparently many immune cells are produced in the gut... so killing your gut w/ abx could reduce your CD57 (in my head this makes sense)???

Posts: 372 | From west of the mississitty | Registered: Jul 2009  |  IP: Logged | Report this post to a Moderator
tickssuck
LymeNet Contributor
Member # 15388

Icon 1 posted      Profile for tickssuck     Send New Private Message       Edit/Delete Post   Reply With Quote 
2.5 years of orals and then 11 months of IV.

My CD57 was 9 [Frown] (AFTER all of above stated tx)

It's not the end-all/be-all test. But I still feel very sick so I do think it's reflective of how ill I am.....what to do.....TS

Posts: 566 | From West Coast | Registered: May 2008  |  IP: Logged | Report this post to a Moderator
RZR
Frequent Contributor (1K+ posts)
Member # 20953

Icon 1 posted      Profile for RZR     Send New Private Message       Edit/Delete Post   Reply With Quote 
Also 2-1/2 years orals.

CD57 was 2 last month. [rant]

I am still very sick also.

--------------------
Tick bite May 2009
Diagnosed June 2009

Posts: 2329 | From SouthEast | Registered: Jun 2009  |  IP: Logged | Report this post to a Moderator
Catgirl
Frequent Contributor (5K+ posts)
Member # 31149

Icon 1 posted      Profile for Catgirl     Send New Private Message       Edit/Delete Post   Reply With Quote 
Kitts, have you read Burrascano's protocol(16th edition) for babs (google it, and it's on this website)? I don't know if you are on mepron or malarone for babs, but Burrascano warns against using CO-Q10.

--------------------
--Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together).

Posts: 5418 | From earth | Registered: Mar 2011  |  IP: Logged | Report this post to a Moderator
Beth22
LymeNet Contributor
Member # 30232

Icon 1 posted      Profile for Beth22     Send New Private Message       Edit/Delete Post   Reply With Quote 
thanks to all of you. i know it is true that you can't rely on the test to know if you're in remission, but I think they are pretty sure that it makes you more likely to relapse if it's low. it makes me sad, i really thought i was done.
Posts: 236 | From Zionsville IN | Registered: Jan 2011  |  IP: Logged | Report this post to a Moderator
Beth22
LymeNet Contributor
Member # 30232

Icon 1 posted      Profile for Beth22     Send New Private Message       Edit/Delete Post   Reply With Quote 
thanks to all of you. i know it is true that you can't rely on the test to know if you're in remission, but I think they are pretty sure that it makes you more likely to relapse if it's low. it makes me sad, i really thought i was done.
Posts: 236 | From Zionsville IN | Registered: Jan 2011  |  IP: Logged | Report this post to a Moderator
BuffyFan
LymeNet Contributor
Member # 34679

Icon 1 posted      Profile for BuffyFan     Send New Private Message       Edit/Delete Post   Reply With Quote 
wait, how do you know what value just the cd57 is? because there was a lot tested with mine. just curious for example

CD57+ 2
CD57+ /CD3+ 2
CD57+ /CD3+ CD8 + 1

would really like someone to explain this to me...there were more results listed I just didn't feel like typing them all out but I can if you need it.

Posts: 287 | From somewhere | Registered: Oct 2011  |  IP: Logged | Report this post to a Moderator
nonna05
Frequent Contributor (1K+ posts)
Member # 33557

Icon 1 posted      Profile for nonna05     Send New Private Message       Edit/Delete Post   Reply With Quote 
Is there a chart of some kind.....It's got to have a key of some kind.
Sixgoofykids "not that bad" I have to have not understood that or I've been playing with the not as bad as it gets' for several years on my own with abx's and pain meds and immune support.
Then last year either it took a turn for worse or steroids shots just sent everything over the roof.
But so many are so worse off. I just pray. The answers will be found

Posts: 2563 | From Denver,CO | Registered: Aug 2011  |  IP: Logged | Report this post to a Moderator
lost11
LymeNet Contributor
Member # 34607

Icon 1 posted      Profile for lost11     Send New Private Message       Edit/Delete Post   Reply With Quote 
If most of you are saying that a normal CD57 means you can stop treatment.. Then why do I need treatment if mine is normal? It perfect normal too. This makes me very confused?
Posts: 267 | From South | Registered: Oct 2011  |  IP: Logged | Report this post to a Moderator
lost11
LymeNet Contributor
Member # 34607

Icon 1 posted      Profile for lost11     Send New Private Message       Edit/Delete Post   Reply With Quote 
If most of you are saying that a normal CD57 means you can stop treatment.. Then why do I need treatment if mine is normal? It perfect normal too. This makes me very confused?
Posts: 267 | From South | Registered: Oct 2011  |  IP: Logged | Report this post to a Moderator
Tracy9
Frequent Contributor (1K+ posts)
Member # 7521

Icon 1 posted      Profile for Tracy9         Edit/Delete Post   Reply With Quote 
Original was 32.
I felt better after a lot of treatment, it was 120.
I felt crappy again, it was 49, back on treatment.


That's my experience.

--------------------
NO PM; CONTACT: [email protected]

13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG.

Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005  |  IP: Logged | Report this post to a Moderator
Karensky
LymeNet Contributor
Member # 21350

Icon 1 posted      Profile for Karensky     Send New Private Message       Edit/Delete Post   Reply With Quote 
I am not an expert... far from it ... but what I have read is that the

CD 57 is not definitive... surprise, surprise ... what is with this

disease ?! So you cannot go with test results alone... BUT ... I

also have been told that good LLMD's will not suggest stopping

treatment until after 2 or 3 months symptom free and not in

colder months either...for what it's worth...

--------------------
"Gratitude is not only the greatest of virtues , but the parent of all others "....Cicero

Posts: 254 | From new jersey | Registered: Jul 2009  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.